Monday, December 28, 2009

Christmas 2009



Bridger’s dancing in the video above shows his excitement to be home for Christmas. We had a wonderful day. While opening his presents he kept saying in a voice of excitement and a little wonder “Thank you Santa”. He kept repeating it over and over. He was very happy to get a street sweeper, walkie talkies and a toy airplane. He got most excited over getting the movie G Force. I guess we have been watching too many movies in Houston. Blake got a tool set and I got a camera which we exchanged the next day because it didn’t focus. When we went to pick a new one out I said “Maybe we shouldn’t get one are old one still works even though you have to turn it off and on in between every shot it still “works”. We ended up getting and I am glad we did. When we got home Bridger made a sculpture out of his dad’s new tool set and needed me to take a picture. I had to charge the new camera and when I went to use the old one it had completely died. Blake couldn’t have had better timing. Plus now I don’t fell guilty for getting a camera. The sculpture pic was taken it just had to wait for the new camera. Blake’s parents were able to stay for Christmas. It was so nice to have their help and company we already miss them. We have had a wonderful time at home and count it as one of our many blessing this year.

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Sunday, December 20, 2009

Day 110, A Glorious Day

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It has been truly a glorious day! The excitement started to build last Friday when we got to come HOME! Last Friday we drove to Bridger’s Dr appointment with the car packed full to the brim in hopes they would tell us we could go home. Our positive thinking pulled through because after our 2 hour appointment they deemed him healthy enough to go home for Christmas. We have to go back on the 30th to draw more labs and make sure nothing has changed. But hope to get to come right back home. On the drive home Bridger was excited extremely wound up. His mind was going in one direction or another the entire way home. It is always nice to be home for the holidays. We spent all day Saturday unpacking cleaning and running some errands. I loved every second of it. Right now I am completely content and my heart is filled with joy. I am sitting by my Christmas tree listening to the forgotten carols by Michael McLane. The stockings are hanging above the fireplace and it is quiet and calm. Blake, Doyleen and I went to church this morning while Grandpa stayed home with Bridger. We want to give him a couple more weeks before we take him to church, plus they haven’t taken him off of isolation restrictions. Church was excellent. They had a very nice program with several Christmas songs and musical numbers. It was so nice to go to church. I have missed the spirit and strength that comes from attending church. A group of young men in our ward gave Bridger gifts for the 12 days of Christmas. He was so excited and kept saying “this was so nice of them”. Some of the presents had letters to him and they were very touching. I am keeping all of the notes that everyone has sent and plan to build a massive scrap book for him. It is great to be home!

Wednesday, December 16, 2009

Day 106, A short stay

Bridger continued to have back and leg pain so we ended up back in the hospital on Monday for two nights. Monday morning before being admitted he was talking to his dad on the phone. In a grown up voice and trying not to cry he said, “Dad, I am in terrible pain! I hope this pain never happens to you. I take my medicine and it still hurts. I am in terrible pain”. Needles to say it was very sad. They did another MRI and found some spinal fluid had leaked out. Bridger also saw the opthomologist again. The swelling is still about the same they toyed around with the idea of putting him on an new med but didn’t. Tuesday Bridger’s pain was much less and today it is even that much better. He still gets pain if he turns a certain way to quick. He is supposed to take it easy for the next week. (No wrestling) We go for another visit on Friday and hope to drive home afterwards. For right now it sounds like they want us to come back after Christmas.

The good news is that Bridger is feeling much better he even made a song up about his back not hurting. He really hated being back in the hospital but had a good surprise visit from none other than SANTA himself! Bridger saw him out in the hall way and when Grandma went out to tell them they could come into our room Bridger got a little nervous and said “I don’t want to talk to him I just want to look at him” an look he did. I think the only thing he said was cheese for the camera. It was not my camera. I had ran home earlier and that little voice said to take the camera but I thought “I don’t want any more pic’s of the hospital, I don’t need it”. And so I left it at the trailer. It never pays ignore a prompting not even the little ones. But they took a pic and printed it out right away for us. After seeing Santa Bridger was finally inclined to write him a note asking him to “come down our chimney and bring me set of walkie-talkies and a street sweeper that picks up little discs”. I wrote the letter he drew a very nice picture at the bottom and signed his name. He did a great job.Image
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We also found a Santa joke in the hospital. Here it is, Why dose Santa have a garden? Because he likes to HO,HO,HO. It was the best one in the book.

