Archive for August, 2008

Just Leave Them Alone, I Guess

August 31, 2008

If you’ve been reading my blog for a while, you’ll know that I love orchids (I totally thought I posted photos from when we visited the orchid farm when we were in Thailand last year, guess I was wrong. Regardless, IT.WAS.BEAUTIFUL!)

I also love Trader Joe’s.

And as luck would have it, Trader Joe’s sells orchids for dirt cheap (like $15 for a huge moth orchid plant).

So between me buying them and receiving them from well-wishers, we have turned into an orchid farm in our own right.

The only problem is that after the flowers have dropped off, we’re left with straggly looking foliage that downright refuses to rebloom. Case in point:

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This is despite my best efforts at watering once a week, fertilizing once a month, and just general giving a crap about them (maybe it’s because I don’t talk to them?). All the effort with such little returns (and the fact that we can get them for so cheap) helped me to make up my mind just to toss the obstinate bastards in the yard waste container and buy new ones.

I meant to do just that before I went into the hospital when I noticed that the moth orchid (in the white pot) was getting some blooms on it. And upon coming back from the hospital, this is what I found:

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I’m not sure if it realized it was running out of chances or what (or perhaps it’s because I was talking to it, well, cursing may be more accurate), but there you have it. A beautiful moth orchid in mid-bloom with amazing flowers.

I guess I just need to leave them alone and let them do their thing.

I also need to start give our grass an ultimatum.

Happy 9 Months Oliver!

August 30, 2008

I can’t hardly believe it, but today Oliver turns 9-months-old! It’s amazing how on one hand time seems to have flown and he’s already 9-months-old and on the other how it seems like yesterday since he came to be part of our forever family!

Thank you for everything you’ve taught me and Papa over the last nearly 7 months, Oliver. You make me want to be a better person and a better Daddy.

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An Impatient Patient

August 29, 2008

I checked into the hospital on Monday for the second-to-the-last round of chemo.  This round entails them flooding my system with a chemical called methotrexate over 4 hours, allowing it to stay in my system for 24 hours, then using a “rescue drug” (leucovorin (the bag says it’s folinic acid)) every six hours to get the methotrexate out of my system.

Unfortunately the levels of the chemo haven’t dropped as they thought they would so I’m stuck in the hospital for yet another day.

And I’m not happy about it!  Actually I’m quite agitated.  I’ve tried everything to help this day pass quickly, including trying to take a nap three or four times, but I’m so agitated I can’t relax and therefore can’t sleep.

Hopefully tomorrow will be the day I get the lucky numbers I need to get out of here.  I’m really not sure what I’d do if I had to stay another day!

Catching Up

August 25, 2008

My how time flies when you’re having fun.

No really, I’ve been having fun!

Last Friday was My Partner’s 50th birthday and we celebrated with a dinner of our closest friends.  To keep from wearing myself out as much as possible I spread the preparations out over the course of the week.  And although it didn’t really work (I was still exhausted on Friday!), it did help to make for a less stressful event.

When I asked My Partner what he wanted to do for his birthday a couple of weeks ago, he replied that he wanted a formal, sit-down dinner and that he was tired of “birthday barbecues” (I guess in retrospect we have celebrated a lot of our friends’ birthdays with backyard barbecues!).  And given that it was his 50th birthday, I figured it was an occasion deserving of a more formal event.

I started planning the menu shortly after he decided he wanted a dinner.  During my last hospital stay I caught America’s Test Kitchen on public television and decided I had to make the Roast Beef Tenderloin with Caramelized Onions and Mushroom Stuffing (You may have to sign up to see the recipe, but this site is SO WORTH registering for and I have yet to receive a single spam from them!).  After seeing the program and how they did it, I was amazed at how easy it was to cut and stuff a tenderloin; definitely something I will do again in the future!

To accompany the beef, I made brussel sprouts cooked with pancetta and red onions, and dear friend made her incredible potatoes dauphinoise.

To hold up the candles, I made My Partner’s favorite birthday cake: a croquembouche (which they call piece monte in France), filled with both vanilla and chocolate pastry cream.  Unfortunately it’s been humid (for Los Angeles) and the caramel on the croquembouche softened while it was sitting.  So just as we were getting ready to put the candles in it, the cream puffs started to shift and settle, putting the whole tower of puffs in peril of falling to the floor (which likely would have made my dog very happy).  Thankfully one of my friends was thinking faster than I was and quickly, um, shall we say “rearranged” some of the puffs to make it sturdier, if not shorter and squatter.  Oh well, at least the cream puffs weren’t scattered across the floor!

