Day One… Again

My stomach is in knots, I can’t sleep, I keep crying all the time, and there’s a bruise on top of my hand because the nurse couldn’t find a vein, as usual. This can only mean one thing… yet another IVF cycle has begun.

This morning I had my baseline bloodwork and ultrasound. Tomorrow night, I start my first stim meds. This cycle is going to be an antagonist cycle, which is interesting. I certainly welcome the opportunity to have less sticks. And since Lupron is the trigger this time instead of the LH supressor, it’s a only a subq injection. Combine that with the fact that my clinic has switched from PIO shots to suppositories and we have completely eliminated all IM injections. I am EXTREMELY happy about this!!!

How am I feeling? Much as you’d expect, if you’ve read the rest of my blog. Insanely terrified. Prepared for the worst. Reliving a nightmare, yet again. Ridiculously stressed out about the scheduling of this whole complicated procedure. There are once again a million moving parts that all have to be coordinated to ensure that we have rides to every procedure in every city, childcare is taken care of, time off work is covered… it doesn’t sound nearly as complicated as it truly is, and I won’t bore you with the specifics. But there is a very real possibility that my transfer could be on the first day of school. Plus I now have the added bonus of recovering from wrist surgery three weeks ago. But I am doing my best to put one foot in front of the other and… just keep swimming.

My first step towards a more positive outlook: making dinner tomorrow. I am starting the biga for my cibatta bread tonight, and I’m making a beautiful homemade ziti with a kale and broccoli salad, our favorite pink moscato wine, and tiramisu for desert. Bobby and I will enjoy some positive vibes before my first round of injections tomorrow night. Hopefully Evan will be in a cooperative mood and we can enjoy a nice family dinner. And hopefully my cooking turns out well. 🙂

I keep fluctuating between praying for this with every fiber of my heart, and trying to distance myself from caring in an attempt to lessen the blow if it doesn’t work. I watch the universe for signs of hope, and then do my best to ignore them. I make bargains with God in my mind, then remind myself that God doesn’t work that way, and then remember that I have no idea how God works. As usual, the only thing I really feel for sure is that I’m ready to put this behind me and move on with my life, in one direction or another.

Thanks for listening.

Round #4

I doubt anybody still has my blog on their list anymore. This post is for me. I need to write and process how I’m feeling.

Bobby’s doctor gave him the OK to try another mTESE this summer, so I scheduled an appointment with the RE to get the wheels turning. I’ve been apprehensive all week about this appointment. I know exactly how much pain and difficulty and sadness will be involved in the next three months, and I feel like I’m walking directly into a nightmare. In my mind, I’ve lost before we’ve even begun. I can already hear the nurses voice on the phone: “I’m so sorry, but…”

It’s day 1, and already I am prepared for failure. I almost expect it, like a terminal diagnosis that I can’t walk away from. I have almost no hope left in me.

So why am I trying again?

I don’t know. What keeps you going when you’ve lost hope? A tiny, tiny voice inside that says: “Maybe…” My fears are drowning her out, but I can still hear her on the edge of the storm, like a little voice carried away by the wind.

“Hope” is the thing with feathers –
That perches in the soul –
And sings the tune without the words –
And never stops – at all –
And sweetest – in the Gale – is heard –
And sore must be the storm –
That could abash the little Bird
That kept so many warm –
I’ve heard it in the chillest land –
And on the strangest Sea –
Yet – never – in Extremity,
It asked a crumb – of me.

Hope is starving in my soul; I certainly haven’t given it any crumbs. But still it persists even in spite of myself. Did you know that any time my period is about to start, my boobs get sore, I get a little bit of diarrhea… I still become anxious and wonder – could I be pregnant? True story. I’m not. I know I’m not, and I will never be. But there’s that 1 in a billion trillion chance that one little badass sperm made it to my uterus. I am desperate for that miracle story. I always feel so foolish when my period inevitably starts, and I laugh a little bit at how ridiculous and cruel hope can be.