Sunday, December 13, 2009

Day 103

I will admit I have been a in a lull this week with not getting to go home, Bridger getting sick and all the new developments. Yesterday I ran part of my frustration off. Today I got rid of the rest by watching some of the conference talks form last General Conference. It also helps that Bridger is feeling much better. It took until after 3pm yesterday before he was standing and starting to move more. By night fall he was as rambunctious as ever and full of energy from sitting all day.

Today our RV center had a little potluck get together around 2pm so I thought we would pop in and say hi. Bridger didn’t want to go but I knew some of our friends we have made here would want to see how he was doing so I told him he had to go. When he tried to stand up from playing on the floor he began to cry his back was hurting. I thought he was bluffing and just trying to get out of going anywhere so I was a mean mom and made him come. (For the record, had I know he was truly in a lot of pain I would not have made him go) I carried him over to the club house while he continued to complain. But instead of getting better it got worse when we got back to our trailer. He screamed hysterically, and he had alligator tears streaming down his face. After and hour and a half of this I called the BMT on call dr. and they told us to go to the ER because this was not normal. On the way there he seemed to calm down so I stopped the car and tried to get him to stand up (I knew they wouldn’t do anything but tell us we were over paranoid parents if he was standing and not in pain anymore) but he began to scream again and couldn’t stand. So I proceeded to the ER. He screamed for all the nurses but as soon as we go to the room and waited for the Dr. his muscle relaxed enough and he appeared to be perfectly fine. It was a record breaking ER visit of 50 minutes. I think we could be in the book of world records with that one. Anyway, all the Dr. said was basically bear threw the pain with Tylenol and if he has the pain for over 8 hours then we could be concerned. So we made it “home” and picked up some of the food from the potluck. Before we got out of the care Bridger said my feet still hurt. He turned as white as a ghost, his lips didn’t even have color. When I got him out of the car he tried to stand but fell to the ground and was in agony. I didn’t know what to do. There was nothing I could do but lay him on his side, keep Tylenol in him and pray. I did call the Elders Quorum president to give Bridger a blessing. Blake isn’t here this weekend because he is home sick with a cold. Before they came to give Bridger a blessing I asked him “Do you know what priesthood blessing is?” He didn’t say anything so I explained that some elders that live worthily and hold the priesthood would come and give him a blessing. I said he would have to have a faith so Heavenly Father could bless him. Bridger’s prompt response was “I already have Faith mom”. Some times I think he has more faith than me. Oh the lessons our children teach us. The blessing was given and we helped Bridger back in to bed. It has been another long day and even a longer post. And I didn’t even get to put my original thoughts down. In fact I have forgotten exactly what they were. It was something to due with burdens. And how I finally realized that every prophet in the scriptures has had trials placed upon them in some way. It is just a part of living, learning and growing, whether we like it or not. Hopefully I can be more like the sons of Mosiah and those who were with them. They knew they were going to have to be patient and have sufferings and afflictions while teaching the Laminates yet they took courage and went and taught them the word of god. (Alma Ch. 17) I think I will print out the words “TAKE COURAGE” in a bold font and post them up. Just reading them makes me feel like I can do anything.

Saturday, December 12, 2009

Day 102

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Day 102

Bridger’s spinal tap went well with no compilations. He never wants to eat first thing in the morning but yesterday he woke up and said I’m hungry. He had to fast for the procedure and didn’t get to eat until 3 pm. It was a long day. The pressure in spinal fluid was at a 27. It is in the normal range but had he been at a 28 he would have been in the high range. On Wednesday we reached our 100 Day. It was a lot different than I had anticipated our 100 day would be. Bridger was up all night in pain. We ended up in the Dr office all day. He ended up having ear infection’s so he is on a new antibiotic. When I asked him if he knew what day it was he said “what day”? When I told him it is your 100th day he said “I get to go home”! I hope soon ,is all I could say. That night we made pretzels in the shape of 100’s.