It was an incredible dinner and a wonderful evening with our friends.  I can’t remember the last time I had such an enjoyable time, certainly not since all my recent drama began.

Then Saturday night was spent with My Partner, alone! (for the first time since February 5!), at the Hollywood Bowl.  After a small picnic (part of the charm of going to The Bowl is that you bring a picnic to either enjoy prior to the concert!), we boogied to the music of Donna Summer (don’t judge us! 😉 ).  It was a really good concert and a wonderful time with just the two of us.

Then to round out the weekend, we spent Sunday afternoon at our dear friends’ home enjoying, cough, a barbecue.  But this time no birthdays being celebrated!  Just neighbors and friends enjoying a Sunday afternoon over some great food and beverage.

But unfortunately, the fun must come to an end at some point.  And so here I am, sitting in the hospital waiting for my second-to-the-last chemotherapy to begin.  I’m feeling rather anxious because I remember this cycle from last time and it wasn’t fun, to say the least.  In fact, it sucked.  ROYALLY!  But as I said, it’s the second to the last cycle of chemo I will hopefully have to have!

Oh, other good news that I’ve been meaning to share: I’m cancer free!  I had a PetCT scan at the beginning of August and it did not show any signs of cancer!

Which makes sitting in this hospital room waiting for chemotherapy bittersweet.  I understand I have to complete the course of chemo in order to ensure the cancer doesn’t come back (although does it really ensure that?!), much like we’re told to finish all the antibiotics we’re prescribed even though we begin to feel better.

Oh well, I’ll just have to think back on the great weekend I had with my family and friends to help get me through these last couple of weeks.

K.I.S.S.

August 19, 2008

I don’t remember from whom I heard it, but I’ll never forget the acronym K.I.S.S. or Keep It Simple Silly (I originally heard it used with “Stupid” but dislike that word, so I use “Silly” instead).

Of course, keeping it simple isn’t something I do well. If there is a convoluted reason for why someone cut me off in traffic, I’ll find it. Instead of thinking “He’s a dumbass” (which is clearly simpler and usually the case in Los Angeles), I’ll have to make up some story about how he was jealous of my beautiful car and wanted to make himself feel more important by being one car in front of me!

Such is the way I tend to sew. Well, not when I’m following a pattern because thankfully they’ve already (usually) made the instructions as simple as they can. But when I try to create something myself, I tend to overthink things and go for the more difficult route.

My penchant for making things difficult became clear most recently when I decided to make a cover for a second hand car seat (and quickly since my Little Giant’s head was beginning to bob above the top of his current car seat and getting him strapped in required some contortions on his behalf!).

I began by taking off the current cover and meticulously contorting it (I wanted to use the old cover under the new cover for padding and as such didn’t want to dissemble it) to create pattern pieces from freezer paper. After spending about 4 hours trying to figure out the construction of it and how the pieces all fit together and in what order they’d need do be sewn blah blah blah I soon became overwhelmed and tossed it aside.

There the project sat for a couple of weeks (as Oliver’s contortions to get into his current seat became more impressive!) when one evening I looked at it sitting on my sewing table and realized it looked like an oval.

I quickly laid out my fabric, folded in half lengthwise and put the cover on top of it at about it’s midpoint.

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Then I marked through the slits on the original cover onto the new cover to get the placement for the seat belt slits. Finally, I cut a piece of the fabric lengthwise (actually I had to piece three pieces to get something long enough), attached it to the oval with my serger, then sewed a hem for some elastic.

And Voila! A new cover for a slightly used but perfectly fine car seat!

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And a slightly blurry photo to show how much room My Little Giant has to grow before I have to worry about another car seat!

While I was on this K.I.S.S. kick, I decided to sew some new bumper pads as well. The other ones I made from chenille from ExploitMart would shed something fierce. Oliver would wake up with white cotton toe and finger jam.

So before I could make it too complicated (since I clearly couldn’t remember how I’d done it last time!), I whipped out my measuring tape, jotted out an idea, and cut my pieces for sewing.

And now Oliver has lint-free bumper pads (even if they’re a little too long and hence look wavy/lumpy)!

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I have to find something else I can K.I.S.S. I’m on a roll!

What I Find When Oliver Wakes Up

August 16, 2008

For the last week or so, Oliver has been playing this game with us when we go into his room to get him after he wakes from a nap.

