APS Type 1 Foundation
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Support Groups — Raregivers
Support Groups — Raregivers
HUDDLE with the APS Type 1 community - APS Type 1 Foundation, Inc.
HUDDLE with the APS Type 1 community - APS Type 1 Foundation, Inc.
Join our first Zoom gathering and share your experience, ask questions, connect with other APS Type 1 families. Topics to be discussed: Date: Sunday, April...
Carry the Torch for APS1 powered by Racery
Carry the Torch for APS1 powered by Racery
Serving Awareness Campaign - APS Type 1 Foundation, Inc.
Serving Awareness Campaign - APS Type 1 Foundation, Inc.
Host a Serving Awareness event. We’ve created a simple, easy-to-follow plan to raise awareness about APS Type 1 and raise desperately needed funds.
Donate - APS Type 1 Foundation, Inc.
Donate - APS Type 1 Foundation, Inc.
The APS Type 1 Foundation represents an international community. Our ultimate goal is to find a cure. We need money to support cutting edge research.
NORD® Webinar: Open Enrollment Essentials for Rare Disease Families - APS Type 1 Foundation, Inc.
NORD® Webinar: Open Enrollment Essentials for Rare Disease Families - APS Type 1 Foundation, Inc.
Health insurance is changing …are you ready? Join NORD® on November 19 at 2 p.m. ET for a Zoom webinar entitled “Stay Covered: Open Enrollment...
Welcome Amy Coan, our New Director of Community Relations - APS Type 1 Foundation, Inc.
Welcome Amy Coan, our New Director of Community Relations - APS Type 1 Foundation, Inc.
We are delighted to share another momentous occasion in our journey towards finding a cure for APS Type 1 and supporting those affected by this rare disease. Thanks to the generosity of our dedicated donors and supporters, The APS Type 1 Foundation is proud to announce that Amy Coan has joined us as Director of...
One moment, please...
One moment, please...
A conversation with Dr. Lynn Kohlmeier & Dr Mark Warren about hypoparathyroidism. What is well controlled? Why consider PTH therapy? Case studies involving titrating Yorvipath and much more.
Nutrition and Autoimmunity: NIH NOURISH Challenge
Nutrition and Autoimmunity: NIH NOURISH Challenge
Myth-Busting + Common Misconceptions - GivingTuesday
Myth-Busting + Common Misconceptions - GivingTuesday
RARE Advocacy Exchange - Global Genes
RARE Advocacy Exchange - Global Genes
Global Genes’ RARE Advocacy Exchange is a virtual event designed to empower, equip, and elevate individuals with the leadership skills to help make a change through a series of 8 sessions. We’re creating a space where seasoned leaders and those new to their rare journey can come together to exchange knowledge, develop practical skills, and find the confidence to lead effectively.
HPA - Youth Advocacy Program Survey
HPA - Youth Advocacy Program Survey
Take this survey powered by surveymonkey.com. Create your own surveys for free.
DAVE’S RESEARCH CORNER: BACK TO SCHOOL - APS Type 1 Foundation, Inc.
DAVE’S RESEARCH CORNER: BACK TO SCHOOL - APS Type 1 Foundation, Inc.
Commitment to Privacy
Commitment to Privacy
www.science.org
www.science.org
Dating with a Disease!
Dating with a Disease!
Read as I share what dating with chronic illness is like, and my best relationship tips for the chronically ill and potential partners.
World's First Patient Treated with Personalized CRISPR Gene Editing Therapy at Children’s Hospital of Philadelphia
World's First Patient Treated with Personalized CRISPR Gene Editing Therapy at Children’s Hospital of Philadelphia
Landmark study from CHOP and Penn Medicine showcases the power of customized gene editing therapy to treat patient with rare metabolic disease.
Advocacy Opportunity: Big Beautiful Bill - APS Type 1 Foundation, Inc.
Advocacy Opportunity: Big Beautiful Bill - APS Type 1 Foundation, Inc.
Progress on Insurance Prior Authorizations: What the New Industry Pledge Means for Patients - APS Type 1 Foundation, Inc.
Progress on Insurance Prior Authorizations: What the New Industry Pledge Means for Patients - APS Type 1 Foundation, Inc.
We know how critical timely access to care is—especially for those living with rare and chronic diseases like APS Type 1. That’s why we’re encouraged by a new commitment made this week by many major health insurance companies to reduce unnecessary delays in care caused by prior authorization (PA) processes. A New Commitment to Change...
APS Type 1 Foundation | Official Merchandise | Bonfire
APS Type 1 Foundation | Official Merchandise | Bonfire
President John F Kennedy's medical history: coeliac disease and autoimmune polyglandular syndrome type 2 - PubMed
President John F Kennedy's medical history: coeliac disease and autoimmune polyglandular syndrome type 2 - PubMed
RARE Disease Siblings Resource Guide
RARE Disease Siblings Resource Guide
Words of Encouragement from Emily O'Brian as She Completes NIH Clinical Trial - APS Type 1 Foundation, Inc.
Words of Encouragement from Emily O'Brian as She Completes NIH Clinical Trial - APS Type 1 Foundation, Inc.
Symposium - APS Type 1 Foundation, Inc.
Symposium - APS Type 1 Foundation, Inc.
Welcome! You are invited to join a webinar: Navigating Your Path: Living and Working with Chronic Autoimmune Disease . After registering, you will receive a confirmation email about joining the webinar.
Welcome! You are invited to join a webinar: Navigating Your Path: Living and Working with Chronic Autoimmune Disease . After registering, you will receive a confirmation email about joining the webinar.
Microsoft Forms
Microsoft Forms
Global Genes Guide to Medical Gaslighting
Global Genes Guide to Medical Gaslighting
Symposium - APS Type 1 Foundation, Inc.
Symposium - APS Type 1 Foundation, Inc.
9 Summer Camps and Programs for Medically Complex Kids | Gus Gear
9 Summer Camps and Programs for Medically Complex Kids | Gus Gear
Online EventOnline Event
Online EventOnline Event
'I don't know where to start.' Parents and caregivers are burned out. Who's most at risk?
'I don't know where to start.' Parents and caregivers are burned out. Who's most at risk?
PETITION TO CONGRESS!
PETITION TO CONGRESS!
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