Day 2 at @GlobalGenes #WeekInRare, and we’re feeling so empowered by the incredible sessions and conversations from leaders, advocates, and changemakers in the rare disease community!
#RAREAdvocacySummit
Comend
@comendcare
The operating system for patient groups
- We're so happy to be at @GlobalGenes #weekinrare!🦓 Ready to listen, learn, and connect with caregivers, patient advocates, and YOU! ✨Find us for a free sticker, and let’s connect!
- This year, @OsmosisMed is running "Year of the Zebra". Every week will focus on educating the public on a unique rare disease, including a video on their YouTube channel. I guarantee they talk about at least one rare disease you haven't heard of. youtube.com/playlist?list=…
- It's Rare Disease Day! “Doctors are taught 'when you hear hoofbeats, think horses not zebras'". But Sometimes the explanation for a condition is indeed a rare disease. Retweet if you believe Zebras DO exist! #rare #awareness #rarediseaseday #caregiving #raredisease
- DEI In clinical studies is a great first step in moving towards a more equitable healthcare system. We'll see how this might mitigate measurement bias, design more culturally aware studies, and regain some trust in our institutions. nature.com/articles/d4158… #Equality #healthcare