Today Bridger is very sore. At one point he wouldn’t stand up or move. His back hurts to bad. The pain even makes his leges hurt. I called the Dr. and asked if it was normal they said to give him Tylenol and see how he feels. It definitely helped he isn’t crying anymore but he is still very uncomfortable. We may end up back at the Dr’s later who knows.

Monday, December 7, 2009

Day 97

Bridger had his Dr. appointment this morning. The MRI he had last Friday showed nothing new. He does not have a tumor Yay! They think he has a Pseudotumor cerebri. It means false tumor. One web site explanied; “Pseudotumor cerebri literally means "false brain tumor." It is likely due to high pressure within the skull caused by the buildup or poor absorption of cerebrospinal fluid (CSF)”. It could be from one of is medicines. They took him off of that particular med and he is having a spinal tap done on Friday. Apparently when I asked the Dr if this could effect his vision she thought I was talking about his dry eye problem not the swollen disc. If it is not treated it can cause problems with his vision with worst case scenario causing him to go blind. The best case scenario is that it could go away on its own. Treatments range from med’s to shunts, which would drain the extra CSF fluid. Right now Bridger is not having any pain. Over the weekend he kept pulling on his right ear saying it was fussy. To him it unplugged when he pulled on it. He also had some tingle feelings in his head. When that happens he taps the back of his head with his hand. At least he is not in any pain. All we can do is hope for the best case scenario. Poor little guy, he is gong to have to count to ten once again for the anesthesiologist. Maybe he will make it past two this time?

Sunday, December 6, 2009

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Here are some more snow pics. It was fun to be able to build a snowman. unfortunately by the end of the day all that was let was a Small ball surrounded by very green grass. Bridger built two other snow men just to knock them over with his sword. He then went around to all the picnic tables and chopped off all the snow/ice. He loved it.
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He has been watching the movies Spy Kids and Spy kids 2 and LOVES them. Why is it kids can watch the same thing over and over? Anyway one day after watching it he asked if he could have a fake mustache. Ironically I had noticed at or Kroger's quarter machines (the ones you hope your kids don't see) they happened to have a machine filled with fake mustaches, and eyebrows. Bridger was thrilled with his and puts it on just to rip it off and say "It's really me I am just wearing a disguise". Too much Fun.

Friday, December 4, 2009

Day 94 and SNOW!

On Thursday we had Bridger’s eye exam. She suggested we try some new drops for his eyes that we can pick up over the counter. At the end of the appointment she saw some swelling of his optic nerve in each eye. This will not affect his vision but is usually caused by pressure on the brain. They didn’t go in to any specific reasons of why or what could be causing the pressure but I am sure you can make an assumption like I did. At any rate they made us stay for a catscan that confirmed the swelling of the optic nerve but only in his right eye. They couldn’t see anything that would be causing pressure. I asked the Dr. if this is something that he could have just always had? He said it was a possibility but they had to be absolutely sure nothing else was causing it. So they got us in this morning at 6:00 am for an MRI. The MRI will give them a closer look. They said if they saw something urgent they would call us today. So far we haven’t heard from them so no news is good news. We are a little concerned because obviously pressure on the brain is not normal. So if you could all send an extra prayer this way we would appreciate it. Bridge was in good spirits about going to the hospital four times this week but he really didn’t want to go under anesthesia for the MRI so I told him to just try and stay awake, try and count to fifty. He maid it to a whoppin 2 and he was out like a light. It was incredibly fast. When he woke up he found out it was SNOWING!!!! Yes it has been snowing all day here. We were told the last time it snowed here was in 2004. I told everyone that it was Bridger’s fault he because he prayed for snow last week. Today he said “Jesus answered my prayer, he loves me the very best”. When we got back to the trailer we had a quick snowball fight. Bridger was so happy and a good aim. Then we found out we had no heat. Our electricity was out and our back up battery was not working so we spent three hours in the office of the RV Center to stay warm. Half of the building had heat so we played cards. Bridger is the champion of the Matching game and Go Fish. Below is another post about Bridger’s past and how he has made it this far.

