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ACD is a nonprofit dedicated to finding cures for CCDS.
ACD Website
ACD Website
ACD Newsletter
ACD Newsletter
News & Media Resources CCDS News The Association for Creatine Deficiencies (ACD) is dedicated to disseminating pertinent updates and developments concerning Cerebral Creatine Deficiency Syndromes (CCDS). Our news section provides...
ACD Shop
ACD Shop
Register for Walk for Strength
Register for Walk for Strength
Tenth Annual Walk for strength $160,781 raised! 1,236 walkers996 donors10 countries Thank you to our walk sponsors Ruth LarsonEckel Eye CareThe Smith FamilyWalking for ElliotMichele & Bill DePatieThe Graham FamilyMountain...
Join Momentum League
Join Momentum League
No Pauses. No Setbacks. The most significant scientific breakthroughs don’t happen overnight, they come from sustained, methodical research, not bursts of effort. That’s why we’ve created Momentum League — a...
Ruck4Rare fundraiser
Ruck4Rare fundraiser
Newborn Screening
Newborn Screening
Newborn Screening Newborn screening (NBS) is a vital public health program that enables the early detection of rare but serious conditions in infants, often before symptoms appear. For babies born...
Donate to our Race for a Cure
Donate to our Race for a Cure
Race for a Cure: Treatments By 2028 Children with Creatine Deficiencies Need Your Help. Race for a Cure, launched in 2025, aims to raise $8 million in 2026 to accelerate...
GAMT Deficiency GAA Circadian Study Opportunity
GAMT Deficiency GAA Circadian Study Opportunity
Broad Impact Research Opportunities ACD is committed to open data-sharing and collaborative research efforts. These initiatives support and are critical to multiple researchers understanding Cerebral Creatine Deficiency Syndromes (CCDS). Coriell...
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