Welcome to our May newsletter.
As we commence another busy month, AIIHPC is delighted with the response received so far to the recruitment campaign for new Voices4Care members. The closing date for applications from interested volunteers is 9 May, details below.
I would like to highlight a webinar which AIIHPC is hosting on ‘Shaping Palliative Care Policy using a Human Rights Based Approach – Sharing Evidence’ on Tuesday 17 May via Zoom, details below.
AIIHPC is also hosting an event to support Palliative Care Research Network (PCRN) members and key stakeholders, including Early Career Researcher Forum (ECRF) and Voices4Care members, to influence and inform the development of the PCRN Strategic Plan 2023 – 2027, see below for further information.
AIIHPC is delighted to support a PhD studentship opportunity in death literacy across the island of Ireland in partnership with Queen’s University Belfast, School of Psychology, full details of this opportunity are available below.
I would also like to remind you that abstract submissions and early bird bookings are now open for the 5th All Island Children’s Palliative Care Conference taking place in the Titanic Hotel, Belfast on 17-18 November, details below.
Planning for Palliative Care Week 2022 is well advanced. We strive to make the campaign more impactful each year and welcome your suggestions.
Visit The Palliative Hub – Professional/Research to keep up to date with what is happening within the palliative care research community on the island of Ireland. Highlights of newly available research outputs and resources are available below.
Don’t forget to check out our ‘News from Partners and Funders’ and ‘Upcoming Events & Conferences’ sections below and please check the AIIHPC website for all activities and events here
Karen Charnley
Director
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Voices4Care - Last call for new members
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We are in the final week now of our recruitment campaign for new volunteers to join as members of Voices4Care. Closing date for applications is Monday 9 May.
Joining will give members the chance to be part of something that can make a real difference; and influence palliative care education, research, policy and practice.
The meaningful involvement of people with a life limiting illness/palliative care needs, their carers and communities is a core priority for AIIHPC. Voices4Care was set up in 2013 by AIIHPC to learn from people’s personal experiences of palliative care and to inform palliative care on the island of Ireland.
Voices4Care membership is open to:
• people receiving palliative care
• carers or former carers of adults with palliative care needs, (carers refers to those caring for a relative/loved one, rather than health or social care professionals), and
• citizens with an interest in palliative care
For further information, including links to view and download our campaign leaflet and poster, visit: Voices4Care – AIIHPC
If you are interested in becoming a member of Voices4Care, please find out more by visiting our website here or emailing Paula Pinto, Programme Manager, at ppinto@aiihpc.org or alternatively call +353 (0) 871961430.
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5th All Island Children's Palliative Care Conference
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The 5th All Island Children's Palliative Care Conference (CPCC2022) will be held on the 17-18 November 2022 in the Titanic Hotel, Belfast. Abstract submission is open
Abstract Submission is now open! Abstract submissions are invited for both oral and poster presentations on topics related to this year’s theme of ‘Communication: Compassion and Common Ground’. Full details are available on the conference website and the closing date is Thursday 30 June 2022.
Early Bird Registration- Please note that early bird registration for the conference is now open and further details of the conference including keynote speaker details are available at conference website.
AIIHPC’s Director, Karen Charnley is co-chairing the All Island Children’s Palliative Care Conference Organising Committee with Grace Stewart from Northern Ireland Hospice.
Follow on Twitter @cpcconf2022 for all the latest news on speakers and further updates.
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Shaping Palliative Care Policy using Human Rights Based Approach - Sharing Evidence Webinar
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AIIHPC is hosting a webinar on ‘Shaping Palliative Care Policy using a Human Rights Based Approach – Sharing Evidence’ on Tuesday 17 May, 10:00 – 11:30 via Zoom.
The COVID-19 pandemic brought about unique challenges across all aspects of society including nursing homes. The pandemic not only represents a public health crisis, but also a critical juncture for the respect and protection of human rights in this jurisdiction. In such a difficult time, human rights and guarantees of equality are of utmost importance. Nursing homes have an important contribution to make in this regard. This webinar shares the findings from a recent study on the impact of the COVID-19 pandemic on the delivery of palliative care services in nursing homes from the perspective of rights-holders (residents, their families and staff). The webinar will discuss the key findings and recommendations arising from the study. Attendees will have an opportunity to hear from the research team, Dr John Lombard and Dr Owen Doody from University of Limerick, as well as pose questions.