Every time I look at my sweet boy’s face, I remember that hope is possible. I love him with all my heart, and that love makes me want another child even more. Doggedly, I am persisting on in this fight. It’s the fourth round and I’ve already been knocked out twice. My heart is bloodied, my face tear-streaked, my knees weary with holding myself up, but I have to press on.  Keep fighting. No matter how much this hurts, I know that I’ll always regret not having another child. And if I have to live with that regret, I need to know that we did everything we could and never gave up.

Maybe I wouldn’t feel so woe-is-me if my meeting with the RE had gone better this afternoon. But her reaction to our plan was a little resistant at first and then apologetically unenthusiastic. Bobby’s doctor has moved offices AGAIN, closer to home this time. Which is great because we can use our original RE, but she seemed incredulous and confused at the prospect of doing a live transfer. She raised legitimate concerns about what would happen if the sperm courier got into a car accident on his way here? She didn’t say no, though. She’s going to call Bobby’s urologist and see what we can work out. Her bedside manner kicked in after her initial reaction to the plan and she became much more sympathetic, but I could still tell that our plan really threw her for a loop.

In the meantime, I have to start the usual battery of tests – STI testing, hormone levels, ovarian reserve, ultrasound. Lucky me, my period started yesterday, so she signed me up to get stuck first thing tomorrow morning. Just what I needed – no easing into this cycle, just dive in head first! And of course, the nurse asked if we were planning to have donor sperm on back-up… our big debate. Bobby and I have been majorly struggling with the question of donor sperm. We decided to try one more IVF cycle to give Bobby his best chance at being related to our child, but we haven’t yet agreed on whether our follow up option will be donor sperm or adoption. We agreed that we need to talk to a counselor together to help us come to an agreement and sort out our feelings. We had planned to put that decision off until we knew whether this cycle was a wash, but we decided after today’s meeting that we had better go ahead and find a counselor now.

Privately, this is a good idea. Not so much for the donor sperm question, but because I need a reason to get me through the door of a counselor’s office. I never went to speak to somebody after our last cycle failed, and I’ve been a mess ever since. I’ve been hiding the tumult of feelings on the inside that haven’t ever gone away. Today’s meeting was just enough to send me spilling back into a zombie like state of emotional hibernation – I barely looked at Evan all night, made plain spaghetti for dinner super late because I couldn’t get myself moving, and cried into his hair when I tucked him in for bed. He is both my greatest source of hope and sadness – he simultaneously reminds me of what I have and what I want. I’ve been hiding this from Bobby. I don’t want him to think that I can’t handle this cycle. The only reason I agreed to do this is for him, and I don’t want him to feel guilty for putting me through it again, even though every fiber of my body is screaming “NO I CAN’T BEAR THIS AGAIN.” So I know I need to talk to somebody, or I may not make it through this cycle with my sanity intact.

When I put him to bed tonight, he said something that he says very often: “Mommy, I need you.” I buried my face in his hair and said, “I need you too, baby.” And it’s the truth.

Let It Be

I’m finally read to write this post. It’s been almost a month since… you know. And I’ve been hiding. I knew that as soon as I sat down to write these words, that the tears would start flowing and I might not be able to make them stop. Yep… here they come.

I’ve spent the last month keeping as busy as physically possible. The less down time I have, the less I think about it. At least that’s what I thought. But the truth is I think about it all the time. I get punched in the stomach with it every morning when I wake up, and I spend the whole day trying to stand up straight and keep walking even though I can’t breathe. There are still sharps containers all over my house, pill bottles and medicine in the fridge, my calendar on the kitchen counter. I can’t bring myself to throw any of it away, I just keep walking in front of it and trying not to look at it. It doesn’t help that school has been insanely busy the last three weeks. So basically I’ve exhausted myself and have started having panic attacks to where my chest starts to hurt and I can’t breathe. Sometimes I forget what I’m doing, sometimes I can’t think straight. I’m just so goddamn sad.