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Ryan's Lyon

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After Bridger's Hospital stay in 2008 he recived a Lion from, Ryan's Lion Fondation. Below is Bridger's story to read about Ryan and his story click on the link above. Thank you Ryan for helping somany.

On October 1st 2008 our Four-year-old son Bridger started to run a fever. This was not a big surprise because it was fall. Every year of his life up to this point he had been hospitalized for a minimum of seven days due to lung related infections. This always seemed to happen in the fall and winter months. His doctors never diagnosed any chronic condition.

On October 3rd a chest x-ray showed that his lungs were in good condition, which was a relief. I was paranoid that he had another infection in his lungs that would put us back in the hospital again. So, this seemed to be good news and I now had hope that this was just some small sickness that would quickly pass. But things didn’t ever improve. Bridger continued to get very high fevers for the next 10 days. When his fevers would spike he would get the shakes and his fingers, toes and around his mouth would turn blue. When I took him back to the Dr. and they saw his appearance they became immediately concerned and sent us straight to the emergency room. For the next five days they ran a battery of tests and performed a brochoscopy. During this time it was first mentioned that he might have Chronic Granulomatous Disease (CGD).

In the hospital Bridger continued to go down hill. His vitals were erratic, his stomach began hurting and he became very dehydrated. As a result he had to receive IV fluids. This was very problematic because Bridger’s veins kept collapsing. The doctors decided to tap the IV directly into his artery. This is a painful procedure. While the IV was being placed, Bridger was whispering, “be brave, be brave” and he was. On our fifth day in the hospital his heart rate skyrocketed and his face started to swell. He was constantly complaining about stomach pain and was very thirsty. From an ultrasound, we found out that his gut had stopped working. Through that night his heart rate remained high and his blood pressure began dropping. We were admitted into the Pediatric Intensive Care Unit (PICU).

In the meantime, blood tests that had been sent out to a specialty lab confirmed a bacterial infection in his blood that had originated in his intestines. The particular infection he had was typical in patients with CGD. We where relived to know that we had likely found the source of the problem, but were very worried due do his present condition. They put him on three potent antibiotics right away, but he was still getting worse. Bridger’s body was going into septic shock. His liver and kidneys began shutting down and he got water around his heart. His body was shutting down. The entire day they worked at keeping him alive. We weren’t aloud to be with him until they were finally able to stabilize him. When we finally got to see him, he was fully sedated and we were told not to try to communicate much with him because they didn’t want him to be stimulated. He was hooked up to a ventilator and had multi-port IV’s in both legs and in his neck. He had as many as 10 meds going into him at the same time. He was a very sick little boy and there was no guarantee he would make it. Every hour in the PICU brought something new, both good and bad. His little body was pumped full of fluid and was nearly twice his normal size. His feet began turning a deep purple and black because his small blood vesicles had collapsed and cut off much of his circulation. We were warned that he would likely lose some of his toes and maybe even his feet. But this was a secondary concern at this point. The doctors found that the infection had settled in his gallbladder, which had become extremely inflamed. They decided to take Bridger to surgery and remove his gallbladder, but were concerned about his weakened condition. It was a risky procedure, but we couldn’t take the chance of having his gallbladder rupture because the subsequent spread of infection would likely have claimed his life. After many kisses and a whole lot of hope and prayers, they rushed him into surgery. A couple hours later, he had made it through surgery and a very enlarged, infected gallbladder had been removed. Following the surgery his condition stabilized somewhat.

Over the next few days the doctors worked on opening his blood vesicles in his feet. With a lot of prayers and excellent care his feet began to improve. The skin in the affected areas eventually sloughed off, but his feet and toes were saved. Many of the nurses thought this was a miracle. From this point the road to recovery was long. Bridger remained sedated and on the ventilator for about two and a half weeks during which time he turn five years old. As he continued to get better we would talked to him and tell him that we loved him and if he wanted to tell us that he love us he could squeeze our hand. He always gave a good tight squeeze. We spent many hours by his side reading to him and holding his hand. The rest of the time was spent praying. Eventually, the sedatives were reduced and he became more responsive. The first time we sat him up he couldn’t even hold his head up by himself. He had lost much of his strength. On Halloween we got to move out of the PICU to the oncology unit, where he slowly gained back his strength. Once strong enough, he had to go back into surgery to remove part of his lung that was infected and permanently damaged. During this time he was officially diagnosed with CGD. CGD is an immunodeficiency where white blood cells don’t produce hydrogen peroxide to kill off antigens. His body couldn’t fight certain bacterial infections, molds, or funguses. This is a very rare disorder, with only about 20 new cases each year in the United States. Luckily there is a cure for it; a bone marrow transplant.

