Volunteer With Us
Or call us at 866-507-7222 and ask to speak with a Volunteer Engagement Coordinator.
See the difference volunteers made this year in just 3 minutes.
See the difference volunteers made this year in just 3 minutes.
See our current Volunteer Opportunities
Social Media Awareness
- ~1 hour a week
- Raise awareness through social media by following AFTD channels and reposting or sharing your FTD story
Provider Outreach
- ~1.5 hour training + 1 hour a month
- Share AFTD curated packets with healthcare professionals and care providers in your local community
Information Table
- ~2 hours set up + time of event
- Raise awareness by representing AFTD at conferences and other community events
Meet & Greets
- ~6 hours to set up and run
- Plan and facilitate an informal gathering (in person or virtual) to connect people affected by FTD with each other and AFTD resources
Presentations
- ~1.5 hour training + time of presentation itself
- Raise awareness through presentations of AFTD curated PowerPoint slide decks to general audiences such as local service clubs (Rotary, Lions, etc.)
Policy
- Time commitment varies
- Encourage elected officials to support policies and legislation benefiting those impacted by FTD.
- Sign up at theaftd.quorum.us
Proclamations & Resolutions
- Help increase awareness of FTD in your state by requesting a state FTD Awareness Week proclamation or a State FTD Awareness Week resolution
- Email [email protected] to get started
To find out more about our fundraising volunteer opportunities, click here or email [email protected] to get started!
Insights to FTD Researchers
- On an as-needed basis
- Your FTD experience informs scientists about the diverse values, priorities, and concerns of people impacted by FTD to ensure research studies are aligned with the needs of our community (e.g. sitting on focus groups, providing feedback on research materials)
These roles are for individuals who already have had some volunteer experience with AFTD: please let us know now if you’re interested in exploring!
AFTD Ambassador
- ~6 hours a month and annual in-person Summit
- Represent AFTD in your state through networking, outreach, speaking engagements and attending events on AFTD’s behalf
Support Group Facilitators
- ~5 hours per month, 2-year commitment required
- Organize and facilitate a peer-based, caregiver support group (professional experience not required and facilitator training provided)
Volunteer Orientation Facilitators
- ~2 hours per quarter, training provided
- Present to our amazing new volunteers what AFTD is all about, how volunteers are making a difference and orientate them to the mission
Book Review Volunteer: Review submitted books and manuscripts to help AFTD identify valuable resources for the FTD community.
Donor Appreciation Volunteer: Write personalized thank-you notes to recognize and appreciate AFTD donors whose generosity advances our mission and supports families affected by FTD.
To learn more about Walk for FTD volunteer opportunities, click here. The Walk for FTD is AFTD’s national fundraising program that brings together families, caregivers, and supporters to raise awareness and support research, education, and services.
Do you want to explore becoming an AFTD Volunteer?
Follow 3 simple steps!
- Attend an Information Session
Sign up here for a live, volunteer-led session (roughly 60 minutes) to learn more about AFTD and the various volunteer opportunities available – and meet others affected by FTD. - Submit a Volunteer Application
If you decide to move forward after the session, complete the online volunteer application form, which would have been emailed to you. - Connect with a Volunteer Engagement Coordinator
An AFTD Volunteer Engagement Coordinator will reach out within one business day to schedule a Zoom or phone meeting to finalize your application and provide training and next steps.
Interested in Advocacy or Fundraising Only?
Skip the earlier steps and jump in here:
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- Advocacy: Visit our Advocacy Action Center for state-level initiatives, toolkits, and more—or email [email protected]. We will respond within one business day.
- Fundraising: Check out Host an Event to join or start a campaign—races, virtual dinners, and more. Then contact [email protected], and our Events team will be in touch within one business day.
Did you know your employer might help support AFTD? Many companies offer matching gifts, volunteer grants, or even paid time off for volunteering—helping you make a bigger impact at no extra cost. Click here to see if your company participates and maximize your support today!
Connect with AFTD's Volunteer Coordinators
Contact them at [email protected]
Hannah Gruen
Evelyn Lewis
Or call us at 866-507-7222 and ask to speak with a Volunteer Engagement Coordinator.