I started bleeding that Friday morning. I went to the bathroom when I woke up and there was blood. Not exactly bright red, but thick. I called Bobby and started shaking. He googled spotting while I was in the shower and read that it was common for women in their first trimester, so I went through the day trying to convince myself that maybe it was a good sign, even though I knew it was way too late to be implantation spotting. I think the hardest part was going back to school on Monday and being in the same space where I had waited for the final bell so I could rush home to hear the news. The place where I had paced back and forth, watching the front door, hoping that maybe Bobby would have ignored my instructions not to surprise me at school with flowers and he would be there. The bathroom where I went every 30 minutes to see if I was still bleeding, and I was.

When I got home, I knew Bobby would be inside with the news. I knew as soon as I pulled in the garage that it was negative. If it had been positive, he would have heard me open the garage door. He would have thrown open the door and smiled at me. There would have been flowers waiting on the kitchen table. He would have been standing there, smiling. But instead, the door was closed. The house was silent. I wondered if he was even home. I never realized how far away my bedroom was from the door, and he was lying on the bed, his eyes red. He came to me and at first it wasn’t real. I sank into him and we both cried into each other. It was painful and beautiful, how close we were. We both just sobbed, raw.

The weird thing is that I haven’t broken down since then. I’ve cried here and there, but for some reason I’ve been determined to not loose control of my emotions. So like I said before, I stayed busy to try and keep my mind away from it. I haven’t felt angry at God, just lost and alone. I feel like I’ve realized for the first time that maybe I’m not as important in God’s Great Plan as I thought I was. Maybe there’s no plan at all.

I had already made up in my mind, before we got the news, that I would not be doing IVF again after this cycle. This cycle was painful and stressful and awful, and I felt like vomiting at the thought of sticking myself with a needle one more time. But after, Bobby was crying, and he told me he was trying to come to grips with the fact that he would never be a father again. We talked forever about adoption and donor sperm, and he knows that being a father doesn’t have anything to do with genes but I don’t think he believes it. He’s truly mourning the loss of a biological connection, of offspring, not of fatherhood. And I realized that I can’t hold him back from that. If he’s willing to go through the surgery again, then I owe it to him to try again.

We’ve got enough money to try one more time. We had the post-op consult with the doctor last week and he said Bobby needed to wait 6-12 months so his testicles could heal. We’re going to wait until next summer, when school’s out, so at least I won’t have the unbelievable stress of doing a long distance cycle during the school year again. And there’s a chance we may be able to cycle here instead of going down south if Bobby’s doctor really does move his office further north. So there’s that.

Bobby and I have decided that adoption isn’t for us. We only have enough money for one more IVF cycle, not even enough for an adoption. We’ve decided that if it doesn’t work again, we’ll use donor sperm. But we’re going to try one more time. And now the hardest part is just the waiting. I’m back to being angry at every Facebook post about new babies, which are even more prevalent now than they were when we were first diagnosed three years ago. Back to crying in the baby aisle in Target. Back to trying not to look at the spare bedroom that’s supposed to be painted yellow.

I don’t know how to heal from this. I have Evan, and I love him so much, and he makes me so happy. His laugh feels so good. But he keeps catching me in the kitchen, crying. His little hugs are so precious, but they only make me want another baby even more. The next cycle is just staring me down like a black hole at the end of a tunnel, and I’m trudging toward it. I’m afraid that a fourth failure will completely destroy me. And now I have eight months to fear that reality.

Bobby told me today that maybe I need to see a counselor. Maybe he’s right. I’ve never felt so sad in my life. And I keep trying to tell myself, it’s not that bad. We haven’t lost anything but money and time, and that doesn’t matter. There are tons of people who never get to try at all, and at least we found sperm. At least we were in the game, and we played our hearts out and left everything on the field. There are people starving, people being bombed, people in labor camps. My problems are miniscule, I shouldn’t be this whiny. But we have lost something. There were two babies inside of me for a few days. I saw their picture and I fell in love with them. It was an accident, I didn’t mean to. But I prayed for them at church last weekend on All Saints Day. I wonder what they could have been like.

