Update on Randy

A quick update on  Randy...got a call from the vascular surgeon's office this afternoon saying they've changed his surgery date AGAIN  from November 5 to November 8.  This whole mess is so bizarre, and I don't know what to do with my anger, fear, and loss of all trust in this doctor.  Randy is totally resistant to going to another doctor.

The Passage of Months

From March through today has been full of challenges, mostly for my husband, who has a rare vascular autoimmune disease which has been progressing for about 4 years now.  Their best medical guess is Giant Cell Arteritis and Polymyalgia Rheumatica, or worse, Wegeners Disease.  They all have similar or overlapping symptoms.  There seems to be a new issue every day or two that we have to deal with. Scary, scary shit.

This year has been particularly challenging as he was also diagnosed with an abdominal aortic aneurysm which doesn't have normal parameters and is getting close to a size that would be in danger of rupturing.  The surgery, which is a 6 to 7 hour ordeal even without complications,  has been scheduled twice now, and then canceled by the doctor for varying reasons.  The surgery is now back on for November 5.  However,  his health is so precarious due to the autoimmune disease that the surgery scares me to death for him, and I struggle every day to hold myself together, and to keep him up, both mentally and physically.  He really has no choice but to go through with the surgery.   Where we live is a difficult place to be with serious health issues and heading into the Winter months.  We live in an isolated place prone to power outages and road blocks from downed trees during winds, or heavy rains, or snow, as Winter deepens.  And there will be numerous follow-up appointments.

I miss my blog, and the blogging community , so I've decided to try to record our journey here.  I am relatively healthy, thank goodness , and Marlee is my constant little sidekick.