It’s kind of crazy to think that we are now 7 months post diagnosis. Where has the time gone? So, what has gone on here with us the last month or so, not much. Probably the most exciting thing is that I got official word, with two other doctors looking at J’s MRI scan and there are definitely no tumors in his brain, brain stem or spine. The spots we were worried about are just spots of demyelination , or spots that are under developed. The good thing is that they will continue to develop and hopefully the things he is still behind on will be able to be caught up. This also means at unless something major changes, J won’t need a repeat MRI for a couple of years.

Honestly, this is such a relief for to me. Knowing that there are no optic gliomas (tumors on the optic nerves), no tumors that would affect his motor function or his cognitive development, is honestly such a huge sigh of relief. God is good. Prayers for J that have been coming through have been really helpful. I’m blessed that things are not as bad as they could be.

Things coming in the future, calling down to St. Jude and back to focusing on homeschool. Keep praying for now. One thing I’ve seen with this disorder is that things can shift at any point and without notice. The goal for the next year is to only have good report and health for J. In a few short months we will have the Great Steps for NF walk in Naperville again. Fundraising will begin in a little while for that . My friend, E and I are teaming up again this year and I’m so excited. It’ll be great to see what our team can raise for NF research.

Until next time…