He acts like he’s trying hide or protect his lubby (the small blankie made by my dear friend Adele).

It’s pretty cute to see him do it and he doesn’t seem to get tired of it!

Enjoy for yourselves!

Blech

August 13, 2008

That one words thoroughly encapsulates exactly how I’ve felt for the last three or four days.

Probably because I had to say out loud that I didn’t have much nausea during my first course, I’ve been hit with a tremendous sense of nausea during this third course (which is a repeat of the first course).

I’ve been home since Sunday afternoon and that whole time I’ve felt like I’m one step from running to the toilet.  Actually, yesterday wasn’t so bad; maybe it was the Thai food.

As I type I am hooked up to the sixth round of IV antibiotics (of fourteen) and there’s no Home Health Nurse in sight!  I got a very fast training on Friday before I went into the hospital so I had a general sense of what to do.  And when the HHN called to cancel on Monday I said it was no big deal, I’d figure it out.

It was a little unnerving at first because the antibiotics come in dehydrated in a little vial and need to be reconstituted and then withdrawn and injected into a bag of saline.  Then that has to be hooked up to my PICC line and allowed to drip into my system over 30 minutes.  Of course I can never get the drip right, so it usually ends up taking about 5 minutes.  Oh well, less time sitting around!  (I checked with my HHN and she said there is no danger with it dripping faster than suggested other than a flushed face.)

So, in a nutshell, I’m home, I feel like crap, but I’m happy to be feeling like crap at home!

I have an out-patient chemo appointment on Friday and then nothing until the end of the week after.  I’m supposed to go in for in-patient chemo on Friday, August 22, but it’s My Partner’s 50th birthday and I want to be here to celebrate, so we’re pushing it off by a day or three.

Back In The Saddle Again

August 8, 2008

Well, alright, so maybe it’s not a saddle, but I’m back in a hospital room.  And I’m happy to be here!  Funny what how a little scare will make you happy to be having chemo again!

The “scare” was when my primary care physician told me that we may have to postpone my chemo until this fungus situation (which hasn’t yet been confirmed!) is under control.  Don’t get me wrong, my PCP is AMAZING; one of the best I’ve ever had; LOVE.HER!  But she’s not an oncologist, so when my oncologist  (who is currently out of town for a conference AGAIN) found out about the delay in my chemo, he apparently made it clear that my chemo could and would not be postponed, especially since I’m not symptomatic from the fungus.

(By the way, GUESS how long it takes to treat a fungal infection!  SIX MONTHS!  Or at least that’s how long my doc said I’d be on anti-fungal medication if the biopsy comes back positive.)

Anyway, we’re resuming chemo, which is fine by me, because my oncologist put the fear of the The Gods in me when we initially started chemo by telling me how aggressive this cancer was and how we couldn’t go for very long without treatment or it could build up resistance, etc.

And of course, I can’t have an uneventful admission to the hospital.  Ever.  This time I went to Admissions, did the paperwork (a copy of which is in my bag), came up to my room (without a wheelchair, TYVM!), and started unpacking.  Suddenly a voice comes over the Nurse Buzzer Thingie (that’s the technical name) and says, “Mr. Varney, you were supposed to go to Admissions first; we can’t do anything for you because you’re not in the system.”

The persona behind the voice is the VERY grumpy ward secretary.  Everyone is afraid of her.  No really, everyone I talk to about her tells me they’re afraid of her.  She’s one of those people who’s been here forever, is (hopefully) on the verge of retiring, and pretty much doesn’t care how she speaks to anyone.  Of course, me being me, I don’t know when to shut my mouth and always have to engage with her grumpy self.  Not that it does any good.  But geesh, aren’t I suffering enough without your cranky attitude!  (I actually told her that one day!)

So I replied to the grumpy voice, “I already went to Admissions which is why I have my admissions paperwork in my hands.”

To which she replied, “That can’t be Mr. Varney, you’re not in the system.”

Yep, I’m back in the hospital, where no one listens to you and unless you’re in the system, you don’t exist.

The Shortest Distance Between Two Points

August 7, 2008

I am happy to say I am posting from OUTSIDE of the hospital! All-in-all it was a short stay (I can say that now because I’m discharged and at home and it can’t be jinxed, like the time before last!).

I was admitted on Tuesday morning and ended up being discharged on Wednesday night. But lest you all think all that time was spent in productive biopsy-getting, let me tell you what really happened.  Less than three hours of my 36-hour stay was spent accomplishing what it was I was there to get done.

