First, a big welcome to everyone stopping by from ICLW! Stop by and say hi, I really love to meet new blogger friends and reconnect with my other wonderful blogging friends.
In regards to my last post, I’m happy to announce that Chris passed his physical and now we are waiting for his call to go out. According to dad, it seems that they are having trouble at the camp placing people so as soon as additional rooms are ready to hold the planned new hires, they should be sending him out, or possibly sending him to a different camp than the one dad expected him to go to. So now, more waiting. He should’ve left today if they kept to the plan but they didn’t so we wait by the phone until they tell us when his flight is. But I’m enjoying what days I have left with him before the two week rotations start. I still hate the fact that he has to go, I’m going to miss him terribly, but the pros severely outweigh the cons and many of the cons we can live with or adjust to over time. At the end of the day, this is for us. This is for our future. We will make this work.
Earlier this week, Chris brought up the topic of treatments. I prefer it when he starts the discussion because I’m always ready to talk about it but he needs to be ready to talk about it.With the money he will be making soon, we should be able to afford our first round of IVF by the beginning of the new year. We are both happy now that we will finally be able to afford IVF and multiple rounds of it if necessary. But while talking, Chris did raise some concerns. Chris has been dealing with an anxiety disorder since he hit puberty. He has a very real fear that he will pass this onto our children and he simply doesn’t want to put his children through that if he doesn’t have to. I understand this fear, I’ve watched his panic attacks for years. But I’ve also pointed out to him that this isn’t necessarily going to happen for the children or even be as bad if it did. But this was the first real honest discussion we had about donor sperm. We played the what if game. He asked about our options. He asked if we could request characteristics that were close to his own. He asked if I was OK if we had to go down that road. And sure I would love nothing more than to carry my husbands baby and it to have both our DNA. But I would be OK if he decided that he would rather us move forward with donor sperm. I made my peace with this when we were diagnosed because I walked in expecting the worst case scenario. I still want the pregnancy, I’m not ready to give up on that without a fight and deep down I think he knows that that experience is still a very important part to me. Chris was adopted and his mother said something to us over the weekend that solidified my thoughts on this. She told us about the call from the agency and the home visit when they told them that could pick up the baby in a couple of days. She told me, “Kim, when he was put in my arms, it suddenly didn’t matter how he got there. Just that it was meant to be and I knew with every fiber of my being that he was mine.” Over the 3 years of our struggle, this is what I’ve come to embrace. It doesn’t matter how we get there, just that we get there and regardless of what we have to do or whose sperm and egg we may have to use, that child will be ours.
In other infertility related news, I’ve been running into an issue with my local fertility clinic. Chris’s urologist, Dr. G, saw us back in March. Dr. G sees patients through the infertility clinic, but he is not technically staff of that clinic. What that means is that he works there part time while also having his own practice. So he works in the public health care system and also in the private infertility sector. For those not in the know, I’m in Canada so free health care overall but infertility is one of the few that is a private sector and the one bit of health care I’ve had to pay for out of pocket. So because Dr. G technically takes patients in both sectors and also teaches, he has his own office and secretary and only uses the clinic for infertility patients.
When we saw Dr. G back in March, he checked Chris, gave us a full rundown of our options and asked about what testing I’ve had done. After giving my medical history, he asked if I had a list of numerous tests done. I’ve only had some blood work and an internal ultrasound done to this point because my family doctor did not know to send me for anything else. Dr. G said that he would refer me to a local gyno to have those other tests run and to do as much of the pre-workups for IVF as I could down here to cut down on travel. This particular gyno has done this for others in my area but only takes on new patients by referral only. In March, Dr. G gave me her name and told me that he would send off the necessary referral. I was told to give it a month just in case they were overloaded at the time and if I hadn’t heard from their office, then to simply call the gyno’s office and check.
It’s June 20th. I haven’t heard from them. I called at the end of April and their was no referral. I called the clinic, explained what happened and they told me that I have to talk to Dr. G. Dr. G’s secretary told me that because the appointment was at the clinic, the paperwork and referral should be in their files and they need to take care of it. So I call back to the clinic and they tell me that Dr. G made the referral so it has to come from him because there is no paperwork there to show that he ordered a referral for me or under mine or my husband’s name. They tell me it will be taken care of and to check with the gyno in a week to check on the referral. This same routine follows at least another 3 times, each time ending in frustrating calls with the clinic secretary using what power she has to try to get this referral taken care of. Each time I get more frustrated. I stopped calling Dr. G’s office because she claims that she has nothing to do with this and its all on the clinic, plus she’s near impossible to get through to on the phone and as much as I’d like to some days, I’m not driving to Halifax just to bitch her out. I call the clinic again and I’m on a first name basis with the secretary at this point and its always the same girl. She tries to book me an appointment to come in but they require certain testing on my part before I can go in there and I’m not willing to fork over another $165 plus travel expenses (and time off work because they don’t take weekend appointments) just for a piece of paper that should’ve been sent in the first place. At this time, the gyno’s office has checked her files 3 times all the way back to the beginning of March for the referral and promises that she can get me in to see the gyno in about a week as soon as she has the referral papers because she knows how long I’ve been trying to get this appointment and promises to fit me in ASAP, she just needs the referral before she can help.
