Sorry everyone who got a weird email from me, as of 45 minutes ago my email account got hacked. I am changing passwords etc. Sorry again.
Petra
Wednesday, December 14, 2011
Re: SORRY!! MY EMAIL GOT HACKED!
Tuesday, December 13, 2011
SORRY!! MY EMAIL GOT HACKED!
Petra
Tuesday, February 8, 2011
Re: laivamies - FRAUDULENT EMAIL
DO NOT OPEN THE EMAIL.
Thanks,
Adam Shipman LANL - Center for Nonlinear Studies PO Box 1663, MS-B258 Los Alamos, NM 87545 Ph# (505) 664-0187 Fax (505) 665-2659 [email protected]
Adam Shipman wrote:
http://qn.nd.e-wro.pl/42792.html
Adam Shipman LANL - Center for Nonlinear Studies PO Box 1663, MS-B258 Los Alamos, NM 87545 Ph# (505) 664-0187 Fax (505) 665-2659 [email protected]
Adam Shipman wrote:
http://hmvracingwhs.110mb.com/37726.html
Thursday, February 3, 2011
Saturday, June 7, 2008
New Pictures of Olivia at 3 weeks old
This week we decided to finally get some pics of Olivia so that we know what she looks like without her tubes, and so that everyone else can see her as well. One person held her oxygen while the other took pics. In between takes, we would hold the oxygen back into her nose for a minute. We have never seen her like this before, so it was very exciting for us!
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Tuesday, June 3, 2008
Visit to the pediatrician's office
The doctor did clarify our restrictions, and they are more restrictive than I thought. Olivia needs to stay away from germs, dust, and smoke, so she wants us to pretty much quarantine Olivia inside our house for 2 months. We are supposed to limit her visitors to those who we "need" to see her and they have to change clothes and scrub before coming in (as do we each time we go out), no leaving the house with her unless it is really required and if we do then she needs a germ mask as well as having a blanket cover her carrier. We aren't supposed to take her to the doctor's anymore, so they scheduled a home healthcare nurse to come by twice a week. If she ever has to go in, they showed us a back door that we are supposed to use and we will be given an appointment time before they open so there are no sick kids around. She can't have any contact with kids (except Juuli who will have to disinfect after playing with any friends) or anyone who has been in contact with someone who may be sick. In addition we installed 3 HEPA filters in the house to keep the air clean and I installed an air conditioner upstairs so that we do not need to open windows to cool off. Petra and I are going to try to figure out a schedule so that she doesn't have to be the only one to stay inside at all times. It is especially hard with Juuli who needs to go play outside and get out of the house.
We started getting bills! Of course we are not paying the bulk of them since we have insurance (in the US, most people pay for medical insurance policies usually through their employer to cover most medical expenses since medical costs are so high here) but I wanted to share the figures so you can be as shocked as we are:
LA Medical Center for Petra $3,887
LA Medical Center for Olivia $6,350 (she was only there for 8 hours!)
Helecopter trip to Albuquerque $17,360 (yes, that is seventeen thousand dollars)
A friend of ours said that when their kid was hospitalized for a month at the same hospital in Albuquerque, it cost as much as their house cost! We have not been billed by the actual hospital yet, but $28k is a good start. We are "interested" to see what our copay is, but we don't expect it to be very much since our insurance is good.
I (Adam) went back to work today for a 1/2 day (in America, you are usually allowed 10 sick days per year if you are lucky) . I will probably continue 1/2 days this week so we can keep figuring things out at home. They were all very understanding and will be flexible about my work schedule as I need it. When I was there, it felt like I had been gone for months since so much had happened in our family since I was there last. In a way, it was nice to have a little normalcy though.
Olilvia is looking more and more like Julia did as a baby. We hope to get some more pics up this week. Juuli is still so excited to have Olivia around and constantly wants to be touching her. It is nice to see her being happy about the baby.
Saturday, May 31, 2008
We're Home!