I can’t let myself go down into that rabbit hole. I may never come back out of it.

This weekend we have a getaway planned. Evan is going to his grandparents’ and we are going to stay for a night at a spa. We’ll go out to dinner, but no partying, We just need to rest and be together. To talk without a two year old crying and interrupting every freaking word we try to say. And rest. Rest. Rest. Maybe I’ll figure out how to let go of this pain and just let it be.

Step one was finally writing this post.

Negative.

We are devastated. There are no words.

It is what it is.

That’s really the best title I could think of for this post. “Exist and persist” is still my motto right now. Let me bring you up to speed.

Recovery from my retrieval was much rockier than it was last time. Before, I went to the hospital with Bobby and my friend who stayed with me the entire time. When we came home, we were put to bed and slept blissfully away as our friends took care of picking up our prescriptions and getting us soup. After they left, we were on our own. I remember gingerly moving between the couch and the kitchen, refilling Bobby’s ice and getting drinks and snacks. After a day or so, I was fine. This time, I have been in a lot of pain. After the swelling in my stomach went down, I had a lot of intense pain in my bum from the PIO shots. Then on Monday, I woke up with a strong pain in my right hip, right about where my hip flexor is. By the end of the day, I was in a lot of pain, and I slept horribly because I couldn’t sleep on my back or sides due to the PIO pain, and not on my stomach because I couldn’t straighten my leg. I was definitely not well rested for retrieval day.

After last Thursday’s egg retrieval, we ended up with 5 embryos. Only 2 ended up making it to blastocyst stage, and so on Tuesday, we transferred them both – one A/B and one B/B.  Bobby had a massive panic attack sitting in the preop area waiting for my transfer. He had instant visions of two cribs, a mini van, two daycare payments, two college tuitions. Our doctor told us that in his experience, people who transfer two blasts generally conceive twins about 20% of the time. So we decided to go all in. No guarantee that the second embryo would make it to freeze. And last time for our frozen transfer, only 1 of the 3 blasts in our straw were successfully thawed. So we rolled the dice and did both.

The transfer was as uncomfortable as I remembered it last time. My bladder was SO FULL that I actually went to the bathroom THREE times before the actual procedure and STILL was uncomfortable, filled a bedpan when the procedure was done, AND went to the bathroom before leaving. They told me to drink 20 oz of water at 8am, but I guess I should have taken into account that my bladder, being a small person, is proportionally smaller than the average woman.

After the transfer, I have been crampy and achy. I spent the whole day in bed. My abdomen was crampy, my butt hurts, I’m bloated and constipated, and that hip thing was still bugging me. The doctor said my ovary was probably inflamed from being poked and refilling with fluid. I drove Bobby and I home the next day and left Evan with my parents, and we’ve been home alone ever since. I’m not crampy so much any more, just little twinges here and there. Butt still hurts like hell, hip is not as bad. I miss Evan like crazy. We Face Time every night and he is such a ham on the camera, it almost makes me miss him more. Being home without him here feels empty and boring. I’ve been doing a lot of work for school and catching up on grading, but I’m antsy. I didn’t go back to work at all this week, so I’ve just been lying on the couch. My doctor says 5 days of pelvic rest, so no cleaning, no laundry, no errands. I do not do well with sitting still. Not at all.

So, it is what it is. I’m doing my best not to think about pregnancy symptoms, just focusing on work and missing Evan and spending time with Bobby. We went out to dinner, tomorrow we’ll go see a matinee. And, that’s it. We’re just waiting. By this time next week, we’ll know. And one way or another, this miserable journey will be over and we can move on. I’m ready.

Fertilization Report

6 eggs retrieved, 5 mature.

Exactly 5 sperm. Holy cow.

3 eggs fertilized normally, 2 eggs are still “maybe.”

