Edited by: Jennifer L. Hsiao, MD; Vivian Y. Shi, MD

Hidradenitis Suppurativa

Patient Guide

Introduction

A comprehensive patient-oriented high-quality educational resource that allows people with HS and caregivers to access accurate and relevant information about HS. Content includes pathophysiology, clinical presentation, medical and procedural treatments, strategies to optimize HS care, and experiences from people with HS. This book is written in plain language with the goal of making this resource easily readable and understandable. Authors of this book include a team of world renowned HS experts as well as HS patient advocates.

 

From the Editors:

This handbook was created by experts in the field of hidradenitis suppurativa (HS), including scientists, researchers, HS healthcare providers, and people living with HS and their caregivers. Broadly, the goals of this handbook are to share the current knowledge regarding HS, helpful tips regarding HS care, as well as persistent knowledge gaps. This is in order to offer a comprehensive guide for people living with HS, caregivers taking care of a loved one with HS, or anyone wanting to learn more about the condition. The chapters in this book cover relevant topics in HS backed by the most current research. This handbook can serve as a resource for people who are first diagnosed with HS and would like a comprehensive overview of the disease, or for people who have lived with HS for a long time and would like to refer to this book as a reference.

We hope to inspire the global HS community, and all the current stakeholders, to recognize and find solutions to improve outcomes for people living with HS.

The contents of this website are not meant to be a substitute for medical advice. Please consult with your qualified healthcare professional for any health and medically related concerns.


Table of Contents Updated March 23rd, 2023

Section 1: Knowledge gains

Chapter 1: Hidradenitis Suppurativa Overview

Devea R. De, MD; Terri Shih, MD; Vivian Y. Shi, MD
Chapter 2: Clues You May Have HS

Muskaan Sachdeva, MD; Afsaneh Alavi, MD
Chapter 3: HS Genetics and Inflammation

Emily K. Kozera, BMedSc, MD, MPH; Akshay Flora, MD, MMed; John W. Frew, MBBS, MMed, MS, PhD, FACD
Chapter 4: Contributors to HS Inflammation

Emily K. Kozera, BMedSc, MD, MPH; Akshay Flora, MD, MMed; John W. Frew, MBBS, MMed, MS, PhD, FACD
Chapter 5: HS and Quality of Life

Natalie M. Fragoso, MD; Jennifer L. Hsiao, MD
Chapter 6: HS Associated Diseases

India S. Robinson-Pirotte, MD, MSCR; Chelsea Shope, MD, MSCR; Colleen H. Cotton, MD
Chapter 7: HS Disease Complications

Jason Gomez, MD, MBA; Leandra A. Barnes, MD; Maria Aleshin, MD

Section 2: Special circumstances

Chapter 8: Women with HS: Periods, Pregnancy, and Menopause

Terri Shih, MD; Devea R. De, MD; Jennifer L. Hsiao, MD
Chapter 9: Children with HS

Andrea L. Zaenglein, MD; Laurie Krnjaic, MSN, CRNP; Irene Lara‑Corrales, MD, MSc
Chapter 10: Work, School, and Budget Considerations

Adam Garibay, MD; Jan Smogorzewski, MD

Section 3: Optimizing your HS care

Chapter 11: Making the Most of Your HS Doctor Visit

Ramie Fathy, MD; Robert G. Micheletti, MD
Chapter 12: HS Treatment Goals

Diana Seaok Kim, BA; Martina L. Porter, MD
Chapter 13: Multidisciplinary Care

Tiffany T. Mayo, MD; Yonesha Cole, MD; Ginette A. Okoye, MD

Section 4: Non-medication treatments

Chapter 14: Lifestyle Changes and Complementary and Alternative Medicines

Devea R. De, MD; Terri Shih, MD; Vivian Y. Shi, MD
Chapter 15: Skin and Wound Care

Divya Chopra, MD; Neil Seth, BS; Hadar Lev‑Tov, MD, MAS

Section 5: Medical treatments

Chapter 16: Topical Medications and Washes

Steven Daveluy, MD, FAAD
Chapter 17: Antibiotics

Franklin R. Blum, MD; Rishab Revankar, BS; Christopher J. Sayed, MD
Chapter 18: Non-Antibiotic Oral Medications

Surya Veerabagu, MD; Tarannum Jaleel, MD, MHSc
Chapter 19: Biologics and Small Molecule Immunomodulators

Terri Shih, MD; Sarah E. Park, MD; Raveena Ghanshani, BS; Devea R. De, MD; Jennifer L. Hsiao, MD
Chapter 20: Pain Control

Monica Nicole Williams, MD, MPH, MSc; Kimberly Curseen, MD; Christine Yannuzzi, BS; Lauren A.V. Orenstein, MD, MSc

Section 6: Procedures

Chapter 21: The Right Surgery for the Right Time

Forrest Roberson, MD; Katherine Jicha, MD; Christopher J. Sayed, MD
Chapter 22: Surgical Excisions

Stephanie R. Goldberg, MD, FACS
Chapter 23: Procedures in the Office

Barry I. Resnik, MD; Sydney R. Resnik, MD
Chapter 24: Laser Therapy

Jalal Maghfour, MD; Iltefat H. Hamzavi, MD

Section 7: Resources

Chapter 25: The HS Toolbox

Martin M. Okun, MD, PhD
Chapter 26: Tracking Your HS

Devea R. De, MD; Terri Shih, MD; Vivian Y. Shi, MD
Chapter 27: Experiences from People Living with HS

Athena Gierbolini; Christine Yannuzzi, BS; Denise Fixsen; Donna Atherton, EdD, MSW, CLC
Chapter 28: Experiences from HS Caregivers

Brindley A. Brooks, Lucas Swihart

Section 8: On the Horizon

Chapter 29: Pipeline Therapeutics for Hidradenitis Suppurativa

Claire Elizabeth Herzog, BS; Rob Leland Shaver, MD; Michelle Anne Lowes, MBBS, PhD; Stephanie R. Goldberg, MD, FACS
Chapter 30: The Future of HS

Lindsey Greenlund, BS; Claire Elizabeth Herzog, BS; Michelle Anne Lowes, MBBS, PhD; Noah Goldfarb, MD