True to their word, they informed us of Olivia's release at the last minute. When I showed up for rounds on Friday, they had not waited for me. When I walked in to the NICU, the nurse said, "Are you ready to go home?" I called Petra immediately and she came over with Julia and my mom and my grandma. Of course, there was about 3 hours of paperwork and instructions to get before they could let us out the door, but we were back at my grandma's house by 12:30.
We dressed up Julia and Olivia in matching green dresses for the occasion. They were very cute together. Of course, my camera ran out of batteries ...
It was even harder to get Juuli "released" from the ChildLife program. Miss Rebecca was not ready to let her go when we left, so I had to promise to bring her back for an afternoon play session. They just liked each other so much. When I picked Juuli up at 5:00, she had been given a large banner, a special book filled with printed pictures of her time at Rachel's Courtyard with Miss Rebecca and her crew, and a new stuffed animal. Juuli was so excited to have a big deal made for her.
The drive home was surprisingly uneventful. Juuli slept (wasted from no nap) and Olivia slept (wasted from her first adventure out of NICU). Olivia ate well when we got home (about 50% more than she ever had before). Petra fed her at 9:00 and I fed her a bottle and put her down at midnight. She woke up at 3:00 and 6:30 for food.
Everyone has taken good care of our house and animals while we were gone, and that was a real blessing. Even so, there is so much work to catch up on here. The grass didn't die, but it is over a foot tall! Then there is some more fence repair (thanks to the County) and the legal fight to continue against them. We also brought home SO MUCH STUFF between what we took with us and then asked my mom and sisters to bring us and other stuff we bought in ABQ and the stuff we got from the hospital. Plus a new person... there is a lot of unpacking and organizing to do. I also need to install an A/C (explained below) somewhere and somehow. And it turns out that the dogs disconnected our storage freezer some time over the last couple weeks, so all our meat and frozen food is a big rotten & stinky mess.
Even with all of that, it is so nice to be home and to finally have the whole family together and in one place. This has been an impossibly long 2 weeks (I swear it has been 2 months or more), but I am so happy.
Olivia's Restrictions:
Olivia was sent home with Oxygen, and they expect her to be on it for 2 weeks to 2 months. Right now we only have one tank, so it is a pain to lug up and down the stairs. We should get a second tank this week to keep upstairs. We also have a portable tank in a bag so that we can take her out if we need to. Someone will come check on Olivia at our house every week. And because of the oxygen (which we were told to double once arriving at Los Alamos's altitude), we can't drive with her into the mountains. That's a bummer, but a small price to pay.
Since her lungs are damaged, we can't have her around cigarettes, fire smoke, or other irritants like dust for at least 6 months. This will be hard with the county ripping up our street and using our neighboring lot as a staging ground all summer (by the way, I came home to find they had encoached onto our property without permission even more in our absence and broke another brand new fence panel I just installed to replace others they had destroyed). So, because of the construction dust we will not be able to open windows or doors to cool off our house this summer, so I have to buy and install a window air conditioner this weekend (most Los Alamos houses don't have A/C's) along with a couple HEPA air filters and humidifiers.
In addition we have to follow similar rules in our house as they had in the NICU. She is "not allowed" to get sick, so we need to be over protective of her for a while. We are setting up a wash station when you enter our house, and have a gallon tub of Purell sanitizer for healthy people to use (us included, and especially for Juuli). Anyone who could possibly be sick or was around someone who is sick can't come over or have contact with her. I am not sure when we will take her to church, but we will have to keep her covered anytime we are out for a while.
Wednesday, May 28, 2008
One day closer to coming home
My only goal in rounds this morning was to see if the sedative weaning could be sped up at all. It is so hard to see our little girl drugged up and sleeping all the time. It has also made breastfeeding much harder for Petra. The doctor agreed and stopped one of the sedatives completely and slowed down the second from every 6 hours to every 8. Tomorrow she will slow it down even more, possibly to every 12 hours.
So, Olivia will come home with a little oxygen through a tube in her nose. It is only 1/16th of a liter per hour, so a really small amount (their smallest is 1/64th liter). We will have a nurse come by the house twice a week to check on her until they can eliminate it. They will meet with us tomorrow to show us how to use it.