AIIHPC received funding from the Irish Human Rights and Equality Commission for this project. We gratefully acknowledge the support of our consortium members, particularly, Nursing Homes Ireland and the HSE, as well as the Irish Hospice Foundation, the Age-Related Healthcare Department, Tallaght University Hospital, Medicine for the Elderly St Vincent’s University Hospital, the Decision Support Service, and AIIHPC’s Voices4Care group.
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To register for this event please click on the LINK.
If you have any issues with registering or require assistance, please contact Martina McHugh on mmchugh@aiihpc.org
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Planning for PCRN Strategic Plan 2023-2027
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AIIHPC is hosting an event to support Palliative Care Research Network (PCRN) members and key stakeholders, including Early Career Researcher Forum and Voices4Care members, to influence the development of the PCRN over the coming 5 years. The event which will take place on 16 June will provide an opportunity for participants on the day to inform the development of the PCRN Strategic Plan 2023 – 2027. You can learn more about the PCRN current Strategic Plan 2017 -2022 here. This event is part of a number of activities that will inform the PCRN Strategic Plan update that will be launched at the PCRN Annual Symposium in December 2022.
Further updates will be available in the coming months. If you would like to learn more about the event on 16 June, please contact Clodagh O’Donovan, PCRN Project Manager, email: codonovan@aiihpc.org.
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Funded PhD Opportunity in Palliative Care Research
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AIIHPC is delighted to support a PhD studentship opportunity in death literacy across the island of Ireland in partnership with Queen’s University Belfast (QUB), School of Psychology. This PhD within the Centre for Improving Health-Related Quality of Life (CIHRQoL), School of Psychology, aims to develop an understanding of death literacy across Ireland and make recommendations on how to support communities to become more death literate. The student will be supervised by Dr Lisa Graham-Weisner from QUB and a member of the Palliative Care Research Network.
The PhD is funded for 3 years by ‘Co-operative Awards in Science and Technology (CAST)’ from the Department for Economy, Northern Ireland. The PhD will start in September 2022 and will involve a placement in AIIHPC from June – September 2023.
For more information about this opportunity and how to apply here. If you have any queries, you should direct them to Dr Lisa Graham-Weisner, email: L.Graham-Wisener@qub.ac.uk. Closing date for applications is Friday 20 May 2022.
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What's new on The Palliative Hub Professional - Research Zone
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Visit The Palliative Hub – Professional/Research to keep up to date with what is happening within the palliative care research community on the island of Ireland. Highlights of newly available research outputs and resources listed below:
PCRN and ECRF Publications
(2022) Associations Among Physical Activity, Skeletal Related Events, and Patient Reported Outcomes in Patients with Bone Metastases. Guinan EM, TCD, Devenney K, TCD, Quinn C, TCD, Sheill G, TCD, St James's Hospital (SJH), Mac Eochagáin C, SJH, Kennedy MJ, SJH, McDermott R, Tallaght University Hospital, Balding L, Our Lady's Hospice, SJH.
(2022) Decision-making in palliative care: patient and family caregiver concordance and discordance—systematic review and narrative synthesis. Mulcahy Symmons S, TCD, UCD, Ryan K, St Francis Hospice (SFH), UCD, Aoun SM, La Trobe University, Perron Institute for Neurological and Translational Science, Selman LE, University of Bristol, Davies AN, Our Lady’s Hospice (OLH), TCD, Cornally N, UCC, Lombard J, UL, McQuilllan R, Beaumont Hospital, SFH, Guerin S, UCD, O'Leary N, OLH, St James's Hospital, Connolly M, Rabbitte M, AIIHPC, Mockler D, TCD, Foley G, TCD.
Blog Article - Dementia & Technology; tools that can help maintain our relationships are worth exploring. Viktoria Hoel, Marie Skłodowska-Curie Fellow, University of Bremen, visiting Institute for Public Health and Nursing Research, NUIG.
Podcast - Preparing for a PhD Viva Dr Stacey Power-Walsh, UCD provides some useful insights and tips on preparing for a Viva that is insightful for anyone who is at this stage of their research. This podcast is hosted by Rachel Mc Cauley, TCD, a member of the ECRF Committee.
New Resources
PPI within the Context of Palliative Care Research - On the island of Ireland PPI refers to Personal and Public Involvement or Public and Patient Involvement in research. In March 2022, AIIHPC delivered an online workshop to support its PCRN and ECRF members, and partner organisations to build capacity within PPI. Resources from the workshop are now available: post-workshop document highlighting recommended reading, resources and tips, presentations and slides.
