@chronicallybent
Classical-Like Ehlers-Danlos Syndrome & Co.
Instagram
Instagram
TikTok
TikTok
My Socials!
My Instagram
My Instagram
My TikTok
My TikTok
Parallel Play || My Disability Podcast
Parallel Play || My Disability Podcast
Hey guys! We are Heather and Ella, two chronically ill best friends making our way through life. This channel outlines our experiences with both physical and mental health conditions, including spina bifida, ehlers-danlos syndrome, generalized anxiety disorder, autism, psychosis, and more. No negativity, this channel is designed to be a safe place for all disabled people. If you'd like to check out our podcast, it's over on all major services under the same name, and feel free to visit our instagram and TikTok pages as well!
My Film Portfolio
My Film Portfolio
I'm Heather Shevach, a cinema and television arts student at Elon University. I'm a video editor, specializing in narrative content.
Collagen Advocacy Network
Collagen Advocacy Network || Website
Collagen Advocacy Network || Website
Collagen Advocacy Network provides community, advocacy, education, and resources to people living with monogenic collagen disorders including rare forms of Ehlers-Danlos Syndrome.
Collagen Advocacy Network || Instagram
Collagen Advocacy Network || Instagram
Genetic Counselors (online)
InformedDNA
InformedDNA
Genome Medical
Genome Medical
Meet with a board-certified genetic counselor within one week. Telehealth genetic counseling appointments from the comfort of your home.
Reputable TNXB Tests
GeneDx
GeneDx
Search and select tests from the GeneDx test menu to initiate genetic test orders. View specimen requirements, billing details, and turnaround times.
Prevention Genetics
Prevention Genetics
Fulgent Genetics
Fulgent Genetics
Sequence variants and/or copy number variants (deletions/duplications) within the TNXB gene will be detected with >99% sensitivity (see below for gene limitations). Variants classified as unknown significance (VUS), likely pathogenic, or pathogeni...
Info About My Conditions
Classical-Like Ehlers-Danlos Syndrome
Classical-Like Ehlers-Danlos Syndrome
Congenital Adrenal Hyperplasia
Congenital Adrenal Hyperplasia
Gastroparesis
Gastroparesis
Sensorimotor Polyneuropathy
Sensorimotor Polyneuropathy
Sensorimotor polyneuropathy is a condition that causes a decreased ability to move and feel (sensation) because of nerve damage.
Heart Failure with Mildly Reduced Ejection Fraction (HFmrEF)
Heart Failure with Mildly Reduced Ejection Fraction (HFmrEF)
Postural Orthostatic Tachycardia Syndrome (POTS)
Postural Orthostatic Tachycardia Syndrome (POTS)
POTS is diagnosed only when orthostatic hypotension is ruled out and when there is no acute dehydration or blood loss.
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