stacyjdylan – Medium

stacyjdylan

Published in

Living with Lowell’s Crohn’s Disease: 23 Years in Bullet Points

I’ve been tinkering with this blog post for a while, starting, stopping, coming back, and then putting it aside again. This September, as…

Sep 10, 2025

Living with Lowell’s Crohn’s Disease: 23 Years in Bullet Points

Sep 10, 2025

Published in

Pain Awareness Month & IBD

I was speaking with a friend this week who had just been hospitalized for a Crohn’s flare. When she was discharged, she told me she was…

Sep 9, 2025

Sep 9, 2025

Published in

Connecting to Cure Crohn’s and Colitis: Our Evolution

Thank you for being part of the Connecting to Cure Crohn’s and Colitis (CtoC) community. Whether you’ve been with us since the beginning or…

Jul 21, 2025

Connecting to Cure Crohn’s and Colitis: Our Evolution

Jul 21, 2025

Published in

World IBD Day 2025: Dear IBD

In recognition of World IBD Day 2025, we invited the CtoC community to write letters to their younger selves — or to IBD itself. After…

May 18, 2025

World IBD Day 2025: Dear IBD

May 18, 2025

48 Hours in Boston: Reflections from the Pediatric Rare Disease Summit and VEOIBD

Last week, I took a 48-hour trip (60 hours if you include the flying time) to Boston to attend the Pediatric Rare Diseases Summit (PRDS)…

May 5, 2025

48 Hours in Boston: Reflections from the Pediatric Rare Disease Summit and VEOIBD

May 5, 2025

Published in

When your Child is in Pain

Sep 17, 2024

When your Child is in Pain

Sep 17, 2024

Our Dog Ruby Passed Away.

She was a Huge Part of our Family's Endless IBD Journey

Feb 2, 2024

Our Dog Ruby Passed Away.

Feb 2, 2024

Published in

“Little Blockages” and Intestinal Ultrasounds + Sayings, Adages, and Truisms: Do they help us…

The only way out is through.

Dec 27, 2023

“Little Blockages” and Intestinal Ultrasounds + Sayings, Adages, and Truisms: Do they help us…

Dec 27, 2023

Published in

IBD Shorts.

Frustrated and Working Hard to Raise Money and Awareness for IBD

May 14, 2023

IBD Shorts.

May 14, 2023

To Myself and Everyone

There was no time to be bored. There was no time to take the quiet of the mornings and allow my mind to gather itself into something that…

Dec 5, 2022

To Myself and Everyone

Dec 5, 2022

stacyjdylan

stacyjdylan

I write about caring for my son with Crohn's disease, caregivers of IBD patients, patient advocacy, and my charity. www.connectingtocure.org

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