Hello everyone!
We finally had our consult with Doc yesterday. I am still processing my feelings on everything, so this post will probably be all over the place.
I had two pages worth of questions for him!
I asked why he thought the current protocol (Clomid + HCG Trigger + IUI) hasn’t worked? He said each cycle of this only gives you about a 10 percent chance - cumulatively 3-4 times a 20-25 percent chance. So really he just chalked it up to the statistics not being that high for it. (Then why do we even bother with this one!)
I asked about getting tested for autoimmune and alloimmune issues. I know this is a highly-debated subject in reproductive medicine, and my doctor is in the camp that really doesn't believe in it. He only believes in autoimmune issues that cause miscarriage, not infertility. But he did agree to do some blood tests for me and if the results come back positive he will treat them. Here is what I had done yesterday:
Antiphospholipid antibodies
Anticardiolipins
Thyroid (I had this checked over a year ago, but wanted it done again)
Here is what he will not test for or treat.
Natural Killer Cells
DQ Alpha
MTHFR (said he would test for this and treat if I had a miscarriage only)
Anti-Thyroid
The one I really wanted to get tested for is NK cells. This is also the most highly-controversial one, since the treatment for it is expensive and not really proven. We are pretty sure we are going to use a doctor in another state to write the script for us to get this blood work done, and maybe a few of the others.
I am still on the fence about what I will do if anything comes back positive. Since my doctor will not treat NK cells, I would have to travel to another state for IVF, something I really don't want to have to do. Right now we are leaning towards getting these tests done, and if the results are borderline we will probably do IVF here. If it didn't work out, we would then look at traveling and treating these issues. However, if the results were not borderline and clearly above average we would go with the out of state doctor right off the bat.
Sounds simple when you look at it. But the truth of the matter is that my insurance will only pay for one cycle of IVF (because after that I will only have about $1,000 left of my infertility coverage). So we would have to not only come up with the money for the second IVF, but we would also have to come up with airfare and hotel for a few weeks, not to mention the time off work. I know this is what most of you have to deal with. I know how very blessed I am to have insurance coverage at all. But it is still not an ideal back-up plan.
I asked him about my endometriosis growing back. I have had more pain since the surgery then before. He said that was partly due to fertility meds that are upping the level of progesterone and estrogen in my body, which cues the endo pain. (It will probably be even worse with IVF.)
Right now we are looking at doing IVF in January - I about fell off my chair when Doc told us that was the earliest he could get us in. Apparently they book up quick, especially at the end of the year. He doesn't think that is far away at all, but to someone who has waited two years each day seems like a lifetime. We could probably get into the out of state doctor before then, but as I said before, we really want to stay here if possible.
I am still debating about whether to do an IUI with injectibles. If we do this, it would really just be giving us something to do until January. It would also use up more of my fertility coverage. I know several of you have gotten pregnant with this treatment. And I think I would feel better about doing it if I had even been pregnant one time. But I haven't. I haven't even had a chemical pregnancy. I know miscarriages are awful, and I am not wishing I could have one by any means - but this is really influencing my decision to want to move on to IVF. I just don't see how an injectible cycle would be any different for me than the Clomid cycles. I produced at least one egg each cycle that was a good size, and each time my lining was great. If we do this, it will probably be just so I can feel like I tried everything before moving on to IVF.
Needless to say, we are still grappling with the future and God's plan in all of this mess. Each day I learn a new lesson or my eyes are opened in a new way because of infertility - and I am grateful for this growth and understanding, but I am still aching inside for our baby.