My mom came with me to the hospital this morning and was able to hold Olivia for the first time. Of course, that was really nice for her.
Petra has been nursing, and Olivia has been latching on really well today. She is eating about 2.5 to 3 ounces at a time every 3 hours. The hospital is continuing to bottle feed breast milk at night.
Monday, May 26, 2008
Miraculous and speedy recovery
It has been so nice to be able to hold Olivia. Petra was able to hold her twice (Saturday and Sunday), and I was so jealous that I went back to the hospital on Sunday night at 11:00 PM with Grandma Poe and we both got a turn. Olivia is so attentive and alert. I just wish she was off of her sedatives because I can’t help but to wonder if she is tripping out instead of focusing. They are weaning her, but can’t just eliminate them without creating withdrawals. Today was ½ the amount of yesterday on each of them (she takes 2), so hopefully one can be eliminated tomorrow or at least they can go to a “use as needed” order instead of a routine.
Her face is starting to change as you can see from the pics. At first I thought she looked a lot like Julia, but now I don’t think she looks anything like her. Olivia’s skin is much lighter, and the face shape is different. For some reason I think she looks similar to our Finnish friends’ baby, Alissa. If the timing worked out, I would go have a talk with Jarkko! Anyway, she is really pretty and so far very even tempered. Even with all that is going on, she does not cry much (and when she does it is totally muffled from trauma to her vocal cords from the breathing tube that was there for). A lot of the babies in the NICU cry a lot, so we are grateful.
Another item of great news for the day is that Olivia latched on to Petra tonight and had a full feeding. She tried and did a little at 5:00, but Petra went back for the 8:00 feeding and had great success. Petra said that she stopped counting sucks after 100, so that is a ton more milk that she has ever gotten (they started feeding her milk though a feeding tube, then a bottle but only up to 15 cc’s or so). After Olivia was done they tried to give her a bottle in case she needed more and just tired of breastfeeding, but apparently she drank herself into a “milk coma” (like after 3 rounds at Thanksgiving) and couldn’t move though she was side awake and bright eyed.
Oh, a funny note. She has these really long monkey toes. She keeps using them to grab her wires and tubes and trying to yank them out. She succeeds at least every hour at removing the wires glued to her chest. As soon as her machine starts beeping, we can un-swaddle her to find a heap of cords firmly held between her opposable big toe and the one next to it. She will sometimes stretch them out and can spread all her toes out like a hand. I keep trying to mimic her and can’t come close.
Julia is doing great. She did come to the realization yesterday after her first visit to the baby that this was the same thing that was inside of Mommy. She got freaked out and had to sit in Petra’s lap and talk it through for a few minutes. Other than that brief episode, she has been completely doting on Olivia. She keeps begging to hold her and to go see her. When we have let her in, she constantly kisses and hugs her and talks about all the baby’s parts and how they are like her’s. She asked me today if she could “pet” her. Oh, she also keeps calling Olivia her baby and tells everybody about her. Even strangers at the hospital, in the elevator, and the store clerks…
5-25 and 5-26
This morning we decided to skip the rounds for I think the first time and took Julia to the zoo to spend a little more quality "just her and us" time. Adam's little sister Jenna came with us. We had a good time spotting all the different animals. We went to the aquarium afterwards for lunch and of course the big wall of fish was a big hit. Julia sure loves her animals. Today is also a big day because I finally get to breastfeed Olivia if I can get her to stay awake long enough. (oh yeah, in case you didn't figure it out yet, this is Petra blogging, not Adam:) ha ha) She falls asleep as soon as I pick her up! We even gave her a bath (sponge bath, that is) first, and although usually that makes her really awake, she was OUT as soon as we were done and I sat down with her. How funny. She's been eating larger and larger amounts at every meal, and the nurses are amazed at how fast she just gulps her milk down so they think she shouldn't have too much of a problem getting a real feeding. She kind of attacks the bottle though, so we'll see what will be left of me after we try the real thing today!
