@cpritchard
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The Myotonic Dystrophy Foundation
The Myotonic Dystrophy Foundation
Myotonic Dystrophy Center | University at Albany
Myotonic Dystrophy Center | University at Albany
About the Center Myotonic dystrophy is the most common cause of adult muscular dystrophy and has a surprisingly hig
CERRT - The Center of Excellence in RNA Research & Therapeutics
CERRT - The Center of Excellence in RNA Research & Therapeutics
The Christopher Project: DM patient-driven study results
The Christopher Project: DM patient-driven study results
OVERVIEW The Christopher Project is an important research initiative designed to provide insight into the experience of patients and families living with myotonic dystrophy. It is a partnership between national patient advocacy organizations, health care providers, and people living with myotonic dystrophy. The project was designed to complement existing research by asking patients and their ... Read more
Rare Disease
Rare Disease
Raising awareness for patients, families and carers around the world that are affected by rare diseases.
The National Ataxia Foundation
The National Ataxia Foundation
Empowering those affected by Ataxia — learn, connect, and support. Discover research updates, helpful resources, community stories, and ways to take action toward treatments and a cure.
SCA Source: accessible ataxia research updates
SCA Source: accessible ataxia research updates
Answer ALS
Answer ALS
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