He was discharged from the hospital the day before Thanksgiving. Bridger received his Lyon from Ryan and Ryan’s Aunt Marilee shortly after we got home. It helped us several times to have courage during the many follow up doctors visits, which required blood draws and other tests that were preformed as prescreens for transplantation. Eight months later with a willing donor and thousands of people praying and giving support to him, Bridger underwent ten days of intense chemotherapy and received his new bone marrow. He was hospitalized during the transplant for approximately one month and had a smile almost the entire time. His Lyon was with him during those long days and he hugged it tight whenever he needed to be extra brave. Bridger is now 80 plus days after transplant and getting stronger every day. We are out of the hospital but have visits a couple times a week. Before the transplant he told a nurse, “I am the bravest boy in the whole world.” I know his inspiring attitude and courage have been shaped by three things; first, his Lyon with it’s accompanying stories of others who have had to endure. Second, the love and support he has received from so many. And third, his faith in a loving Heavenly Father that will do what is best for him.

There have been a couple occasions since Bridger received his Lyon, where he has seen others who are suffering. The first thing he has suggested is to give them a Lyon. I know it has been a great comfort to him. May it bring you and your family the same hope, courage and Love it has brought us. From the heart of a little boy who understands, please accept this gift.

Wednesday, December 2, 2009

Thanksgiving 2009

Thanksgiving
We got to go home for Thanksgiving!!! It was a wonderful four days. We drove home on Tuesday. Bridger wanted to leave after the Dr. appointment on Monday but we had to give them some time to clean the house and we needed to pack. The drive home was very pleasant. I felt free, my mind had lots of time to think and ponder and it was wonderful to have new scenery. I mostly thought about how blessed we have been and how much we have to be thankful for this year. Ever year we make a “thankful turkey”. The tail feathers are made of our hand tracings with curled fingers and we write what we are thankful for on the palm. We add to it all month long and have a full turkey for thanksgiving. This year one of the things Bridger said he was thankful for was his dad coming to play every weekend. Image


Once we got close to home Bridger was so excited to see our blue water tower. It is very close to where we turn to go to hour house. It makes a great land mark and helps eliminate some of the “When are we going to get there” questions. At home Bridger squealed and giggled with excitement to see his Grandpa, and his dog Chester. The house was spotless, thanks to Doyleen.

Every day felt like Christmas morning. The excitement just never wore off. Bridger ran and ran anround the house chasing the dogs, playing with toys, and trying to find the computer room. (He only forgot the first day we were home) He ran so much he lost a pound and a half. Over all he was very content, happy and a lot less irritable, as was I. He was exhausted by the second afternoon but I didn’t want to make him take a nap. I didn’t want him to miss a minute of being home. I don’t know where the time went. It passed way to quick.

On Thanksgiving morning I ran a 5K. It was a YMCA Turkey Trot. I had to do it just so I could have a shirt that says "Turkey Trot". It was so Fun. I ran with a bunch of friends. It was my first race out side of high school track. The big difference is I actually enjoy running now. Blake couldn’t come like he had planed because at 4:30 AM Bridger woke up all energized because his dad was going be home all day to play with him. I tried to get him back to sleep, but he was too keyed up. When I said “Dad is coming with me to go run”, my heart broke watching his face that was clearly a refection of his breaking heart. So dad stayed home for the day to play. When I got back we all played some football in the yard. Later we had a fantastic Turkey dinner with stuffing to die for. It is Doyleens secret recipe that she will share if you want it. It was a perfect day.