Well, I guess that's about it for now, we're at the hospital still, Adam is holding Olivia and I think they are BOTH asleep now. You know how it is, everyone always tells you to sleep when the baby sleeps:) They sure look cute.
Pictures from the last 3 days.
Saturday, May 24, 2008
New pics of Olivia
Today was a nice surprise. After Petra being able to hold Olivia for the first time yesterday, they let us bathe her today. She accepted the bath pretty well.
Her pulminary hypertension is pretty much gone. In the last ultrasound last night they could not measure the pressure, so that is good. Becasue of that, they have completely wenaed her off of the dopamine! Also, they removed one of the probes off of her hand that measured the oxygen before it went to the heart. Only one measurement is now needed post-heart. That also means one less alarm going off!
One more bit of good news today: They weaned her off of the NO2 about 5 minutes ago (12:30). So far so good. That is one less machine, and what the doctor called the "million dollar med". I guess insurance will be paying a lot for the last 7 days. Fine by me.
Here are some pics of yesterday and today. I will try to keep things up to date and more pics coming as I can find a computer to use at the hospital. We are excited to see what her face will actually look like.
The nurse just told us that if things keep progressing like they are then she will be tubeless (no more respirator) by the end of Monday.
Petra's first chance to hold her. She had been waiting for this for 7 days. It was a good way to celebrate her first week.
We were able to give her a sponge bath on Day 8 (5/24). These are the first clean baby pictures. Her hair and eyebrows are really light, even though these pics make them look dark. In the light, it is a light brown. Like honey.
Friday, May 23, 2008
Getting Better Every Day
They removed both of the umbilical catheters yesterday, so she is now being medicated through a new IV catheter that they put in her arm and extended it to the main artery next to her heart. Due to this, Petra was able to hold her today! They set up a recliner and taped the tubes to it while Petra held Olivia against her skin. They both really enjoyed it. Petra is also allowed to put lotion on Olivia a couple of times a day and she does a little bit of baby massage with her too. Olivia seems to like the contact and she REALLY likes the "oral care". We expect her to be really excited when she gets to start breastfeeding- she always attacks the cotton swab when we put it in her mouth!
They also decided to start feeding her today. They installed a feeding tube through Olivia's nose and have been injecting 5 cc's of Petra's milk every 3 hours. She just finished her 3rd feeding, and she seems to be digesting it (they check her stomach shortly after to see if there is any milk left in it. Petra has been pumping, and we now have a lot of milk in storage. She gets about a liter a day right now. It is too bad they don't have a donation program here for for those who can't produce.
Julia News:
The Tonks came down yesterday and took Juuli out to the aquarium and the botanical gardens. She definitely had a lot of fun. It was good for her to get to play with other kids, especially their daughter Anna who she plays with in Sunday School. It has been raining and hailing here, so we have not been able to do much else with her outside.
Today we took her back to Rachel's Courtyard (the hospital playground). We found out that the counselor (Rebecca) there had put together a program for her, so that is really comforting. She said that 2 more weeks (how long it could take before all the tubes are out of Olivia) is too long to not let Julia see Olivia and may cause more anxiety and confusion for her. She is going to take some pics of Olivia and I gave her a couple of Petra with Olivia, then she is going to make a little book for Juuli to get comfortable with how the baby looks. She has also given Juuli this blank little stuffed doll without features. Julia will get to color it to make it into a baby and they will play doctor with it. Rebecca will visit Olivia and collect some of the tubes and things that Olivia has on so they can role play with them on the doll. Her goal is to work with her tomorrow and on Monday so that Juuli can visit the baby on Monday or Tuesday.
Grandma Poe came home last night, so she is having fun playing with Juuli. She came with us to the hospital last night so that she could meet Olivia.
Wednesday, May 21, 2008
Mommy's first post
Humpday
Yesterday was wonderfully uneventful. She has definitely hit her plateau, and is at the top of her hump if all other things stay constant and she does not develop something new. They will begin weaning her slowly off of the respirator and meds to see how she reacts. Each day should get better and better, with a worst case of her just falling bask to this current level of support. The doctors have not stated she will survive, but the nurses openly do and we are no longer openly fearing the worst.
