Decoding Dvlpmtl Epilepsies
Advancing improved outcomes for DEEs through innovative research and resources.
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Decoding Developmental Epilepsies
Decoding Developmental Epilepsies
International SCN8A Alliance
International SCN8A Alliance Website
International SCN8A Alliance Website
International SCN8A Alliance LinkedIn
International SCN8A Alliance LinkedIn
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International SCN8A Alliance Facebook
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International SCN8A Alliance Twitter
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International SCN8A Alliance Instagram
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International SCN8A Alliance YouTube
DEE-P Connections
DEE-P Connections Website
DEE-P Connections Website
Have questions about DEEs? We're Here For You How can we help? Search for answers here. Search Explore the comprehensive information in our Resource
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DEE-P Connections Instagram
DEE-P Connections Facebook
DEE-P Connections Facebook
DEE-P Connections LinkedIn
DEE-P Connections LinkedIn
DEE-P Connections Twitter
DEE-P Connections Twitter
DEE-P Connections YouTube
DEE-P Connections YouTube
As the parent of a child with a rare epilepsy, you may have experienced difficulty finding a space to learn about intractable epilepsies (also known as developmental and epileptic encephalopathies - DEEs) and the many challenges that come with them. We conceived of DEE-P (Developmental Epileptic Encephalopathy-Project) Connections as a way to break through the isolation and share critical resources with families facing similar challenges. We offer webinars on topics of interest featuring experts and always center around the voices of families on the frontlines of confronting these challenges. Knowing how unpredictable life is, all webinars and related resources shared with during the webinar are archived in our Resource Center. We are working to be your one-stop-shop with not only the webinars and resource we have gathered, but also resources from our partner organizations on topics that families are looking for answers and support on. Learn more at www.DEEPConnections.net.
The Inchstone Project Website
The Inchstone Project Website
Precise Measurements for Severe Epilepsies What We Do The Inchstone Project accelerates outcome measures development. We're on track to have FDA-approved
Blog - Collaborating, Caregiving, and Advocacy
Blog - Collaborating, Caregiving, and Advocacy
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