CVPF Resources
Central Valley Pulmonary Fibrosis Support Group resource and information links
General Resources
PFF Events
PFF Events
Explore the different events that the Pulmonary Fibrosis Foundation has to offer. We offer support groups, fundraisers, and more.
Fact Sheets for PF & IPF
Fact Sheets for PF & IPF
Pulmonary Fibrosis Foundation
Pulmonary Fibrosis Foundation
Dedicated to finding a cure for pulmonary fibrosis through leading research and clinical trials. Learn more about our work to create a world without PF.
Support Group Meetings
Subscribe to our Google Calendar!
Subscribe to our Google Calendar!
Access Google Calendar with a Google account (for personal use) or Google Workspace account (for business use).
Support Group Interest and Feedback Survey
Support Group Interest and Feedback Survey
Let us know what you would like to see from the Central Valley Pulmonary Fibrosis (CVPF) Support Group! Our goal is to provide a welcoming, safe space for anyone who has or knows someone who has pulmonary fibrosis to connect, discuss, and learn with each other. All current and prospective members are encouraged to share their thoughts and ideas! If you have any questions and/or would like to reach out directly, you can contact Meigan Wu by email at
[email protected]
or phone at (916) 572-2935. Thank you!
In-person Meeting Location (Kyles Temple AME Zion Church)
2940 42nd St, Sacramento
In-person Meeting Location (Kyles Temple AME Zion Church)
Find local businesses, view maps and get driving directions in Google Maps.
Clinical Trials
Browse clinical trials on ClinicalTrials.gov
Browse clinical trials on ClinicalTrials.gov
TYVASO (TETON-1 Study) Press Release
TYVASO (TETON-1 Study) Press Release
The actual press release articles
Podcasts, Videos, and Reading Lists
When Breath Becomes Air
When Breath Becomes Air
Being Mortal
Being Mortal
Being Mortal [Gawande, Atul] on Amazon.com. *FREE* shipping on qualifying offers. Being Mortal
Extremis on Netflix
Extremis on Netflix
Witness the wrenching emotions that accompany end-of-life decisions as doctors, patients and families in a hospital ICU face harrowing choices.
Hidden Brain Podcast
Hidden Brain Podcast
Many of us believe we know how we’d choose to die. We have a sense of how we’d respond to a diagnosis of an incurable illness. This week, we revisit a 2019 episode featuring one family’s decades-long conversation about dying. What they found is that the people we are when death is far in the distance may not be the people we become when death is near.
Free download: Hard Choices for Loving People Guide
1 file • Free
Free download: Hard Choices for Loving People Guide
This guide helps individuals and families make informed and compassionate decisions regarding end-of-life care and medical choices. It provides support for understanding complex options during challenging times.
MettleHealth YouTube Channel
MettleHealth YouTube Channel
Mettle Health is a first of its kind place for anyone confronting illness, disability, aging and death. We can’t change a diagnosis, but we can change the way you navigate it. From the practical, to the emotional, to the existential, sometimes in as little as one session, we can help you reframe the way you think about your situation. Whether you are a patient or caregiver, we can help you find your mettle. Visit us: www.mettlehealth.com
Palliative / Advanced Care Planning
CALIFORNIA POLST FORMS
CALIFORNIA POLST FORMS
Reminders: POLST completion is always voluntary for patient. POLST is not for everyone! It is designed for people of any age who are seriously ill or medically frail. POLST is not just a check-box …
Mettle Health - Remote Palliative Care Services
Mettle Health - Remote Palliative Care Services
Mettle Health is a team of clinicians ready to provide whole person care to anyone living in the United States, without a doctor's referral. We help both patients and caregivers navigate the practical, emotional, and existential issues related to aging, serious or chronic illness and end of life. We
UC Davis Palliative Care
UC Davis Palliative Care
Palliative Care
Snowline Palliative Care
Snowline Palliative Care
YoloCares Palliative Care
YoloCares Palliative Care
Palliative & Supportive Care Palliative care is specialized and highly coordinated care that improves your quality of life while your physicians work to cure or manage your condition. We collaborate with your doctors on a treatment plan that supports you and your goals. And we administer care wherever you are, whether at home or in
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