Chatter
in a nutshell, here is the discussion, abbreviated.
last night as i sat in my daughter’s ceramics, an acquaintance mentioned how horrible it is to be gluten free in this world. a friend of hers, her daughter, was dx as celiac and said how much this dx has messed up her family and caused her much distress over the fact that she needs to prepare ‘special food’ for her daughter. i mentioned something about us being gluten free and she asked if i was celiac. i told her no, my son is type one. she proceeded to tell me that her brother is type one (he’s 50). then she let loose about how her brother got type 1 from too much sugar and juice and all the foods her mother fed them (dx at 8). he was also the skinny one and she was far from it. the story is typical, he does not eat healthy, exercise or take the best care of himself. that is why he is on the pump, the pump does it all for him.
another lady turned and said her husband is type 1, dx at 18 when they met (47 now). he does not take care of himself either. he eats almost all his food at night, does not exercise and gets very low, often. he went on the pump several months ago. she wishes he took better care of himself but it is a touchy subject between them.
ok, 3 people with type one families in the room of 4 families that day, including me. i don’t need to tell you, there was even more in the conversations.
i was asked a lot of questions. they were amazed that the kids and i all follow the same way of eating as tyler. they felt it must be tough being dx as a teen. it was also commented on how my kids must be missing out on ‘real life’.
one of the ladies told me that by the way we are working with tyler, then, perhaps, it will keep him from going blind, loose a limb, kidneys or worse.... all within earshot of my daughter. she kept looking back at me, giving me the look of ‘are these people for real’
after ceramics, we ate out before we headed over to our 4 H meeting where pizza, cupcakes and juice were being served. one of my kids said, i am glad we ate first and i cannot wait to have our yummy chocolate chip cookies when we get home!