In depth:
Tests through the night continued to go well. When Petra was with her yesterday, she noted that even though she was touching her and moving her around for the diaper change that her stats never fell. I went by at 4:00 to do the diaper and check-up and about 1/2 way through I realized that her alarm hadn't gone off yet. It usually goes off every minute or so and almost immediately upon messing with her. It never did go off, and the experience was great. I never knew I could be this excited about taking an hour to fight through traffic in the heat just to change a diaper.
At the rounds this morning, the doctor was really pleased with Olivia's progress. She is less sensitive to touching and noise, so she has really settled down and started healing. The doctor is going to start weaning her off of some things to see how she responds. To start, then are lowering her oxygen in the respirator from 100% to 95%. They also lowered the pressure another number to 26 so that Olivia's lungs strengthen on their own. In addition, they want Olivia to start moving more and opening her eyes to recognize stuff around her. So, they are lowering one of the sedatives to make her more responsive to stimulation.
As of 2 minutes ago (I am writing from the hospital), they decided to lower her oxygen even more at 4:00 because her stats didn't lower at all from the previous change at 9:00. This is great new and unexpected. The nurse said that at this rate she would be off the ventilator in one week instead of the two more weeks that they predicted earlier.
Tuesday, May 20, 2008
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Monday night and Tuesday morning
Olivia has hit that elusive plateau (or so it seems) since she has not gotten any worse in 24 hours. She is responding to the treatments.
Stats on 5/21 @ 9:00 AM:
Oxygen saturation 98% pre-heart, 99% post-heart
Respirator 86% oxygen, .2 parts per million NO2 (down from .3 yesterday, 15 ppm NO, Forced Pressure is 28 (down from 29 yesterday), Forced Breaths per minute is 32.
Temp 36.7 degrees C
Blood Pressure 65/39 with a mean of 50 (right where they want it)
Drugs:
Fentanol .7 ml/hr
Midanol .79 ml/hr
Dopamine 1.44 ml/hr (dosage 11 mcg/kg/min)
Heparin 1 ml/hr
Neotrace 12 ml/hr
Course of Action:
Blood Pressure meds were decreased slightly overnight. Respirator pressure and NO2 were decreased slightly overnight. Olivia's diagnostics dropped slightly from the change, but recovered on their own.
No big changes should be made today in order to get some consistency in the diagnostic #'s the doctors are seeing.
Olivia is less sensitive to movement and stimulation this morning, so she is able to maintain he oxygen levels and blood pressure better.
They will try to insert her new IV through her arm and to her heart now that she may be able to handle the stress involved.
They will begin to give her fats through IV and increase her sugars.
At length:
We are so relieved to have a day when she has not gotten worse. It is too early for us to take this as a sign that she will start to recover, but it is a great milestone. We left her alone for the afternoon and didn't visit her until 9:00 last night to try to leave her less stimulated. It was hard for us, but it seems to have been a good call. We made a list of the tests they were going to take and just called the nurse after each one was scheduled to see how it went. After the test at midnight, we felt assured enough to be able to fall asleep.
At the rounds this morning, we had the same doctor as yesterday. She had ordered that no changes be made at all yesterday and seemed a little snippy that the evening doctor "took a chance last night" by lowering her respirator levels. But it did no harm, so we are happy. We asked why they keep lowering her support whenever she stabilizes for a few hours then take more blood tests just to see her crash and have to start it back up again. The answer was that it provides them with more data to see where she is at. They know she is getting better when Olivia can tolerate a decrease. Yuck. The doctor this morning said that at she wants that stopped for at least a day because she fears that all this pushing may cause her to take 2 steps backwards. We will see what the other doctors end up doing.
