My posts about Leigh’s MS are mostly password protected, mainly because while they are my thoughts, it is her disease and I want her to have control over what she shares with people she knows. So, really, the password is there to ensure people we know in real life are not reading information leigh doesn’t want to share, unless she actively chooses to share it. I’m actually fairly comfortable knowing the posts are being read by people we don’t encounter in our daily lives.
A lot of people who come here are looking for information on MS. I remember when Leigh was first diagnosed how desperately I wanted to read about real life experiences. I didn’t want the statistics or the testimonials or the drug companies’ own spiels on what their medications did. I wanted to know how actual people dealt with this thing, from symptoms to side effects to dealing with the grief of it all.
I wanted to know HOW people decided what to do next and WHY they chose one direction over another. And I wanted to see that they got on with life and managed and coped.
I didn’t just want that stuff. I needed it.
So if you’re reading this and you need it too, please email me for the password. [email protected]