On Friday I went shopping. I left a little late for Black Friday, but still got all the deals I wanted. Saturday went by way too fast, but I got to decorate for Christmas and it was so much fun. I have some awesome friends that took me out to Yogurt Land to celebrate my Birthday. I turned 27 on Sunday and I Bawled, I mean bawled all day. It started of with Blake and I missing church. I got it in my head that it started at 9:30, but it was actually at 9:00. We didn’t have an alarm and over slept for the first time all week. It was not a very good way to start the day. The rest of the day I was so upset about having to leave, caught up in wanting everything to get back to normal (which brought me to the thought of, do we even know what normal is anymore. Since June 2007 someone in our little family of three has had a major health problem and have been hospitalizes or had surgery of some sort. So when things calm down a little watch out you may feel a huge gust of wind from our sigh of relief.) I will admit it was my worst birthday ever. And I am sure I cold have changed that had I pulled my emotions together…..next year, next year.

After four hours of heavy rain we made it home in safety thanks to Bridger’s prayers. On Monday morning we were back at the Dr’s. Bridger’s # were lower, He as gone from 100% donor cells to 99%. They say it may continue to drop but they are not concerned at this point. They are sending us to and eye dr. because Bridger’s eyes are still very itchy and red. He complains that they feel dry. We go on Thursday and we will let you know what they say. We have adjusted back in to life here and feel blessed we had a nice place to come back to. We are blessed each day to day for an example our home in AZ we rent outs dishwasher motor died and it was going to cost just under $300 to replace it but the very nice repair man called whirlpool and got them to cover the part seeing how it is just over two years old. So our cost was only $115. That’s what we call a tithing blessing at our house.
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Thursday, November 19, 2009

Day 79 Bridger’s sticky head

Bridger is doing well. We got to lower his meds again this week! We are still planning to go home for Thanksgiving and have even talked to Bridger about it. I think it is going to be hard for him to come back to Houston but he will have a blast being home. Below is some pictures of Bridger’s sticky head. He can balance books, toys and and anything else he tries yet nothing falls off. He thinks he is so tricky, and I am always amazed.

I was talking with my oldest sister today and we were discussing crazy things we have seen in the month of November. I saw a motorcyclist talking on his cell phone while driving!!! What was he thinking? If the words “what were they thinking” have crossed your mind recently feel free to vent here. (This is for you Em)
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Sunday, November 15, 2009

Day 75

I think Bridger is a little home sick right now. He had a melt down because he couldn’t remember what pants he wanted to wear. I tried to have him describe what they looked like. Through his sobs and alligator tears he said “they are the color of dirt” the only problem was I only brought jeans for him to wear and none were brown. According to him they were “all wrong” and he fell asleep sobbing while I held him on his bed. Lately every time he says his prayers he gets all choked up like he is going to cry and he says “And bless my friends that I had to move a way from”. He is physically doing well but I think emotionally it is wearing on him. Today one of the family’s we met here in the RV center brought us a freshly baked loaf of pumpkin bread. It is these small and simple things that get us day to day. We have had an out poring of them. Thank you all so much for your kindness.

Thursday, November 12, 2009

That was AMAZING!

The other day for a science project we tore in to a pomegranate. Bridger was very carful to remove every little kernel. When he was all done and had a nice full container of pomegranate kernels (that he of course never ate but wanted to feed to he birds) I took his picture and he said in a very slow but enthusiastic voice “That was AMAZING”! Who new?

On to Bridger’s health, his numbers went down as of Wednesday due to staring a medicine called Bactrim (I have no idea how to spell it, big surprise I know). He only takes it three days a week so hopefully his body will recover during the other four. They decreased his Gen Graft med again. This will help his numbers to go up. So the goal is for the numbers to even out through out the week. His HGB also went down He may have to have another blood infusion or they may try a medicine that helps. He has dry skin right under his eyes that looks uncomfortable; overall he is still doing great. We did learn some more about the Graft vs. Host effects. I thought when we got to day 100 we where clear for any major possible problems but I have learned that after day 100 there is a whole new set of worries. Symptoms before day 100 fall into the “wet” category like liver failure, severe diarrhea, lots of vomiting…. After day 100 symptoms become “dry”. As in loosing the ability to make tears, dry skin and sores, losing the fluid in your joints therefore possibly becoming stiff or paralyzed…. So you can see the worry will not be subsiding any time soon. But we have great hope things are going to continue to go as well as they have. Thanks for all the prayers. And don’t for get to get your AMAZING pomegranates this season.
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Tuesday, November 10, 2009

