Soft Bones, Inc.
The U.S. Hypophosphatasia Foundation
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About Us
Soft Bones – Hypophosphatasia (HPP) Main Website
Soft Bones – Hypophosphatasia (HPP) Main Website
STRENSIQ® Webinar Call | May 19, 2026 at 7 PM Eastern
STRENSIQ® Webinar Call | May 19, 2026 at 7 PM Eastern
Educational events for those living with hypophosphatasia (HPP) and their loved ones. Please see Important Safety Information and full Prescribing Information, including Boxed WARNING.
Soft Bones SpreadShop
Soft Bones SpreadShop
Soft Bones Logo - Lateral? ⭐ Park Panorama ❗ Soft Bones Logo - Lateral White
Take Charge of Your Health
Take Charge of Your Health
Mental Health Resources
Mental Health Resources
HPP Connect
HPP Connect
Join HPP AND ME!
Join HPP AND ME!
Download the myHPP App
Download the myHPP App
Patient Stories
Patient of the Month- Ashleigh F. – Soft Bones
Patient of the Month- Ashleigh F. – Soft Bones
Caregiver Corner – Lisa W.
Caregiver Corner – Lisa W.
Caregiver Corner
Caregiver Corner
Podcasts
Bonafide HPP - Podcast
Podcast
·
Podcast
Bonafide HPP - Podcast
Podcast · Soft Bones, Inc. · Learn more about HPP with this educational podcast series hosted by Deborah Fowler.
Cannon Unbroken - Podcast
Podcast
·
Podcast
Cannon Unbroken - Podcast
Podcast · Cannon Sittig · At just 18 months old, Cannon Sittig, was diagnosed with hypophosphatasia (HPP), a rare metabolic bone disease caused by a genetic mutation. Living with HPP means facing daily challenges most people can’t imagine, but Cannon’s story is far from over. It’s just the beginning.Cannon Unbroken shares powerful, real-life stories of resilience in the face of life’s toughest challenges, especially those related to HPP. Each episode features individuals who have battled personal struggles, adversity, or rare diseases, offering raw and inspiring insights into their journeys.Make sure to tune in!🔔Follow us on Instagram and Facebook, and don’t forget to subscribe wherever you listen!🌐Visit our website: www.SoftBones.org
Resources
Mental Health Guide for HPP Patients
Mental Health Guide for HPP Patients
Region Lead Program
Region Lead Program
Ways to Support
Shop for a Cause!
Shop for a Cause!
Facebook and Instagram Fundraiser – Soft Bones
Facebook and Instagram Fundraiser – Soft Bones
Pampered Chef
Pampered Chef
Table By Pampered Chef
Walmart Spark Good Program
Walmart Spark Good Program
Make a Donation
Make a Donation
Get Involved
Get Involved
Upcoming Events
HPP AND ME Zoom Chat - May 12, 2026 at 8 PM Eastern
HPP AND ME Zoom Chat - May 12, 2026 at 8 PM Eastern
Join Us for a Northwest In-Person Region Meeting - May 17, 2026 at 11 AM Pacific Time
Join Us for a Northwest In-Person Region Meeting - May 17, 2026 at 11 AM Pacific Time
Midwest 2 Region Zoom Meeting - May 21, 2026 at 7 PM Eastern
Midwest 2 Region Zoom Meeting - May 21, 2026 at 7 PM Eastern
HPP AND ME UK Zoom Chat - May 28, 2026 at 7 PM GMT
HPP AND ME UK Zoom Chat - May 28, 2026 at 7 PM GMT
HPP AND ME Zoom Chat - June 18th at 8 PM Eastern
HPP AND ME Zoom Chat - June 18th at 8 PM Eastern
18th Golf Classic and 3rd Pickleball Tournament
18th Golf Classic and 3rd Pickleball Tournament
4th Annual Denim and Diamonds Fundraiser – Save the Date!
4th Annual Denim and Diamonds Fundraiser – Save the Date!
Calendar of Events
Calendar of Events
Programs
Interactive Program Sheet
Interactive Program Sheet
Sign Up for Our Tooth Fairy Pillow Program
Sign Up for Our Tooth Fairy Pillow Program
Youth and Teen Programs
Youth and Teen Programs
Sign up for Hippo Squad!
Sign up for Hippo Squad!
Be Prepared
Traveling with HPP
Traveling with HPP
Emergency Supply Checklist
Emergency Supply Checklist
Emergency Scenario Preparedness Guide
Emergency Scenario Preparedness Guide
View on mobile
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