Turner Syndrome Support Society

Conference booking now open

Join a friendship group!

Roots of Fantastical Matters newspaper

Welcome to the TSSS (UK)

SUPPORT FOR WOMEN AND GIRLS WITH TURNER SYNDROME
The Society provides accurate and up-to-date information on Turner Syndrome and the many aspects of living with the condition on a daily basis. The TSSS is run by volunteers all closely involved with Turner Syndrome. Membership is not compulsory but offers further benefits and the modest annual fee enables the Society to continue to offer support to others. Please JOIN or DONATE.

TS facts
TS information
About TSSS
Publications
Groups & events
Social media
Join or donate
Support us

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What is TS?

Turner Syndrome is a chromosome abnormality affecting only females, caused by the complete or partial deletion of the X chromosome.

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Living with TS

It should be emphasised that each girl/woman with TS is an individual and what is relevant to one is not necessarily relevant to another.

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Treatment

There are a number of treatments available to those with TS, and each girl/woman should be treated according to her individual needs.
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FAQs

Our dedicated YouTube channel will provide answers to many of your questions about Turner Syndrome and living with the condition.

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Missing an 'X'

The TSSS is delighted with the continued success of the new website and social media campaign called "Missing an 'X'".

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Growth hormone treatment

It is important that all members know that girls with TS are entitled to Growth Hormone treatment thanks to the TSSS.
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Advice and support

The Society offers access to information and friendly advice to women and girls with TS.

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Newsletter

The ASPECTS newsletter is an important communication source for all TSSS members.

Website

International

The TS International Group aims to improve knowledge and understanding about TS worldwide.
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Publications

A wide range of publications covering TS, many of which are available for free download.

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Fact sheets

A series of informative fact sheets which are available in printed format or free PDF download.

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Bungle pack

To help open, honest and informative conversation about pregnancy and childbirth.
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Friendship groups

We now have 26 friendship groups around the UK and Ireland where members can meet socially.

Events diary

Events

The society organises events including TS open days, medical seminars and an annual conference.

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TS awareness day

The annual TS awareness week is used to raise greater awareness of TS and related issues.
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Guide

Check out our essential guide to using social media to promote the TSSS.

Join group

Facebook

Keep up to date and chat with friends on our member only Facebook group.

View posts

Instagram

Checkout the Society's latest posts on Instagram and follow us for more.
JOIN TSSS

Join the TSSS

Membership of the Society is GBP 30 (UK) per annum (overseas GBP35) and provides many benefits.

DONATE NOW

Donate to the TSSS

Your donations enable the TSSS to continue to offer support to those with TS and their families.

Donate

JustGiving
You can also donate to the Turner Syndrome Support Society via our dedicated JustGiving page.
Sign up

easyfundraising

Collect free donations for TSSS every time you shop. It doesn't cost you a penny extra.

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Give it up, give it in

Donate a regular amount each month by giving up a coffee, a meal deal or takeaway!

Shop now!

Online TSSS shop

Buy online from the wide range of goodies, clothing, jewellery and publications.

What is Turner Syndrome?

New clinical guidelines

We are delighted to share the newly revised Clinical Care in TS Guidelines.

Emma Woods Fund

Fund in memory of Emma to raise awareness of Turner Syndrome.

Latest podcast

Tune in to Spotify to listen to Emily Seymour's latest Turner Syndrome, Talk and Tea podcast!

Annual conference

Booking is now open for the TSSS annual conference in Keele, October 2026.
EU Clinical Trials

We are happy to share information about Clinical Trials taking place in the EU for your information.

POISE

A new trial to determine the relative effectiveness of hormone replacement therapy (HRT).
Online TSSS shop

Our online shop features TSSS goodies, clothing, jewellery and publications for adults and kids.
Shop online

Insurance services

We have sourced a company that will be able to assist members with most insurance needs. Read more

Join a friendship group!

We now have 26 friendship groups around the UK and Ireland. Join a group

Helpline 0300 111 7520

Mon-Fri 9am - 5pm: a mobile number is on the answering machine if your call is urgent.