It’s a far cry from the 21 eggs I had retrieved during my first cycle, but it seems we didn’t need that many. So far I’ve been praying for strength and hope. Today I get to pray for 5 little lives that are sitting in a petri dish across town.

Bobby’s recover is still rocky. His pain meds weren’t cutting it, so I had to drive two hours back to his doctor’s office to pick up another prescription because narcotics can’t be called in. Now that he’s on the new meds, his pain is more controlled, but he’s nauseous every time he stands up. My dad went out and bought him a cane, so that’s helping him get back and forth between the bed and the couch for a change of scenery.

Despite his pain, though, he spent most of yesterday trying to find things he could do to help me feel better. My egg retrieval was MUCH more painful than I remember it being the first time around. The nurse said I woke up writhing like a worm, so much so that I popped out my IV and leaked blood everywhere. She said that in the OR, they woke me up and said “Ok Dory, let’s move over into the bed.” And I sat myself straight up, then dive bombed headfirst into the bed. Of course I don’t remember any of that! When I really did become aware, I was in a lot of pain. It took several pushes of pain meds before I could be comfortable. Then I had trouble getting up because my blood pressure kept tanking. But the good news is the anesthesiologist gave me nausea medicine before I even woke up, so I never barfed. Last time I was stuck in recover for hours because I couldn’t stop throwing up.

After I got home, I was still in a lot of pain. My stomach bloated up so I looked about 3 months pregnant, and it pushed up on my ribs, making it hard to breathe. So Bobby and I spent the whole day in bed, watching movies. Poor Evan had a very hard time dealing with the fact that both mommy and daddy were not playing with him. But my step mom has been doing a great job taking care of both him and us.

First PIO shot was last night. Not as painful as the trigger, pretty uneventful. I got a prescription for EMLA cream, which I didn’t think made a noticeable difference. Maybe I didn’t apply it properly. I also took my first Lovenox injection, which was quite uncomfortable. Tonight I might try injecting in my thigh rather than my stomach.

We’ll see how those embies are doing tomorrow!

We have sperm!

Yesterday was a long, exhausting day, but at the end of it, we had good news: sperm! Only a few, but it’s enough. I haven’t heard an exact number yet, but when the doctor went in to talk to Bobby, they already had 4. At this time during our first mTESE, the doctor told us we had nothing. So to start out with 4 is good. And 4 may be all we need.

Bobby is in a lot of pain. It took a long time for him to be released because it took a lot of medication to get his pain under control, and he had to be able to pee before he could leave.  Then we had an hour drive to get back to my parents’ house. Thankfully the nurse helped him out with some extra meds before he left so he was able to sleep relatively comfortably for the whole drive. I need to call the doctor to see if we can get his meds switched around, because what he’s on is not enough.

I am doing my best to keep him comfortable. It’s a lot of work to be a nurse! I don’t remember doing this much last time, probably because I had just had my egg retrieval and wasn’t able to move around as much. I’m running back and forth to the kitchen constantly for more ice, more gatoraide, more toast, more ice, more ice, MORE ICE! The poor guy is really in for it, and I’m trying to do as much as I can for him. I am so grateful to him for making this huge sacrifice for us. I hope it turns out to be worth it.

I triggered last night. The instructions say to use a 25g needle, but the pharmacy sent 22g. So it HURT LIKE HELL. Of course, Bobby was out of commission, and both of my parents refused to give me the shot. I can’t say I really blame them, but still. Really? So thankfully my stepbrother’s partner is a surgical assistant, and he came over to give me the shot.

Yesterday, I felt depressed and worried. I was wholly prepared for bad news, and was really trying not to get my hopes up. I am still not 100% carefree, because there are still a lot of unknowns. But for the first time since I started meds in August, I feel like we are in the game. We have a chance, and I mostly feel grateful that we can even try.

Retrieval is tomorrow. Keep us in your prayers!

My Reason To Hope

Bobby’s surgery is in a few hours. My trigger shot has been delayed pending more blood work today. I am a nervous wreck. I need a reminder this morning of the hope I have.

