National Organization for Rare Disorders (NORD)

@RareDiseases

#NORD has been the voice of the U.S. #RareDisease community for 40+ years strong. Official U.S. sponsor of #RareDiseaseDay. On Bluesky at @ nordrare.bsky.social

USA

rarediseases.org

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National Organization for Rare Disorders (NORD)
@RareDiseases
Sep 8
Registration is now open for NORD's #LivingRareLivingStronger in #Florida! 🌴Join us Dec. 4 in Fort Lauderdale for a free day of #RareDisease education, resources, and community connection. Register today: livingrare.org/florida/
National Organization for Rare Disorders (NORD)
@RareDiseases
Sep 7
Meet NORD’s 2026 #Running4Rare team heading to the @nycmarathon! 🏃‍♀️ This November, our runners will take on 26.2 miles to raise funds and awareness for the #RareDisease community. Each runner is paired with a rare disease community partner, bringing even more meaning to every
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National Organization for Rare Disorders (NORD)
@RareDiseases
Sep 4
Registration is open for NORD’s first #LivingRare virtual event entirely in Spanish! 🎉 Join us Oct. 3, noon–2:30 p.m. ET on Zoom for education and community connection for Spanish-speaking #RareDisease patients, families & caregivers. Spanish programming + live English
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National Organization for Rare Disorders (NORD)
@RareDiseases
Sep 4
¡La inscripción ya está abierta para el primer #LivingRare, Living Stronger virtual de NORD completamente en español! 🎉 Únase el 3 de octubre, de 12 a 2:30 p.m. ET, para educación sobre enfermedades raras y conexión con la comunidad. Regístrese hoy: bit.ly/4cpOQjh
National Organization for Rare Disorders (NORD)
@RareDiseases
Sep 4
Did you know that #NorthCarolina was the first state to establish a Rare Disease Advisory Council (#RDAC)? Applications are open through Sept. 8 for North Carolinians in the #RarDisease community—including patients, caregivers, advocates and health care professionals—to serve