I have been asked a couple times how common this situation is. Our primary issues are Meconium Aspiration Syndrome and Aspiration Pneumonia. I asked a doctor and they said that meconium in the amniotic fluid happens in about 5-10% of births. Of those only around 10% of the fetuses breath it in (aspiration). Of those it is rarley serious or with complications like Olivia's. If she wasn't so stong and vigerous (good Apgar score for high altitude), and if it wasn't treated immediately at birth (actually Olivia was suctioned before being fully born), then there would have been a danger of brain damage. As it is, Olivia's oxygen saturation has always been kept artificially high, so she should still be super smart.
Petra was able to change Olivia's diaper and take her temp again today. I also learned that the hospital's pediatric unit on the floor above us has a play area that Juuli is able to go to. We went up there together while Petra was with Olivia and it is an amazing place. First of all, it is huge and is part inside and part outside on this enormous enclosed deck (on the 6th floor). Toys, books, videos, fish, games, puzzles, cars and trikes and stuff, a garden, a kinda planetarium thing, lots of pretend furniture and appliances, ... It also has "ChildLife" counselors that help siblings cope with sickness, and they give advice to parents on how to keep the family rolling. We talked to them briefly today and will continue to go there often. It will at least get Juuli excited about going to the hospital.
Speaking of Juuli, we also took her out for a special dinner last night. We talked it up all day and took her out to Chuck E. Cheese. It was different than I remember as a kid, but she still loved it. We let her pretty much be the boss there (besides insisting she eat before giving her the tokens). She was able to drink soda, run around without us right next to her (there weren't a lot of people inside), ride on all sorts of things, dance with the mechanical mouse, and play things to win tickets. We kept her up late (visiting Olivia after), but it was well worth it and she is still talking about it.
Also, the Ramsey's stopped by after one of Gerry's appointments yesterday. Juuli was very excited to play with Marilyn, especially since my mom and sister had gone back to LA for a day. We bought her some cooler clothes (it is burning up here) at Walmart, so she is very excited about that. My mom will be back tonight and is bringing a pool to play in, so that will also be fun.
We are trying to come up with a new daily routine for our family to help us. We think we will call the new nurse each morning when we wake up, then get to the hospital around 9:30 and drop off Juuli at the play area, Petra and I will meet the nurse and go to rounds. We will then go play with Juuli for a little bit and talk to ChildLife if we need to, then go to lunch (turns out the hospital has a great cafeteria) around 11:15, Petra will help with Olivia's Noon "maintenance", then we will be back at Grandma's by 1:00 for naptime. At 3:30 either Petra or I can go to the hospital for Olivia's 4:00 diaper and tests if it works out that we can, then we will both go together at night to meet the evening nurse. It is a busy schedule (especially when you add in the breast pumping every 3 hours), but it will help to have a routine.
Monday, May 19, 2008
Maybe we will plateau today
So, we met her new primary physician this morning at rounds (she gets a new primary each morning and then a new secondary each evening), and she concurred with the previous day's determination to leave Olivia alone unless urgent intervention is needed so that she can rest and recover. For all the drugs and support they are giving her, they can't heal her. Only she can heal herself, while they maintain her body functions for her. In addition to increasing her sedatives, they have now moved her to a new cubicle of the NICU where there is less traffic and no babies that are able to vocalize so that there is less accidental stimulation. There are just the constant beeps and alarms that are constant in NICU. I haven't been there yet without there being at least one alarm sounding at any given second. It is loud and constant and today's nurse said that she still hears them when she is at home.
The good news for the morning is that her original bloodwork (determining if she was contagious) came back negative today, so she is out of isolation. There is no physical or locational change that comes with that, but we were able to touch her without gloves for the first time since birth. That was very convenient timing as we called on a local priesthood holder from our church to assist me with a blessing. He arrived 10 minutes after the isolation was removed.
My mom was also able to visit Olivia today.
This morning they determined that she will not be able to eat for some time, so they need to start feeding her through a new IV. They will insert this one through her arm and then feed a catheter into the main artery at the heart. Petra will continue to pump milk, and they will freeze it for future use in a feeding tube.
