@PSGs
UK patient support groups (PSGs) for the endocrine and rare disease community.
Addison’s Disease Self-Help Group (ADSHG) | Working to improve the lives of people with Addison’s disease, adrenal insufficiency and all who support them
Addison’s Disease Self-Help Group (ADSHG) | Working to improve the lives of people with Addison’s disease, adrenal insufficiency and all who support them
Addison's Disease Self Help Group is a charity that works to support people affected by adrenal insufficiency, steroid dependency and Addison's Disease in UK and Ireland
Association for Multiple Endocrine Neoplasia Disorders (AMEND)| AMEND exists to inform, support and empower patients to live a lifetime with their disease
Association for Multiple Endocrine Neoplasia Disorders (AMEND)| AMEND exists to inform, support and empower patients to live a lifetime with their disease
AMEND is a UK registered charity providing information resources and support services to families affected by multiple endocrine neoplasia
British Thyroid Foundation (BTF) | Because living better with thyroid disease starts with the right information, support and research
British Thyroid Foundation (BTF) | Because living better with thyroid disease starts with the right information, support and research
The British Thyroid Foundation supports the thyroid community to live better with thyroid disease through evidence-based information, support and research
Brittle Bone Society (BBS) | Supports people affected by Osteogenesis Imperfecta with the aim to improve their quality of life
Brittle Bone Society (BBS) | Supports people affected by Osteogenesis Imperfecta with the aim to improve their quality of life
The Brittle Bone Society was set up to support those with Osteogenesis Imperfecta and their families. We help fund research, offer support and more.
Butterfly Thyroid Cancer Trust | Dedicated to the support of patients with Thyroid Cancer
Butterfly Thyroid Cancer Trust | Dedicated to the support of patients with Thyroid Cancer
Child Growth Foundation | Making a difference wherever growth is a concern
Child Growth Foundation | Making a difference wherever growth is a concern
Supporting growth conditions including Silver-Russell Syndrome, Sotos Syndrome, GHD, Hypopituitarism, Shox Deficiency, TBRS, IUGR, SGA.
dsdfamilies | Information and support for families
dsdfamilies | Information and support for families
Haemochromatosis UK | Supporting people affected by genetic haemochromatosis
Haemochromatosis UK | Supporting people affected by genetic haemochromatosis
We're the UK's only charity working to support people affected by genetic haemochromatosis, their families and communities.
Klinefelter's Syndrome Association | Support, information, research and awareness raising of KS and XXY
Klinefelter's Syndrome Association | Support, information, research and awareness raising of KS and XXY
Neuroendocrine Cancer UK | Dedicated to providing support and information to those affected by Neuroendocrine Cancer
Neuroendocrine Cancer UK | Dedicated to providing support and information to those affected by Neuroendocrine Cancer
Neuroendocrine Cancer UK is a non-profit organisation dedicated to supporting individuals and families affected by neuroendocrine cancer. We provide information, support services, advocacy, and resources to empower patients, caregivers, and healthcare professionals in the neuroendocrine cancer community. Our mission is to raise awareness, advance research, and improve the quality of life for those living with neuroendocrine cancer.
Parathyroid UK | Dedicated to improving the lives of everyone affected by parathyroid conditions
Parathyroid UK | Dedicated to improving the lives of everyone affected by parathyroid conditions
PWSA UK | Support for those living with Prader-Willi Syndrome
PWSA UK | Support for those living with Prader-Willi Syndrome
We provide vital support & resources for those affected by Prader-Willi Syndrome.
The CAH Support Group | We support people with Congenital Adrenal Hyperplasia, their families and friends
The CAH Support Group | We support people with Congenital Adrenal Hyperplasia, their families and friends
The Pituitary Foundation | Our vision is that all people with pituitary conditions can live well, now and in the future
The Pituitary Foundation | Our vision is that all people with pituitary conditions can live well, now and in the future
Turner Syndrome Support Society | Knowledge about relevant health complications in Turner Syndrome, leads to a happier healthier life with Turner Syndrome
Turner Syndrome Support Society | Knowledge about relevant health complications in Turner Syndrome, leads to a happier healthier life with Turner Syndrome
The Turner Syndrome Support Society (UK) is a national charity caring for the needs of girls and women with Turner Syndrome throughout the United Kingdom.
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