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Welcome to your IgAN family.

Whether you or someone you love has been diagnosed with IgA Nephropathy, you have come to the right place. You are not alone.
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SUPPORT GROUPS

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By patients, for patients

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The IgA Nephropathy Foundation’s mission is to be a patient-centric organization focused on finding a cure for IgA Nephropathy. Using the power of the patient community, we are focused on funding research, using patient advocacy to empower our patients, and building a network of support.

Latest News & Resources About IgAN

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Ambassador Program

The IgA Nephropathy Foundation Ambassador Program will bring together and train a select group of inspired patients and caregivers.

Ambassador Program
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Guides & Fact Sheets

Use this guide to learn more about IgA Nephropathy, including common tests used to check your kidney health, what to look for and expect at different stages, and various treatment options.

Guides & Fact Sheets
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International IgAN Network

Learn more about the International IgA Nephropathy Network. For Clinicians and Patients with IgA Nephropathy.

More About IIgANN
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IgAN Care

IgANCare is a nephrology provider finder for patients with IgAN. If your provider is not on this list, you can encourage your provider to join. You can also nominate a provider for IgANCare!

IGAN Care
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“Knowing you’re not alone is very powerful. So is knowing it’s not fully out of my control and I can take steps every day to help.”

CHRIS

IgA Nephropathy Facts

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What is IgA Nephropathy?

IgA Nephropathy (IgAN) is a rare, autoimmune disease that attacks the kidneys. It affects how blood is filtered in the small blood vessels of the kidneys. IgAN occurs when an abnormal protein damages the filtering unit (glomerulus) inside the kidneys. It is estimated that 20-40% of the people who have IgAN will develop end-stage kidney disease, which means they will need dialysis or kidney transplantation to survive.

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How is IgA Nephropathy Diagnosed?

The first sign of IgAN is often blood in the urine. Should this occur, you should immediately consult your doctor.

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How is IgA Nephropathy Treated?

There is no current cure for IgAN and that is why the IgA Nephropathy Foundation was founded.

Explore More FAQ’s

Faces of IgA Nephropathy

Our mission is to be a patient-centric organization focused on finding a cure for IgA Nephropathy. Using the power of the patient community we are focused on funding research, using patient advocacy to empower our patients, and building a network of support.As a patient run organization, we will work together with the hope of finding better treatment options and ultimate cure. By patients, for patients.

What is IgA Nephropathy and How Does It Affect Your Kidneys?

IgAN occurs when abnormal antibody immunoglobulin A’s (IgA) are produced. The exact reason why Abnormal IgA’s are produced is unclear, but genetic factors likely play an important role. The body produces other antibodies (IgG) to attack the IgA antibodies that it no longer recognizes as ‘self’.

The IgG antibodies form a complex with the abnormal IgA antibodies and this complex often gets trapped at sites of filtration, specifically the kidneys. As a result, the body’s immune system attacks the abnormal IgA antibodies in the kidney, and affects the kidney’s ability to filter the wastes from your blood and produce healthy urine.

Take the Risk Quiz Find a Nearby Kidney Screening

Latest From The IgAN Foundation

The IgAN Blog

Understanding Potassium Balance

November 19, 2025

Understanding Potassium Balance: A Dietary Guide for IgA Nephropathy Patients

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Lauren Levy – MS, RDN, CSR, FNKF

Introduction IgA Nephropathy (IgAN) is an autoimmune form of kidney disease where IgA immune complexes …

November 7, 2025

IgA Nephropathy Foundation Recognized for Leadership and Research Excellence at ASN Kidney Week 2025

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Gisela

Bonnie Schneider delivers keynote at ASN Kidney Week 2025 as Foundation debuts first research poster …
Plant-Based Diet Strategies for Managing IgA Nephropathy

November 4, 2025

Plant-Based Diet Strategies for Managing IgA Nephropathy: A Comprehensive Guide

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Lauren Levy – MS, RDN, CSR, FNKF

Introduction IgA Nephropathy (IgAN) is an autoimmune disease that damages the kidneys. Nutrition plays a …
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October 12, 2025

Snacking Smart with IGA Nephropathy: Healthy Between-Meal Options

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Lauren Levy – MS, RDN, CSR, FNKF

Having a snack when you have IgA Nephropathy can feel overwhelming because often times snacks are loaded with salt, sugar, and empty calories. Snacks instead should be a way to support your energy, refuel your body mid-day or after a workout, and prevent overeating. In this article, we will review what makes a “smart” snack, when to snack, and types of snacks to support your kidneys and overall health. 

August 25, 2025

Danielson to advance IgA Nephropathy awareness across Iowa—and abroad

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The IgAN Team

When diagnosed with a rare disease, patients can find hope by connecting with people who …
A meal plan for a week on a white table among products for cooking - pastas, basil, vegetables, lime, seeds, nuts and spices. Top view, flat lay, copyspace

August 14, 2025

Budget-Friendly, Kidney-Healthy Meal Planning: A Cost-Effective Guide for IgA Nephropathy

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Lauren Levy – MS, RDN, CSR, FNKF

Introduction Following a kidney-friendly diet for IgA Nephropathy (IgAN) can be challenging, especially if you …
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December 9, 2025

Plant-Based Lemon Squares

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Cukebook.org – Culinary Nutrition for Kidneys

Vegetable Lasagna w. Tofu Riccotta

November 5, 2025

Roasted Vegetable Lasagna With Tofu Riccota

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Cukebook.org – Culinary Nutrition for Kidneys

Buddha Bowl With Roasted Chickpeas and Quinoa

October 27, 2025

Buddha Bowl w. Quinoa, Roasted Chickpeas, Kale, & Tahini Dressing

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Cukebook.org – Culinary Nutrition for Kidneys

Rice and Lentil Pilaf with Roasted Vegetables

October 1, 2025

Rice and Lentil Pilaf with Roasted Vegetables: An IgAN-Friendly Recipe

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Cukebook.org – Culinary Nutrition for Kidneys

Rice And Lentil Pilaf With Roasted Vegetables
Vegetable Stir-Fry With Noodles & Cashews

August 27, 2025

Simple Vegetable Stir-Fry With Noodles

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Cukebook.org – Culinary Nutrition for Kidneys

This kidney-friendly recipe features slurpable rice noodles tossed with colorful, low-potassium veggies like carrots, bell peppers, and broccoli, in a light stir-fry sauce. Perfect for IgA Nephropathy management, it’s low in sodium and phosphorus while bursting with flavors—ready in under 30 minutes for a nutritious meal.
Roasted Sweet Potato & Black Bean Bowl

July 10, 2025

Roasted Sweet Potato & Black Bean Bowl

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Cukebook.org – Culinary Nutrition for Kidneys

This vibrant and flavorful bowl is a great option for a kidney-friendly diet. It’s packed with plant-based protein, fiber, and healthy fats, with a delicious creamy avocado sauce to tie it all together.
View More From Our Blog
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References

  • Hall, Y.N., Fuentes, E.F., Chertow, G.M. et al. Race/ethnicity and disease severity in IgA nephropathy. BMC Nephrol 5, 10 (2004). https://doi.org/10.1186/1471-2369-5-10
  • Kiryluk K, Li Y, Sanna-Cherchi S, Rohanizadegan M, Suzuki H, et al. (2012) Geographic Differences in Genetic Susceptibility to IgA Nephropathy: GWAS Replication Study and Geospatial Risk Analysis. PLoS Genet 8(6): e1002765. doi:10.1371/journal.pgen.1002765
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