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EB Research Partnership
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EB Research Partnership
@EBResearch
EB Research Partnership funds research aimed at treating and curing Epidermolysis Bullosa (EB). šŸ¦‹ #HealEB šŸ”¬ Find a cure
New York, NY
ebresearch.org
Joined June 2013
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3,363
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    EB Research Partnership
    @EBResearch
    Jan 19
    A global story of urgency, love, and science, now ready for the world. Matter of Time is available to Netflix members everywhere on February 9.
    Matter of Time documentary on Netflix, premiering February 9. A powerful rare disease film following families living with Epidermolysis Bullosa, researchers racing toward treatments, and Eddie Vedder’s benefit concert supporting EB research.
    3.2K
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    EB Research Partnership
    @EBResearch
    May 15, 2021
    Hey @elonmusk! Thanks for inspiring @elongateog to use the power of #cryptocurrency for good. As this week's charity spotlight, #ELONGATE has shared our mission to #healEB with thousands of generous #crypto donors. We hope to see you Sunday 12pm ET for the Charity Party!
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    Donate Crypto for Life-Saving EB Research
    From ebresearch.org
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    EB Research Partnership
    @EBResearch
    May 16, 2021
    THANK YOU @elongateog for a generous $150,000 gift to launch our #CryptoForCures Fund! We aim to raise $1M in #cryptocurrency by the end of 2021 to fund groundbreaking #tech to accelerate a cure for EB! Join the fund by making a #crypto donation at ebresearch.org/cryptocurrency
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    EB Research Partnership
    @EBResearch
    May 14, 2021
    According to @chrishemsworth, John Hudson is a true hero. He lives with the equivalent of 3rd degree burns all over his body due to Epidermolysis Bullosa (EB). Learn about our mission to #healEB at @elongateog's Charity Party on Sunday at 12pm ET! Follow #ELONGATE for details šŸ’«
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    EB Research Partnership
    @EBResearch
    May 13, 2021
    This week, we're @elongateog's Charity Spotlight! We're co-hosting their Charity Party on Sunday 12PM ET. Tune in to learn more about our progress to cures and how #cryptocurrency donations can fuel research. Follow @elongateog for updates! Donate #crypto: ebresearch.org/cryptocurrency
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    EB Research Partnership
    @EBResearch
    Nov 17, 2021
    The announcement you've all been waiting for ✨ Spider-Man & MJ have teamed up to #healEB. @Zendaya will join her #SpiderMan costar @TomHolland1996 at #VentureIntoCures on Nov 18 at 8pm EST to raise awareness & funds to cure EB. Register to watch at l8r.it/m1nb šŸ¦‹šŸ’–
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    EB Research Partnership
    @EBResearch
    May 14, 2021
    We love #ELONGATE's generous community of supporters. Together, we WILL #healEB šŸ’–šŸ¦‹
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    EB Research Partnership
    @EBResearch
    Nov 19, 2021
    .@oliviarodrigo has generously donated this signed #Gibson guitar for auction to benefit #VentureIntoCures! Bid now at bidpal.net/ventureintocur… through Dec 2 at 11:59 PM ET. All proceeds go directly to critical research to #healEB. Bid high and bid often!šŸ¦‹šŸ’–
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    EB Research Partnership
    @EBResearch
    Oct 29, 2021
    Announcing this year's host of #VentureIntoCures, @TomHolland1996! We are beyond excited to have #TomHolland and @BrothersTrustUK join us to host this year's digital stream on Nov 18 alongside courageous EB families and celebrity friends. RSVP at ventureintocures.org šŸ¦‹āœØ
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    EB Research Partnership
    @EBResearch
    May 13, 2021
    Our friend @thatgeekAaron spoke to @AdamSandler about how he doesn't let EB stop him. This week, we're co-hosting @elongateog's Charity Party on Sunday at 12PM ET. Join us to learn more about our mission to #healEB and how #crypto can fuel life-saving research. #ELONGATE4CHARITY
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    EB Research Partnership
    @EBResearch
    May 16, 2021
    We're co-hosting #ELONGATE's Charity Party TODAY at 12pm ET! Follow @elongateog for details on how to join us. We'll discuss our innovative model to #healEB and find cures for all #raredisease, as explained here by #BradleyCooper, and how #crypto can power life-saving research.
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    EB Research Partnership
    @EBResearch
    May 10, 2021
    Thank you @elongateog for highlighting our mission to #healEB! Join us at the Charity Party this Sunday at 12PM ET šŸ¦‹āœØ
    This Post is from an account that no longer exists. Learn more
  • user avatar
    EB Research Partnership
    @EBResearch
    Nov 19, 2021
    HUGE thank you to @TomHolland1996 for hosting #VentureintoCures 2021!!! We are eternally grateful. See you next year!! ā¤ļøšŸ¦‹ā¤ļøšŸ¦‹ VentureintoCures.org
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    EB Research Partnership
    @EBResearch
    May 17, 2021
    Thank you @elongateog for donating $150K as the Founding Member of our #CryptoForCures Fund! We want to raise $1M in #cryptocurrency this year for innovative research to #healEB by 2030. Donate #Crypto: ebresearch.org/cryptocurrency Learn more: prn.to/2RVL7Dz #ELONGATE šŸ’–šŸ¦‹

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