The surgical biopsy was Thursday, 11/5. I learned that Lyrica + anesthesia = me singing sweet versions of Kryptonite and You Raise Me Up on the operating table. I told a hilarious joke too, or at least that's what they said: two atoms walked down the road...something something lost an electron...are you sure...I'm positive...
I don't remember any of it. But it's good to be popular in the OR.
The surgeon tried to excise one lymph node on my left upper chest, but he realized it was a muscle mass (HULK SMASH!). So he went in the right side of my neck instead to grab what he needed. Surgery took 1.5 hours, and I've had some unfortunate nerve issues as side effects, but what can you do.
After a few days of waiting and healing, we finally got the biopsy results.
I have Diffuse Large B-Cell Lymphoma (DLBCL), which is a kind of Non-Hodgkin's Lymphoma (NHL). It hurts to hear it, but it is the same kind that the doctor thought it was initially, so there were no surprises. It's Stage IIA, which means it's in a couple of places (mainly my neck and behind my sternum), but it hasn't spread to other areas of the body. I've also had no symptoms, so the doctor is optimistic at a great response to treatment.
Here's this week's plan:
- Tue 11/10 - "Teaching" - talk through treatment, medications, side effects, therapies, etc. with the nurses.
- Wed 11/11 - Early morning outpatient surgery to place a port (under the skin, tapped into the vein so chemo flows freely...Liz and I will be port buddies!). I'll prepare some new tunes for the OR.
- Thu 11/12 - Chemotherapy starts at 8am. Then one treatment day, every 3 weeks, for 6 treatments.
- Fri 11/13 - Echocardiogram of the heart to get a good baseline for future comparison.
I'll likely feel sick a few days after each treatment, then 10-14 days after each treatment my white blood cell counts will drop, so we must avoid infections. (Please wear a mask for your cancer friends!) That's also when I might start losing my hair. Plus...Liz has her regularly scheduled chemo treatment on Tue 11/17 (maintenance infusions, forever...because they work!). That takes her out for 2-3 days.
Ever plan chemo for two parents at once? Not cool.
This will be quite a ride.
The treatment plan will take us through mid-March: through Thanksgiving, my birthday, Christmas, New Year's, our oldest son's birthday, almost up to Liz's and our middle child's birthdays...
2020 is the gift that keeps on giving.
We're getting ready the best we can. But for today: we will play hooky from school, setup a theater in the living room, watch a movie and have popcorn in the middle of the day, go on a hike, jump on the trampoline, have an Xbox party, and throw the football around. The harsh realities start tomorrow.
Today, we enjoy life.
Message From Liz:
First and foremost, thank you thank you for all of your thoughts, prayers and well wishes for Aaron and our family. In a previous post from years ago, we referred to one of my cancer hiccups as a "life-altering speed bump." Well, if that was a speed bump, then this is a randomly placed curve in the road with a sharp decline and stop sign at the bottom. I constantly feel like I am a waiter balancing the plates of cancer, cancer, cooking, cleaning, laundry, homeschool, kid appointments/activities, and overall life happiness. Whew! Somehow, we all make it to the end of the meal each day to start again the next day.
Many of you near and far have asked what you can do to help us balance the plates during this time. Our doctors have warned us to be extremely careful because Covid and cancer don't mix well, so traditional meal trains or dinners being dropped off isn't going to be an option at this time. With all that being said, for those that would like to help gift cards to Instacart, Target, Amazon, Chick-fil-A, Sonic, Chipotle, Costco, Grubhub, Whole Foods, Trader Joes, and house cleaners would be best for groceries, restaurants, and other household needs.
For those asking what they can do for our kiddos: special gift cards to Target, Amazon, Chick-fil-A, and Sonic just for them would be a treat. Or care packages and letters tailored to them would be amazing. Please feel free to message me on Facebook or Instagram for specific needs or ideas.
Again, we are so grateful for all of you that have expressed your concern for us. We feel your love and are thankful to have you in our lives.