Follow AIIHPC social media channels for updates:
Twitter | YouTube | Facebook | LinkedIn | Instagram
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AIIHPC's Early Career Researcher Forum (ECRF) update
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The Early Career Researcher Forum (ECRF) Steering Committee has been collaborating closely with several ECRF members to support them to share their research messages through blog articles and podcasts. The latest podcast is available here. ECRF Members will have received their latest quarterly ECRF Newsletter, which can be viewed here.
If you would like to learn more about how the ECRF can support you disseminate your research, please contact Dr Deborah Muldrew, ECRF Chair: d.muldrew@ulster.ac.uk.
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Palliative Care Week 2022
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Planning has commenced for the 9th Annual Palliative Care Week, which will take place from 11 - 17 September 2022.
If you would like to get involved in Palliative Care Week 2022, have suggestions for a theme, event or any other comments to inform our planning, please contact Yvonne Mc Cahill, email: ymccahill@aiihpc.org Tel: 087-0947148
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News from AIIHPC Partners and Funders
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LauraLynn Ireland’s Children’s Hospice – The McKenna Scholarship
AIIHPC is delighted to support LauraLynn Ireland’s Children’s Hospice in their promotion of a postgraduate scholarship for 2022 for an MD or PhD in children’s palliative care proudly funded by LauraLynn.
The McKenna Scholarship is named in honour of Jane and Brendan McKenna, founders of LauraLynn following the tragic death of their two daughters Laura and Lynn, and it is aimed at supporting the expansion of the knowledge base in children’s palliative care.
The successful applicant will receive funding for a postgraduate degree (MD or PhD) to complete research in children’s palliative care in a Higher Education Institute in the Republic of Ireland.
It is a condition of the Scholarship that the student is affiliated with a Higher Education Institute in the Republic of Ireland and that an academic supervisor has agreed to supervise the research project in advance of the application. Funding will include an annual tax-free stipend of €18,500, a contribution to fees of €6,000 per annum, and €2,000 per year to fund research-related expenses.
The expectation is that the funding will commence in October 2022 and continue for 2 years for an MD or 3 years for a PhD. However, the commencement of funding may be deferred up until and no later than January 2023. Students in their first year of an MD or PhD project (i.e. registered as a MD/PhD candidate in 2021) are also eligible to apply, with funding applied prospectively.
If you are interested in this opportunity, please register for the webinar hosted by LauraLynn in early May 2022 on the scholarship by sending your contact details to scholarship@lauralynn.ie. Further details are also available at www.lauralynn.ie/mckenna-scholarship
Irish Hospice Foundation
The last two years of the COVID-19 pandemic have brought loss and grief sharply into the spotlight. IHF MSc Loss & Bereavement (Clinical Practice) and MSc Loss & Bereavement programmes have never been more relevant. The clinical practice pathway is for those working therapeutically with bereaved people. The second pathway is a general education route for participants who work in other areas of bereavement care including education, management, policy and support. Full details are available here. Closing date for applications for MSc programmes is 31 May 2022.
IHF will host an online Open Evening to provide a brief overview on the programmes on Wednesday 27 April 2022 at 7pm – You can register now for this event here
Irish Cancer Society
The Irish Cancer Society Cancer Nurse Training Award provides funding for nurses to pursue research training opportunities at a pre-doctoral level, for example, a postgraduate diploma or master’s degree.
Awards of up to €15,000 are available for part-time or full-time postgraduate training of between one and three years duration. Funding will contribute towards university registration fees (EU rates) and a small consumable budget of €1,500 to support the applicant’s research training needs. Closing date 07 June 2022 at 3pm. Further information can be found at this link. For queries contact grants@irishcancer.ie.
