Okay trying to catch up is taking an awfully long time and in the process I'm missing out on posting our most current experiences. I'm going to go back and journal what I can remember. I may post a picture here and there, but posting the pictures are what take so long!
Spring 2011:
We moved into our home in Huntsville in April 2011. Our new address is 340 S. 7600 E. Huntsville, UT. While we love our new home, we really struggled with leaving North Fork. We left behind so many good friends and an amazing ward. We truly felt we had a ward family in North Fork. It was hard for a little while adjusting to our new ward. However, we LOVE our next door neighbors, Rob and Heather Quist. They are the greatest and we feel blessed to have them near us!
Korbin turned 4 on April 6th. He had a party in our backyard. We played with sidewalk chalk and blew bubbles. Of course, we had delicious cake, too! It was a Lightening McQueen styled party, as that was his FAVORITE thing! (He still loved the trains, but Disney's Cars took over as his #1 interest, at this point.)
Landon continued with karate and earned his green belt this Spring. As a family, we spent a lot of time playing on the beaches of Pineview. We did all the typcial fun family things like saftey fairs and family outings. I, also, had a FABULOUS Mother's Day.
We went to Salt Lake City and spent the day with my mom. She took us to a warm spring on the north side of Salt Lake City. We, also, went to Liberty Park, in Salt Lake City. The kids had a lot of fun and I did, too! This year Chris got me a small camera with a video option on it. That's just what I had hoped for!
This Spring my parents split up after over 20 years of marriage. It was very hard on all of us and was very shocking. My dad, John, left and moved to California with someone he knew. We spent this Spring (along with many more months) trying to help my mom. She had to pack up her home and sell it. She just simply had a lot of things to figure out. On top of it, she was feeling quite down, of course. It was a very difficult time for our family, in that regard.
On top of the break up, Maylee's issues had spirraled out of control. Long story short, we began working with an agency called KT&T. Our post adoption worker, Aubery Myers, had put us in touch with them. They provided us with a therapist, Kristina Hunt, and began locating us a respite provider. We went through a handful of respite providers before we found, Flora Rider, who was willing to stick out the tough times and help us with Maylee. Maylee began doing occassional respite with Flora. The post adoption team of Utah provided us a grant to pay for the extreme cost of $50/night!
KT&T, also, put us in touch with Sutton Clinical Services, where we met a great psychologist, Jennifer Calcut. Jennifer began testing on Maylee. The testing provided us with great insight, but it was also a diagnosis of shattered dreams.
It took many months to find everything out (and now in 2012 we aren't sure we know everything yet), but the end result was that Maylee was much more low functioning than we had realized. She was diagnosed with Bipolar, Reactive Attachment Disorder, and low IQ. This was in addition to her other diagnosises. The low IQ was really hard for me to take in. We hadn't realized how low functioning she was and to hear how low her IQ really was, it made me realize how hard she has to work to even get through the day.
As Jennifer had suspected, Maylee was later diagnosed with Fetal Alcohol Syndrome by a genetic doctor at Primary Children's Medical Center. This meant that we had just been told that our daughter would never be independent as an adult. We were told she would always require care and assistance. College was out of the question, marriage very unlikely, and having children was a huge NO! Not only was she not going to be able to do all the things we'd dreamed of, but they strongly believed she'd have to live in a group home. My dreams were shattered!
Victoria brought a lot of comfort to me. She used to work with special needs adults in a residential living center, the type of place Maylee will likely live. She told me of all the great opportunities that Maylee will be presented with. She told me of regular activities with friends, trips to Disney, and services that would help Maylee live day to day, along with helping her secure a part-time job at her ability level. While the fact can never be changed that our daughter has FAS and nothing could be harder in my life than that fact, this talk with Victoria brought me much peace.
Maylee participated in her first and last piano recital this spring. As her hands had to move more and as the music became more complex, she was unable to continue with piano. She enjoyed it very much, but it brought much frustration and upset into her already complex life. Nana and Papa Holland came and supported Maylee in this special event, along with her family, of course.
January 2011 was the start of one of the hardest years in my life. I felt so alone, so trapped, so exhausted, and just overall down. My childhood family had been destroyed and now it felt like FAS was going to destroy my new little family. It was a time of great despair and tradgedy. I spent many, many days and nights on my knees in prayer.