Day 70

Bridger’s eyes have done nothing but itch for the last two weeks. We thought it was allergies, possibly a little bit of graft vs. host disease. But on Sunday as I was staring into his beautiful eyes I saw a most peculiar thing. Little jet black hairs are growing in underneath his blond eyebrows, and he looks like he has eyeliner on because he has new little black eyelashes growing in as well. The Dr said that when new hairs grow in it is extremely itchy. Another mystery solved. We also may be getting a big surprise for Thanksgiving we MAY ALL be going home for the weekend! The Dr’s say “It looks like a good possibility” granted nothing comes up between now and then. We haven’t told Bridger yet but are very excited about the possibility and are making plans as if it will happen we are harnessing our powers of positive thinking :). Doyleen has offered to go home with Blake and take on the daunting task of deep cleaning for me. There are some specific guidelines they have given us for prepping the house. I am so blessed to have an awesome mother in law who is able to help. We won’t be able to have visitors or visit anyone in our short trip but I know Bridger will love being at home. We debated if it would be too hard on him to come back to Houston but we will only have two more full weeks (I hope) left when we get back. So we decided it would hopefuly give him a boost and motivation to keep up the hand washing and be good taking his meds.... I think I forget how hard this is on him. He is only six and some times I treat him like a sixteen year old. I am trying to be better at understanding how he is feeling. It seams to make things a little easier, we where also able to decrease his meds again yesterday.
Have a happy day.

Friday, November 6, 2009

Day 66

Image Image After many days of persistence we finally caught a butterfly. Bridger was so happy! We caught it with his mosquito net from his aunt N. He kept it for a little wile just watching it with a smile. A few minutes later he let it go and said in a very sweet little voice “goodbye little butterfly” and the butterfly flew off. It made our day. It was nice because Bridger has been a little down lately he cries every time we have to go into the hospital and he is really done taking medicine. I get frustrated because I know he has to take I know he knows but it is a fight every time. Plus just trying to get him eat and drink is a full time job. He is however very happy when we are playing and riding his bike. I am so thankful he has a bike. The Dr's have lowered one of his meds, and he thankfully Bridger has had no negative side affects and is still doing great!

Saturday, October 31, 2009

Day 60 Halloween

HAPPY HALLOWEEN!!! Blake surprised us by coming in to town last night instead of coming this morning, so we were able to have a fun filled day. First we decorated cookies, Bridger made a “how to” video for you all just in case you need more sugar, we launched a Mentos and Coke geyser, and followed by throwing the baseball around. Later in the day we did some relay races, for one of which we balanced eyeball gumballs on spoons held in our mouths. We also ate doughnuts off of a dangling string with out using our hands, shot silly string and then Bridger rode his bike for at least an hour. He had so much fun all day he had a smile from ear to ear. We had a short break for dinner and then got his costume on. We headed out to trick or treat around 7:15. He made it to two trailers then he dropped his bucket, shield, took off his helmet and said “I’m too tired to trick or treat”. He left all of his stuff in the road and asked his dad to carry him. So Blake carried him for two more stops and then he tried to get him to stand one more time. He wouldn’t have it. We were back to our trailer, gave him his medicine, put his PJ’s on and he was fast asleep by 7:45. What a day. (still working on the video)
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Coke geyser Image Image Image
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On your marks get set... Image Doughnuts anyone? Image Trick or Treat? Image He is done. Image really done.

Wednesday, October 28, 2009

Day 56 more good news

Yesterday was one of those perfect fall days. (As fall as you get in TX) I woke up wanting to snuggle with Bridger because it was so cold. This was a welcome change form the sauna like weather we have been having. I love when the seasons change. The air was crisp and cool with a slight breeze. The sun was shining but a light jacket was needed. We played for hours out side chasing butterflies, seeing how close we could get to the squirrels, and looked in under and around everything looking for spider webs. We had a great time the weather was perfect.

