Update

I am going to do a quick update an then post some pictures in the next day or so. I know I am horrible at updates, but since Tyson just turned 7 months I figured it was time.

Mayson is officially potty trained, this happened about a month after we brought Tyson home. and it happened when we finally backed off and let him do it on his own. (with a few incentives of course) He is growing so big and is all boy, his favorite things right now are Toy Story 1 and 2, playing outside on his new swing set daddy made for him, and riding on daddy's new motor cycle. Which brings me to my story of Saturday the 24th of March. We were all outside playing, and Justin just got home from work, and parked his motorcycle on the back porch with the intention of taking Mayson on a ride a little bit later. Mayson kept trying to climb on it, and we kept telling him not to. I go in the garage to get some chicken nuggets out of the deep freeze and Justin went in the garage to grab something, then all of a sudden we heard a crash then a scream, we run out back only to find Mayson pinned under Justin's motorcycle, Justin picks up the motorcycle and I pick up Mayson to see blood dripping down his head. Justin takes him in to the bathroom then goes to grab his first aid bag and I look to see what the damages were. I knew as soon as I saw it that it would need stitches. We rush to the ER and wait for about an hour before we finally got to go back where the Doctor said he would need stitches. I will post pictures of this.

Tyson is getting so big and is doing so well with all that he is doing. He is using his hands more and more every day, which makes me so happy since we didn't know how much he would be able to use them. It is so fun to watch him try and figure thing out and do things on his own. He Is starting to roll over mostly just from back to stomach, he is still trying to figure out how to roll from stomach to back. his hand seems to get stuck under him when he tries to roll back. He is also sitting up by himself, he still a little wobbly but he can stay up for a pretty long time. We just got his platelets tested about a week ago and they came back at 46000 which is so good because we want them to be up around 50000.

Justin is working as a nurse on the progressive care unit at Utah Valley. He is also just enjoying his new motorcycle, and loves being outside working on our work in progress of a yard, when it's warm enough. He is also getting ready to run a 5K in a couple of weeks.

I am still trying to get used to being a stay at home mom, it has definitely been an adjustment from working to not working at all. I love that I am home with my boys, I just have to figure out how to keep my 3 year old entertained, because he gets so board sometimes. We have a few activities through out the week that we do enjoy, but I am always up for more ideas. I am so excited to be getting him into Preschool in the fall, and I am way excited for summer so that we can be outside more.

I will go through my pictures and post some soon.

Home!!!

After telling us we may not be able to go home, the Nurse practitioner came in yesterday morning all happy and cherry like she was the hero and told us we would be able to go home, the doctors weren't to happy with his numbers but she convinced them to let us go home. I asked her if we had echo-cardiogram results back yet and all she told us is we will have to follow up with cardiology in 6 months. Frustrating!!!!!

We got home around 3:30 yesterday. Mayson has been the biggest help, he calls Tyson his little buddy, singing songs to him and sharing his blanket and stuffed animals, which when we asked him 2 weeks ago if he was going to share, Mayson said NO! Mayson woke up today at 5:00 am wanting to see his little buddy. While breast feeding today, Mayson asked Kellie if Tyson was eating from her bellybutton :)

Tyson is doing well. He is eating like a champ, and pooping a ton getting rid of all that billirubin. We will go to the doctor tomorrow for a follow up appointment.

We are so grateful for all of you, for the love and support that we have received. Mayson was well taken care of while we were away and we never had to worry about him. After this first day of being home with Mayson, if any body wants to watch him, he is available to be babysat :)

Inconsistatcy!!!

Every day since Tyson was born rounds have been about 10:00. We showed up at the hospital today at 8:30 this morning to be sure to catch the doctor during rounds and get questions answered. We waited around till 11:30 and no doctors. We left the hospital to get some lunch and allow Kellie to get some rest at the hotel. We returned to the hospital at 3:30 to talk to the nurse practitioner, only to get the run around. No Echo-cardiogram results after 9 hours of being completed.....huh???? How is that possible, Why was the test done then if no one is concerned about any results? Then we were told yesterday Tyson was eating well and meeting his minimum intake each day, now we are being told he is not meeting his requirements and may have to stay an additional day. We were also told that Orthopedics was notified of Tyson being in the hospital and they would just see us in 6 months. Well today Orthopedics rounded on Tyson and who knows what they want to do now because no one is giving us consistent info. To sum it all up, we don't know when Tyson will be going home, we cant get answers from anybody today. Hopefully the night shift will bring better results!

Almost Home!

After spending all day with Tyson Kellie got discharged from the U yesterday round 4:00 pm after the doctor took out her staples from her incision and discovered a small hematoma about two inches wide and an inch deep, which was not allowing the incision to close. After cloterizing it with a Nitro stick they packed it with gauze. I will be her nurse now, responsible for repacking it twice a day.

Tyson is doing awesome. His Platelet count dropped yesterday to 49,000 and today it is 56,000. His Bilirubin was elevated yesterday to 16 and an additional light was added, today he has come down to 9, NO MORE LIGHTS :) Blood cultures have showed no growth since he was borne allowing the IV to be taken out, since there are no signs of infection. He is eating well and has been awake for us all morning long, giving us smile and moving his head just like his older brother did this young.

The plan from here is to redo an Echo-cardiogram tomorrow for any signs of narrowing of the aorta which can be associated with TAR's, the one performed at birth was negative. The reason for the repeat is because now the PFO (hole in every babies heart when borne) will be closed and the ductis arteriosum (blood vessel that bypasses the blood from the lungs in all fetuses) will both be closed and they will be able to know for sure that his heart is ok.

If the Echo is negative and blood work of Tuesday is normal, we will be ON OUR WAY HOME!! They did an ultrasound of his kidneys (which can also be affected by TAR's) and that was negative for any defects.

Thank you, and we love all of you who have been praying for our behalf, this has truly been the most humbling time for us, and it is all of you that has helped us make it this far!

Moving in the right direction!

Platelets are up from 36,000 yesterday to 50,000 today, moving in the right direction. However, his bilirubin has increased from 12 to 16. An additional bili light was added and scheduled feeding have been ordered. If his bilirubin dose not come down then a feeding tube may have to be placed. We will continue to pray for the best.

Mayson and Tyson

72 hours old

In the past 24 hours, 3 IV have been started on Tyson. Our RN told us it is common that IV's need to be started that often. Because Tyson's arms, they cannot use them for IV's so they have been using his head, feet and legs. We were just told this morning that all of his veins have been used and next step will be a PICC line and the only way to get the PICC line in is to go to surgery. Our RN advised us not to hold him as much today and for Kellie not to breast feed him to just pump and feed him from a bottle to help keep this last IV in. It will be tough to go visit him and just look at him, not being able to hold him but if that is what its going to take so we can take him home on Tuesday then I guess we will have to suffer now. The Geneticist visited with us today and is going to be more involved. He told us in his 37 years of practice this is his 3rd or 4th time seeing TAR's. He will be contacting the Orthopedic docs for us also. Still no word on his platelet count today, but we are anxiously awaiting.