I am trying not to be scared. I'm really trying. However, I am scared. Very scared.
I have been trying so hard the last few months to gain weight, as I mentioned in an earlier post. I've been working out like the transplant docs want and my sugars have been kick ass.
And then this morning happened.
Last week I weighed 106-107. Today I weigh 101lbs. That's severe weight loss in a short amount of time, especially for a CF'er. I never weighed that in my life - except in the ICU. I'm terrified.
There are other symptoms that I've kind of ignored I guess, not intentionally, but I just don't like to make big deals about what could be nothing. Things with my digestion haven't been right for probably 1 month, but it's been a slow progression so it's not something that I really worried about. I figured it would straighten itself out.
I've reached my CF clinic and as it's 1.5 hours away and we had a snow storm here, I can't get there. They're sending me to a local hospital for chest and stomach x-rays and sending an antibiotic down via bus. They'll read the x-ray in Halifax and call me with the news.
Gawd, I'm sooo scared. Someone tell me not to be scared. Please.
I'm scared for a number of reasons:
1) such severe weight loss in such a short time 2) leaves me more susceptible to infection 3) lack of reserve if i get sick 4) I am now too underweight to be accepted for transplant
I know I shouldn't worry until we find out what's wrong, but very few people understand how hard it is for me to gain weight. I am 5'6 and now only weigh 101 lbs. The only other times I've lost weight like this was when I have been really sick.
Lung-wise I feel the same as before.
Ok, this is nuts. I am going to think positive and hope for the best. It's probably something simple right? No biggie.
We do have coverage. Our CF meds are still covered and there is another program that covers our anti-rejection meds. The transplant team requires you to prove that you have coverage or they won't…
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Sending good thoughts and prayers your way as…