So, How have things been going?  It’s been a while since you’ve updated…yes friends, I know.  Life has been a little crazy, kind of like usual.

So, we left off with a recap of what the year was like from the time J was diagnosed.  Well, we’re still working on school.  We’ve pretty much been focusing on handwriting, language, letters and sounds (phonics…bleh), math, bible memory and speech (with Mrs. N). At this point, science and history have pretty much gone by the wayside, but that’s alright.  We’re in our first year and seeing as learning how to read and write well are really important to me, we’re running with it. J loves school. He loves it so much that it’s not uncommon for him to ask to work on homework on a Sunday afternoon after church.  I am seriously blessed.

Where are we with therapy stuff…we are doing speech through the school district with Mrs. N. She’s awesome.  I’m so grateful for her. I’m grateful that on Thursday mornings that I can drop J off at the school and come back home to do things like, make and eat breakfast or even get a quick shower before we need to be back to get J. C and A are doing pretty well with things. As for physical therapy and occupational therapy, well, we still aren’t doing anything again.  I’m going to be sending an email off to the senior physical therapist at Shriner’s and see if we can start getting at least PT there.  I would love to be able to do both there, but I will  be thrilled if we can get one. We have a followup with Dr. A at the end of March.

What will having therapy there mean…well, traveling a little bit to get there. Honestly, I’m ok with that.  Starting in the fall we will be doing home school for each of the kids. It’ll also mean that traveling to Shriner’s won’t be a problem.  There won’t be a need to pull C from school so we can go and not have issue trying to get him back to school, or picking him up.  It’ll also give us the ability to have change in environment. It’ll be fun, because while J is in doing his therapy, I can be doing things with C and A downstairs.

What are things you can be praying for us? Well, that the desire for doing good school work would continue.  That J would take his time when he is writing and for me to have patience with him when he doesn’t.  Also for J to grow stronger.  One of the side effects (of sorts) of NF is low muscle tone.  Pray I can find new opportunities for J to be able to add strength and build new muscles and things not be expensive. Also be praying that we are able to fund the KinderyCarry Preschool Plus Size carrier we need for him. J really enjoys going up on my back, especially at church.  His birthday is coming up next month, and I’m really really hoping to be able to have enough birthday money given to him so that we can get this for him.  We’ve asked friends who normally give him gifts to consider giving money towards this carrier. I’m asking only for prayer for this to be accomplished.  If anyone feels the desire to help us reach this goal, I have a paypal account that funds can be sent to as that is how I will be paying for it.

So, well, there you go friends, an update on how things are going here.  Overall, not too bad.