“Hope” is the thing with feathers—
That perches in the soul—
And sings the tune without the words—
And never stops—at all—

And sweetest—in the Gale—is heard—
And sore must be the storm—
That could abash the little Bird
That kept so many warm—

I’ve heard it in the chillest land—
And on the strangest Sea—
Yet, never, in Extremity,
It asked a crumb—of Me.

– Emily Dickinson

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Stims

I started stims on Saturday. This cycle is very different than my first; being at a different doctor is weird. Instead of taking all my meds at night, I take Lupron and Menopur in the morning and Gonal-F at night. It’s a little more hectic having to mix medication in the morning, and the night time shot is between 6-8pm, which is after Bobby goes to work. I am so grateful to myself that I learned how to administer the shots to myself. It has been such a relief in the scheduling department, and has given me a piece of control over this process. And in the mornings, when Evan is demanding grapes or a snuggle or music or whatever else a two year old demands, I can tell Bobby to just go ahead with him and I’ll do the shots myself.

Oh, Evan. His presence has drastically changed this experience from last time. For a while we were able to set him up with a snack in the living room or the iPad and he’d leave us alone while we did injections. But now, he wants to see what’s going on. And there’s no way to tell him to go away. So he comes in and watches. Which means that when it hurts, I can’t react, or he’ll get scared. Saturday he came in and we weren’t paying attention, and he grabbed the filled needle off the bedside table. Both Bobby and I lunged at him so fast that he screamed, and then we had a hysterical baby that had to be ignored while we finished up the shots really fast.

I am so grateful to my principal and coworkers who are covering my classes and helping me schedule so I can go to my monitoring appointments in the morning. That’s another difference – for some reason, my first cycle had all my appointments at 7:30. Now, they can’t see me until 8:45. I guess the doctor just doesn’t keep early hours any more. But it sucks because school starts at 8:20. So I have to find coverage for first and part of second period. Just one more sacrifice in this giant cesspool of stress and worry. But everybody has been so supportive and helpful, so we’re getting through it.

I read this in a book last weekend: We just have to exist and persist. Very true.

That’s all for now. One week from tomorrow, Bobby will be under the knife. He is getting nervous, but he is holding it together much better than I am.

Step One: find sperm. Pray for us.

Hard.

Anxiety creeping in

The stress of the last few weeks has died down. There’s nothing much to do right now except take my Lupron each morning, a few supplements, and my aspirin. Everything’s paid, everything’s scheduled. Now we’re just waiting.

And in the space left behind by my stress, anxiety is creeping in.

What if they don’t find sperm?

What if I hyperstimulate and the calendar gets changed, and my carefully laid plans for childcare and substitute coverage are thrown against the rocks?

What if it doesn’t work.

Oh, God.

I’m thinking back to the FET in June, and how torn apart I was after the negative pregnancy test. How raw I was for days. I can’t handle this again. I can’t. Especially because now, there is the definitive end after this cycle. Unless there are frozen embryos, we are done. With our remaining pocket of money, our next step will be to pursue adoption.

If this doesn’t work, I will have lost my last chance to have another biological child. To be pregnant again. To deliver a baby. To nurse.

Can I live with that loss? I don’t know. How will I react to another failure? We’ll receive the beta test on Friday afternoon, and Bobby is working that weekend. Can I stay home alone with E for three days while I wallow in misery? Will I be capable of caring for him? Last time, I stayed in the bedroom for the whole evening, numb. Then I cleaned and ignored my baby on the living room floor, playing with his cars, because I just had to move. And every time I looked at him, I saw my second child that I would never have.

Will I be able to go to work on that following Monday? Can I handle the other pregnant teachers at school, the 130 teenagers and their attitudes and hormones and frustrations who fill my classroom each day and drive me insane?

I have so many reasons to hope. And so many reasons to be afraid. I wish that wanting something badly enough would just make it happen.

But if that were true, I would be pregnant already, and $40,000 richer.

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