All this time, months worth of calls, and I have been nothing but friendly and professional on the phone. Today was my breaking point. I call back to the clinic after giving them a week since my last call. I tell them who I am in my opening and the receptionist instantly recognizes my voice. We are chatting like we are old friends at this point. She is shocked and amazed that I have not heard anything yet because she personally faxed off the paperwork, her own notes from our phone calls along with our file, as soon as she got off the phone with me last week. All of my calls have been documented she has faxed off info each time to the office of Dr. G. The last time she called, faxed and put an urgent notice on the top of the fax in hopes of getting it taken care of. She told me to give it a day or two and call back. I gave it an extra week to be sure. She is floored by the fact that nothing is done yet. All I need is Dr. G to confirm that he wanted a referral sent to the gyno saying do test x,y and z and sign his name. Finally my finely crafted wall of professionalism breaks before I can get off the phone. While the secretary is apologizing for the 20+ time since March, I break. Before I can stop myself I started crying and said, “I’ve had enough. Why can’t I get a break? I spent 3 years fighting with doctors to convince them that there was something wrong and we needed to be referred to you guys and now I’ve spent months getting the run around between your office and Dr. G’s office because of an error with the notes in our file. I just feel like giving up, maybe we just aren’t meant to have children and this is the universe saying its time to give up.” The secretary was trying to do anything and everything in her power to console me. I didn’t want to be that person on the phone, I hated showing my weakness and frustration. She asked if she could make some phone calls and call me right back because she wanted this fixed now. So she let me go, asking and pleading with me to not give up. She tried herself to get through to Dr. G. She couldn’t get through but she did call me right back. She faxed over the files, what I told her on the phone, all the documented calls and even made note that at this point I am incredibly upset and told me that she would confirm it in the morning and wouldn’t stop til she got through to Dr. G. And if that didn’t work, she would pass on my file to one of the other doctors on staff at the clinic because if she couldn’t make any headway, Dr. G would jump at the request if it was made from one of the other doctors.
Before I got off the phone with her, I thanked her for her help and she told me that her heart broke for me and what I’m being forced to go through and that if she had anything to do with this, it would be fixed and we would move forward and get our chance. She genuinely cared and was doing what she could in her limited power to help. From what I’ve been told, this isn’t the first incident with Dr. G’s office but this may be what they need to finally be able to fix things in their office and with protocol to make things run more smoothly. Part of this makes me want to up and go to another clinic, but its really not their fault. The fault seems to be on Dr. G and his office and they are simply the ones dealing with the fallout. This issue has shown a clear fault with their system that needs to be addressed. The other downside is that this is the only clinic in all of Nova Scotia and they also service all of Newfoundland on top of it. I think the next closest clinic is in New Brunswick and right now, I don’t want to travel that far for treatments. Plus at least in Halifax, we have family we can stay with when we need to travel for treatments. We don’t really have that option for New Brunswick. We have family up there, but none that I know well enough/feel comfortable enough to 1. ask if we can stay with them for more than a couple of days at a time or 2. be comfortable enough to be around during the thick of treatment. With the people we stayed with in March, they understand. They’ve been through multiple miscarriages, they know (at least on some level) what we are facing emotionally and they don’t make us feel like guests. They welcome us into their home knowing what we are going through and would be insulted if we didn’t stay with them. But if the problems persist, we may be left no other option and that leaves me very sad.
This whole incident has just left me so frustrated. When we first went to Halifax I had such high hopes. I finally thought that for once, people would listen to us, they would understand and things would move smoothly just this once. That the battle with doctors was finally over. Who knew that I would be fighting with them just so that I could come back to Cape Breton for part of the work up? We just want to get pregnant and have a baby. We are not looking to cause a war or solve world peace. It shouldn’t be this difficult. This simply shouldn’t hurt as much as it does. Can we please get a break?
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UPDATE: I woke up this morning to a phone call from Dr. G’s office. She apologized for all the stress that this has been causing me. She told me that Dr. G has an appointment at the clinic a week from today and she has faxed over the request for our files to be ready at the clinic when he gets there. He will write the referral and the clinic will fax it out immediately. I thanked her and she told me to call to confirm it was done next Thursday and if its not, she will sit in his office til he fills it out. By the time I got to work, the office phone rang and it was the wonderful secretary who helped me over the past couple of weeks. She seen the fax as soon as she got in and wanted to call to confirm I knew what was going on. She actually cheered on the phone with me when I told her that the other office called me and gave me a timeline and she was so happy that I finally got the answers I needed and wanted. She promised to call me as soon as it was faxed and wished me the best of luck.
I really am grateful for that wonderful secretary. I’m tempted to get a small something for the secretarial staff and a thank you card and send it to her. She really did go beyond what her job is and I’m incredibly grateful. Or maybe when I go up for my next appointment when we start treatment, I’ll go to my favorite cupcake place and buy them some cupcakes as a thank you. What says thank you, you’re a sweetheart than fresh baked cupcakes?