-Julia-
We talked to the nurses today (they also change every 12 hours, so we have met quite a few) about Julia and our concern about balancing our family as well as keeping the idea of Olivia a positive one in Juuli's mind. They were very sweet and gave Petra a tiny diaper and a knitted infant hat to act as a present from Olivia to her big sister. Juuli was very excited to have them and has tried multiple times to get the hat on her own head. Hopefully this will help form an early bond and we may have Julia draw a picture or something for Olivia in return. The nurses again cautioned us (and we fully agree) that it would not be a good idea to bring Juuli in to meet her until there weren't any visible contraptions going into her. We will try to get a "clean" picture of her to show Juuli and to post on the blog once her head is free from tubes and tape and the silly yellow ear muffs glued on her.
Sunday, May 18, 2008
We may have hit the plateau
Petra was able to change her diaper again and take her temperature. It is funny how the very small things mean so much.
If some blood tests come back negative tomorrow (a good thing) then she will be taken off of isolation which means that we will be able to touch her with our bare hands. That will be odd and exciting.
I can't believe she is less than 3 days old. It feels like we have been here over a week.
Julia in Albuquerque
On a happier note, we have spent a lot of time with Julia. Of course Petra is still at the beginning stages of recovery, but we went to feed the ducks and ride the Tingley Beach train yesterday. We also managed to do a little shopping with her. Today we even took a short walk at the Rio Grande. Petra is being really tough. At home we have painted with Juuli, drawn pictures, played games, and let her dance a lot. My mom and Vanessa have really been a God-sent for us in this regard and play with her all the time. Julia is allowing them to do everything in our place including taking her to potty, feeding her, and putting her to bed so we are feeling SO lucky.
Sunday PM
Every 4 hours, the nurses will touch Olivia for whatever they need to do. At noon they allowed us to do some of the routine stuff, so Petra got to change Olivia's diaper and take her temperature. Both of us got to do what they call "oral care" (Thanks to being allowed to smell the baby's skin, Petra's colostrum has suddenly come in. Oral care is taking 1 cc of it and rubbing it around Olivia's lips and gums with a q-tip). She is still not allowed to eat and will not for some time, but this allows her to start to get used to the taste so that she does not loose the desire to latch in a few weeks. It also allows her to get some of the antibodies trickling down her throat to boost her immune system. The nurse today seems pretty liberal, so we have not felt so scared to be standing right next to the baby and hovering over her quietly.
Also, we bought a small baby blanket and Petra slept with it last night so that it would smell like her. The nurses are now using it to cover Olivia's face instead of their hospital blanket.
The hospital's policy is very strict and only parents and grandparents can see her right now. We are planning on taking my mom to see her tonight for the first time since right after her birth. Only 2 are allowed in the NICU at a time, so we will take turns sitting in the waiting room.
Vanessa went to church at some ward in town, and she gave my contact info to the bishopric. I hope to get a call from someone soon to go with me to give Olivia another blessing. Brother Barker and I gave her one before she flew out of Los Alamos, and I gave her another one myself on Friday night. I received permission from the hospital to allow a clergy member to come by, so I hope to take advantage of that soon. Olivia has ear muffs glued on her head, so I am sure my voice won't stimulate her too much. When I sang to her on Friday night, it calmed her down and allowed her to sleep, so I am not too worried about it anyway.
I tried to upload pics, but the connection is too slow at my grandma's. I will try again later if I can find a wifi spot somewhere.
Olivia Marissa Antonina Shipman
5/16/08
Olivia was born on Thursday morning at 3:20 AM in Los Alamos. 7 pounds, 10 ounces. 19.5 inches. The labor was very easy compared to last time, and Petra only had to push a total of three times over a 5 minute period. What a blessing! Petra was up and walking a couple hours later, and was healthy enough to be released at 11:00 AM under certain restrictions (which, of course, she rarely follows).
Olivia was born with meconium ( her own feces in the amniotic fluid) and had swallowed and breathed it into her lungs. This caused a serious condition in her lungs. A helicopter was called in and arrived at 9:30 AM. It took until Noon to stabilize her enough for transport, and she was taken to Presbyterian Hospital in Albuquerque.
