ernbond
ERN BOND - European Reference Network on Rare Bone Diseases
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ERN BOND Rare Disease Day 2026
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What does equity mean for people living with a rare condition?
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ERN BOND - European Reference Network on Rare Bone Diseases The main ambition of ERN BOND is to implement measures that facilitate multidisciplinary, holistic, continuous, patient-centred and participative care provision to people living with rare bone diseases (RBDs), supporting them in the full realisation of their fundamental human rights. In particular, ERN BOND aims to ensure that people living with an RBD are afforded the same standards of care and support as the ones available to other citizens with similar requirements. ERN BOND’s aspiration is to support patients affected by rare bone diseases and their families, to increase their capacity to undertake a participative role in care provision, to set priorities and to participate in decisions regarding their care plan and their life project, in accordance with EUCERD recommendations (2013). Share. Care. Cure.
ERN BOND website
ERN BOND website
Network ERN BOND is one of the 24 existing European Reference Networks. In particular, ERN BOND aims to improve access to high-quality healthcare for patients suffering from rare bone diseases. Mission ERN BOND aims to implement measures that facilitate multidisciplinary, holistic and patient-centred care
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