Tuesday I was settled into my room by 11:30am, at which point the waiting began. Thankfully I didn’t have to have an IV for liquids or anything, so I was rather unencumbered. And I had a beautiful view from my 7th floor window.

Practice Field

Room With A View

This is the sunset the first night from the end of the hallway.

Sunset From Hallway

The novelty of the beautiful view soon wore off; I was in a hospital waiting for a lung biopsy after all, not in a hotel waiting for my massage.

And wait is what I did all day on Tuesday.  That and spend lots of time “visiting” with the overachieving student doctor who was assigned to my case.  And by “visiting” I mean him asking me every question under the sun and me becoming more annoyed with each additional question.  Clearly by now I have a chart a mile long, READ IT!

What’s funny is that the standard response for why they’re asking all these questions is, “We want to hear your side of the story to see if what you understand is what we have recorded.”

B.O.L.O.G.N.A.

It’s so they don’t have to wade through the gigabytes of data that have been collected on me so far.

Deep, cleansing breath.

So Tuesday was a wash.  But near the end of the day I did get promising news that I might be lucky enough to get in for the lung biopsy in the afternoon.  What this meant for me now was no food or beverage after midnight.

Being a fan of food and beverage, my first question was, “When in the afternoon will it be?  One o’clock seems very different than 5 o’clock when one isn’t being allowed to eat or drink.”

Of course, no one knew.  The doctors said the nurses would know.  The nurses said the radiologist communicated that information with my doctors.  Clearly someone hasn’t seen me when I haven’t had breakfast and lunch before because they’re playing with fire.  I was surly to begin with.  Add a drop in my blood sugar and an increase in my moodiness and whew it could get downright ugly!

So after I finally explained to them that it didn’t make sense for me to be NPO (no food/water) for 17 hours (assuming a 5pm appointment), they got a time of 1pm.

The next morning I did everything I could to entertain myself and keep my mind off the impending lung biopsy.  Of course, my main coping strategy: eating, was off-limits.  So I had to get creative.

I spent a little time working on some embroidered napkins for Joansy that are her birthday gift.  I walked around the museum-like hospital admiring the views from the windows.  I went back into my room and caught up on some emails.  Then finally I just gave up on it all and went to sleep.  By then it was noon and I figured a nice, hour long nap would do my surliness some good.

And it worked.  I woke up just after 1pm in a relatively rested, relaxed, and good-humored mood.  I figured the transport people were on their way at any moment so I just laid in bed and watched TV.

Unfortunately the clock was right above the TV, so I was in effect watching the clock more than the TV.  And with every revolution of the second hand, my blood pressure began to mount.  Finally, at 1:45pm, I called my nurse (no, really, I called her!  They carry phones and we can call them!) and asked what was going on.  She replied that my procedure had been moved to 3pm because the brand new machine (no, really, they just moved into that hospital less than a month ago!) broke down and they were waiting for the repair people.

Of course, all I heard was, “You have to wait longer to eat or drink something.”

So now I’d run out of options.  I’d already done as much embroidery as I could do at that moment.  The internet held no interest to me.  I was wide awake from my nap.  And I was hungry enough to contemplate gnawing on the fleshy part of my palm.

More walking around the pretty hospital that looks more like a museum.

Finally the time comes, they roll me down to Interventional Radiology in my bed (I hated EVERY minute of that!  I CAN WALK! LET ME WALK! It’s our policy. IT’S A STUPID POLICY!)

They get me inside the CT room and the radiologist finally comes in to explain the procedure:

  • they will hook me up to an IV and give me some happy medicine to calm me down (little did they know they were going to need more happy than they first anticipated!)
  • then they will use the CT scanner to locate and help them mark the node on my lung
  • he will then slowly and by using the CT scanner to guide him, move a 19 gauge needle into my back, past the pleura (the lining of the lung) and finally into the center of the 1cm node that is attached in my lung near my chest wall
  • once the needle was in place, the center of it would be removed and a narrower needle inserted and used to collect the biopsy samples
  • then he will take 7 or 8 biopsies of the node for examination and to begin cultures to see what they grow into

Most everything he described happened exactly as he had explained.

He located and marked the location of the node (which was on my inner chest wall) on my back (does anyone see where I’m going here?  Read the title of this post!).  Then he inserted the 19 gauge into my back stopping every centimeter or so to leave the room to get a new CT scan of where he was going.

