Patients growing up with a chronic illness have to take charge of their own care at some point. Here are some tips from #SickleCell patients for young adults about to take over their own care. #WorldSickleCellDay2019
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CSL Behring
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CSL Behring
@CSLBehring
We are driven by our promise to help patients lead full lives. See our community guidelines: bit.ly/3QZbZeZ
- We get by with a little help from our #friends. If you have a friend with a #raredisease, here are ways to be truly helpful. @RareDiseases
00:00 - We join @SCCConsortium @ConquerSCD @SCDAAorg @ASCAA_ @SickleCellUK and others around the world next week for #WorldSickleCellDay2019 Help us raise awareness of this disease by watching and sharing this short video about the impact of #SickleCell cslbehring.com/vita/2018/a-fo…
- Hemophilia is complicated, but here's a simple explanation in a short video: Watch it: youtu.be/BoXBuJSURTI #EAHAD18
- Students paint with #CSLBehring employees to bring a biotech-themed @muralarts image to life cslbehring.com/vita/2019/mura…
00:00 - A team of NFL hopefuls raised awareness and money for #rarediseases at this year's NFL combine - a campaign that got its start @PennStateFball with a single athlete: Jesse James @JJames18_ who now plays for the @Steelers! cslbehring.com/vita/20180307-… @UpliftingAth
- Today at #ACC23, Drs. @EliotBrinton and Nihar Desai will discuss the 90-day high-risk window post-AMI and why this time period is critical for patients. Visit Industry-Expert Theater #1 and find more details here: bit.ly/41MMV1a
- Plasma donations are urgently needed. Find out how it works and why #raredisease patients appreciate the generosity of plasma donors. bit.ly/2xiwkJ8 @IDFCommunity @ipopi_info #donateplasma
00:00 - Come see us at #ESID2019, 18-21, September, Brussels, Belgium. @CSLBehring is supporting five scientific posters and the Satellite Symposium, “Infections and secondary immunodeficiency in hematologic cancer: identifying patients at risk.” #DrivenbyOurPromise
- Are today's high school students ready to harness #artificialintelligence? To assist, CSL Behring sponsored a boot camp program initiated by @mcuban. bit.ly/3H6uvgK
- #DYK that #SickleCell disease can cause vulnerability to infections, organ problems and even stroke? Learn more for #WorldSickleCellDay2019 by watching this quick video spr.ly/6012Eo7O2
- In honor of World #Hemophilia Day, we created a new video for families. It answers the question: When is my child ready to learn to self-infuse? #SharingKnowledgeMakesUsStronger #WHD2018 @wfhemophilia @NHF_Hemophilia
00:00 - Earlier today we announced an industry alliance with other world-leading plasma companies to accelerate development of a potential hyperimmune immunoglobulin therapy in the fight against the #COVID19 pandemic. Details bit.ly/2Xe9HQF
- #BREAKING: US FDA approves the first and only subQ preventive therapy for patients w/ hereditary angioedema #HAE. ow.ly/Y25k30cQApp