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Upcoming Events and Conferences
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MAY 2022
Wandering the wards: Institutional 'rules' and their consequences for people living with dementia Webinar, British Society of Gerontology, 11am, 11 May 2022. This is the first event in the Next Generation Thinking in Research on Ageing series. (Link) For further information, see ARK ageing project
Training to support refugees, provided by the Irish Psycho-Social Oncology Network (IPSON) and supported by the Irish Cancer Society and The National College of Ireland. The following 3 online events are free to attend;
- Psychological First Aid, 6 May from 1-2pm, delivered by Kelly McBride, International Federation of Red Cross and Red Crescent Societies, Denmark. This training is appropriate for any adult, both professionals and non-professionals. The training will be focused on supporting Ukrainian refugees, but the learning can be generalised to any person who has endured trauma. To book your place click HERE
- Trauma Informed Medical Care 101, 20 May at 1-2pm, delivered by Dr. Meghan Marsac, University of Kentucky, USA. This training is most appropriate for professionals working in medical settings or with medical patients. The training will be focused on Ukrainian refugees coping with cancer, but the learning can be generalised to any patient who has endured trauma. To book your place click HERE
- Psychological First Aid, 25 May from 10am – 4pm, delivered by Kelly McBride, International Federation of Red Cross and Red Crescent Societies, Denmark. This full training will be more in depth. Attendees are not required to have attended the previous PFA training session. The training is appropriate for any adult, both professionals and non-professionals. The training will be focused on supporting Ukrainian refugees, but the learning can be generalised to any person who has endured trauma. To book your place click HERE
Caldicott Principles & Information Sharing in End of Life Care, 17 May 2022, Virtual, Online. For Further information and to book your place click here or email kate@hc-uk.org.uk Note: 20% discount with code hcuk20aiihpc
Open Science: Sharing Your Research with the World, MOOC starting on 18 May 2022 is created by TU Delft, for details click on (link)
12th World Research Congress of the European Association for Palliative Care Interactive online sessions 18 – 20 May 2022. Staff of AIIHPC Partner organisations can register at EAPC national association member rates. To view the programme and to book your place click on (Link)
5th Maruzza international congress on paediatric palliative care, Rome, Italy. 25 – 28 May 2022. The congress theme is ‘Listen! Really Listen!’ with the intention of giving a voice to children with serious illness and their families in order to stimulate answers from the professionals involved. In the scientific, clinical, organizational, ethical, legal, training and information sectors linked to the care provision of children with serious illness and their families. More information here
JUNE 2022
Improving End of Life Care for people with Cardiovascular Disease & Heart Failure, 16 June 2022, Virtual, Online. For further information and to book your place click on link or email aman@hc-uk.org.uk Note: 20% discount with code hcuk20aiihpc
Effective Non Medical Prescribing in End of Life Care, 29 June 2022, Virtual, Online. For further information and to book your place click on link or email aman@hc-uk.org.uk Note: 20% discount with code hcuk20aiihpc
JULY
Reducing & Managing Pressure Ulcers at the End of Life, 8 July 2022, in-person or virtually. For further information and to book your place clink on link or email aman@hc-uk.org.uk Note: 20% discount with code hcuk20aiihpc
Cancer Survivorship Summit: Improving Outcomes for People Living with and Beyond Cancer, Wednesday, 13 July, Virtual, Online. For further information and to book your place click on link or email nicki@hc-uk.org.uk Note: 20% discount with code hcuk20aiihp
SEPTEMBER 2022
Together for Short Lives national conference ‘Unlocking Potential: The key to quality children's palliative care’, 7-8 September 2022, Manchester, UK Link for booking
7th Public Health Palliative Care International conference (PHPCI), Bruges (BE), 20 - 23 September 2022. The congress theme is 'Democratizing dying, death and care: participation, action, evaluation and understanding'. The conference brings together leading innovators, researchers, practitioners, policy makers, representatives of civic society in the public health palliative care approach. Visit the conference website here.
European Grief Conference ‘Bereavement and Grief in Europe – Emerging Perspectives & Collaborations’ 21 – 23 September 2022, Copenhagen, Denmark (Link) . The call for abstracts is open until the 1 April 2022. The conference is hosted by the Danish National Center for Grief in partnership with the Bereavement Network Europe (BNE), Aarhus University, and the Irish Hospice Foundation.
OCTOBER 2022
23rd International Congress on Palliative Care, Montreal, Canada. 18-21 October 2022 here
NOVEMBER 2022
5th All Island Children's Palliative Care Conference (CPCC2022), Titanic Hotel, Belfast, 17-18 November 2022 in the Titanic Hotel, Belfast. The conference’s overarching theme is “Communication: compassion and common ground”. The call for Abstracts is open until the 30 June 2022. Full details at conference website
Please consult the AIIHPC website for our events listing which details conferences and events on the island of Ireland and internationally www.aiihpc.org
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