Each report is worse than the previous, and they are not sure she will make it. Among the current complications are the meconium in her lungs (causing something like a chemical burn), bacterial pneumonia, pulmonary hypertension (capillaries around her lungs will not open enough to absorb oxygen), an unknown infection, and improper blood flow due to her body not transitioning from the pre-birth blood route that bypasses the lungs to the post-birth route that is permanently rerouted to the lungs (I imagine it like a frog's metamorphosis, though it usually happens fairly suddenly when the lungs start absorbing oxygen for the first times).
5/18/08
Her current treatment is that she has a machine breathing for her, and she is on 99% oxygen and 1% nitric oxide (NO2 acts to stimulate the capillaries open). She has an IV going into her belly button and another into her arm. She is also on blood pressure meds and is heavily sedated. At my last count she is hooked up to 13 different monitors or machines and has had over 12 Xrays and 2 ultra sounds. She is in isolation in the Intensive Care Unit, and though we were able to touch her with gloved hands yesterday (after a 3-minute antibacterial scrub and wearing a smock), we are now not allowed to touch her or even talk to her for fear of agitation or stimulation. This restriction is expected to last at least another 2 days. She has not been given any milk or other nourishment yet so that her energy isn't diverted to her gut. We have not yet been able to hold her and probably won't this week.
The doctors can't yet tell us that she will survive. Good news is that they have told us that if she does that they do not expect her to have any long-term effects from this. They say that she is very sick and when she gets better she will be all better. In the best-case scenario she will be in the hospital down here for 4 weeks. We are living at my grandma's house in Albuquerque, and at least for now my mom and sister are with us to help with Juuli (who we have not told anything to yet other than that Olivia is really tired and sleeping at the hospital).
We are trying to stay hopeful and keep a big-picture perspective of the whole thing. We have been in touch with our ward, so they sent down a care package to us today though we are physically just fine and don't need anything since we are with family.
Right now, we are not answering the phone or checking in with family/friends. If you are dying to hear anything you can call my mom (my new secretary) at 470-0408. You can also email me at [email protected] or Petra at [email protected] or keep checking this blog.
5/19/08 AM
Today is a good day so far. It is the first day that her support has not been increased. They are now trying to fine tune her treatments to her exact levels, but she has responded to them and is finally stable. We have been warned not to let this get our hopes up that she will not worsen more in the future, but we should still celebrate this as a huge accomplishment for her. If no new issues arise, she will definitely make it. She is a fighter!
The only new bad development is that she is jaundiced. Her bilirubin level yesterday was 6.4 and today is 9.5. They will not treat it until it breaks 10.
We learned that there is something called "rounds" every morning at the NICU, and we are invited to attend, so we did so this morning. Rounds is a meeting with the physician in charge, the charge nurse (for our section of NICU), the attending nurse (Olivia's personal attendant), the NICU nurse practitioner, the NICU pharmacist, and anyone else who needs to be there. It is rapid fire and full of information and collaboration between them all to make sure a plan for the day is laid out for Olivia with everything being quadruple checked. It was REALLY reassuring. After, they explain things to us in lay terms and allow us to ask questions.
Their main plan for her today is to let her rest and lay off her as much as possible. They used the metaphor or performing a full court press on her yesterday and Friday, so they need her to recover not only from the sickness, but from the additional trauma they have put her through. No new treatment or meds today unless it is dire.
For those who know or want to research, here is Olivia's current IV meds:
Fentanyl .5ml/hour
Midazolam .52ml/hour
Dopamine 1.58 ml/hour
NACL Heparin 1ml/hour
Neotrace 8.4ml/hour
Other meds are supplemented as needed through another IV opening in her bellybutton. She is heavily sedated and kept sleeping.
Her stats this morning were:
112 beats per minute heart rate
98% oxygen absorption after the heart (trying to keep it as close to 100 as possible) , 95% before the heart (just need to make sure it never drops lower than after the heart %)
36 degrees Celsius (normal)
blood pressure is 55/34 with a mean of 43 (they are trying to adjust meds to elevate it to 50)
I will post pics later.






