This continued until he reached the node attached near my chest wall.  My chest being on the opposite side of my body and much closer to the node.

Instead of going through my chest to get this stupid node, and thereby using a much shorter needle!, they went through my back, all the way through my lung, and then up to the chest wall to get this node.

Apparently the reasons for going in such a circuitous manner was twofold: first, the node moves when I breath and could be hidden from access behind a rib, requiring an awkward (but still shorter!) angle of approach; and second, when recuperating, you have to lay on whichever side they entered on, so it’s more comfortable for me recuperate on my back than on my stomach (which I agree with).

The best part was when he pierced my pleura which hadn’t been thoroughly sedated and it literally sent an electric shock (anyone from the country, think cow fence shock!) through my chest and cause me to yell out and lift off the table.  To which the good doctor responded with, “Please don’t move.”  I may have swore at that point.

After finishing but before letting me go he explained that I shouldn’t cough hard or use long sentences for the next two hours as either of these could reopen the hole they just filled with my own blood (to help it clot closed).  Swell.

So there you have it.  More details about my lung biopsy than you ever wanted to know.

Yes, We Have No Chemo Today

August 4, 2008

I’m not sure if I told y’all, but I was supposed to begin the second half of chemo today (I have to repeat the same two rounds I just went through).

Unfortunately, this morning I got a call from the doctor who is covering for my regular oncologist who is out of town again (that’s what happens when you have one of the leading oncologists in the world I guess).  She wanted me to cancel my chemo and instead check into the main UCLA hospital (I cannot call it by it’s official name, blech!).  Apparently she had received the radiologist’s report from the PetCT scan I had on Friday and there was a “node” on my lung that wasn’t there in my last PetCT scan.

My initial reaction was, “Who are you?” and “There’s no way I’m canceling my chemo!”

After all, I had just spent the whole weekend stressing and worrying about beginning this second half and having to go through everything I just went through again.  It was no small feat for me to finally accept that it was unavoidable and, well, would ultimately save my life.  And here’s this doctor who I have never heard of on the phone telling me I had to cancel!  (It wasn’t until later in the day that I even gave a thought about  the “node” she mentioned!)

After a phone call with my oncologist’s assistant (who, for the record, is AMAZING at her job!), I was assured that I would likely be proceeding with chemotherapy.  Whew!

Then she called back to say that she had misspoken and that after speaking to the oncologist that called me the chemo would indeed be canceled.  Apparently the “node” on my lung could be a fungal infection (how does one get a fungal infection on one’s lung?!  From a community shower?!) and that if they proceeded with chemo, my immune system may not be able to hold it off and it could get worse.

So as of this morning at 10:30ish, I was going to be checking into UCLA Hospital for a biopsy of the lung node to be followed by 24 hours of monitoring (for a total of a day and a half in the hospital).

Of course, that didn’t happen as planned.  In a phone call late this afternoon, the covering oncologist explained that UCLA Hospital is low on beds and therefore they can only admit “urgent” cases.  Since my case was only “semi-urgent” the best they could do was to get me in on Wednesday or Thursday.  (Apparently it also would have required an authorization from my insurance, which would have taken a while as well.)

Thankfully this wasn’t good enough for the doctor so she is having me admitted as an “urgent” case, thereby bypassing UCLA’s “bed rationing” (I swear, she used those words!) as well as the insurance authorization.

I asked what the day and half I was told I would be in the hospital would look like.  It was then that she explained that I did not have an appointment for the lung biopsy and that it would be done as the interventional radiologists (they’re doing a guided biopsy, which still sounds freaking painful!) had time.  She said she couldn’t say whether I would be there for 2, 3, or even 4 days!  And since only part of that day would be the actual biopsy, it meant the any other time other than a day and a half would just be me sitting around waiting for them to poke my lung!

Knowing that it wasn’t her fault, but still feeling the pressure of making sure my son is cared for and that my partner can work, I explained my hesitancy to be in the hospital for 4 days basically waiting for a biopsy to happen.

She replied, “Let me explain it this way, if you were my brother, I’d tell you that you really should get this done.”

To which I responded, “If you were my sister, I’d ask you if you could watch my son!”

She didn’t get it.

Anyway, so tomorrow morning around 10am-ish, I will be checking into UCLA Hospital for a stay of unknown duration to have a biopsy of a node on my lung.

I guess the good news is the doctor assured me that the node did not look cancerous.  I guess I’ll try to focus on the good news and hope it’s closer to 2 days rather than 4 days.


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