Today we got great news that starting next Monday they will lower Bridger’s dose of Gen graft. It is the medicine that keeps him form getting Graft VS Host disease. He is doing very well. We will just have to watch his skin very closely for any new rashes or anything out of the normal, and his bowels as well. We hope he will do just fine coming off of it. We have no reason to think he won’t. This is all very good news most kids stay on the med for six months (we may too just in a lower dose) and some don’t ever come off of it from what I understand. We another happy thing about today is we got a package form our donor. She sent letters, a bunch of Lighting McQueen stuff. Her 6 year old daughter drew a great picture for Bridger and she sent an angel pin it has a quote about being a special healing angel…. Bridger wanted to put it on right away and wore it all day long in the middle of his color in his t-shirt. He must have for got he was wearing it because later in the evening when he looked in the mirror he grabbed it and then he said in a relived voice “Oh good it’s still here, I just love it”! It was too cute. Bridger got sick this afternoon. By dinner he was feeling much better and ate two peanut butter and honey sandwiches.
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Above is the angel pin he obviously loves and below he thought he was so funny putting a hand wipe on his head. He giggled and giggled over it.
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Monday, October 26, 2009

Day 54 and Bridgers Birthday!

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Friday was Bridger’s 6th Birthday! He was so excited when he woke up and found streamers in his door way and all over the ceiling. He wanted his presents but I had them hid because we weren’t having the party until later when his dad came and I thought it would be too much of a temptation. It didn’t take him long to find his presents. Bridger, like a good boy told me he saw them with out peaking in the bags or opening them. We let him open one of his presents first thing. It was a new pair of running shoes he didn’t take them off all day. We displayed the rest of the presents out on the table and he didn’t even ask to open them all day. Later about 4:00 we where saved with presents from Grandma Dar (my Mom). We played out side with the new bow-n-arrow for a long time. Blake got held up at work and so we didn’t end up having the party until 7:00 pm. Finally, when he got here it was party time. We broke out the nurf swords and I honestly think we could have stopped there Bridger was so happy. They played swords for at minimum 30 min. and then we opened the rest of the presents. His big gift was a play castle with a catapult, he loves it. My favorite part about birthdays is making the cake, I’m not great at it but I think it is fun. It was a great day.

Saturday we played all morning with his toys. I can’t believe he is so strong with the sword; I have to really be on guard. He loves all his toys. Later we went to the Houston temple, Doyleen had never seen it. Then we watched a disappointing BYU football game.

Sunday I tried to find the local branch to go to church. I followed my GPS and couldn’t find it. I said a little prayer and turned the car around and out of the corner of my eye I saw a sign that said “The church of Jesus Christ of Later Day Saints institute of religion”. I had missed it because I was looking for a small church building, but instead found a two story pink house with white trim that was set back from the road. I drove down a dirt path I wasn’t quite sure was a road and found 4 or 5 other cars to park by. Once inside, I realized I had missed the sacrament but found a seat in the crowded little room of folding chairs and was touched by the spirit as I listened to the talks. After words I coordinated with the Elders quorum president to bring us the sacrament. Later at home we gave Bridger his primary lesson then they came to give us the sacrament. As soon as the prayer began I had a strong confirmation of the spirit come over me that this is Jesus Christ’s church. The spirit was strong and I felt blessed to have the sacrament, it has been way to long.

I know this is a long post but I have to give my thanks. I have seen the hand of God in our lives on a daily basis through this trying time. I have felt more love and blessings come than ever before. The people here in the RV center are all so kind. Fred the man that helped with his bike gave him a toy forklift on his birthday; others want to know if he has any diet restrictions so they can give him something on Halloween. How blessed we are to be living here right now. His primary class from church made a CD of songs for him and A DVD with ALL the kids singing wishing him a happy Birthday and talking to him one on one, along with some other things. He loved it all and it brought tears of joy to my eyes. The Woodfields always know what we need, even people form Blake’s work have been supportive along with countless of others. Thank you all so much. We have to many blessings to count.

One more thing at our appointment this morning Bridger had his Dr. appointment and he is a little dehydrated and lost a pound so we are on intake duty. He is ok other than a couple of headaches.

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waiting for Dad's arrival.
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The Cake (it is supposed to be a shield)
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Imagesword play

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Image One happy boy!