Erika and I are about to embark on our first “just us” getaway in years. I think the last one was all the way back in 2009! But this trip to Flagstaff isn’t going to be a relaxing retreat. We’re heading up for a more serious reason—so I can begin infusions to treat my Chronic Lymphocytic Leukemia (CLL).
I’ve shared about my CLL before, but for anyone who may be new to this journey, here’s a quick update. I was diagnosed with CLL nine years ago, and at that time, we were told that, since this type of cancer mostly affects people in their 70s and 80s, I had 20-30 years before treatment would likely be needed. For years, my condition was progressing slowly. But in 2025, things changed fast. My white blood cell count spiked, and we had to start treatment immediately.
I’ve started taking a pill, and when combined with weekly infusions, there’s a 70% chance this will put the CLL into remission over the next 14 months—or at least get my white blood cell count, which is dangerously high right now, under control. I’m beyond grateful for our insurance, as the medication alone costs about $17,000 per month, but it’s fully covered. The infusions are over $5,000 each, and we’re still waiting to find out what our out-of-pocket costs will be.
This week marks the start of my infusions, with treatments on Wednesday and Thursday, followed by weekly sessions for the next several weeks. Erika and I will be staying overnight in Flagstaff because the treatments start early and can last up to 8 hours. While I’m trying to stay as calm and focused as I can through all of this, I know Erika is struggling with the uncertainty. She’s not great with the unknown, and everything about this process is full of it. Infusion reactions can be intense, and we’re both feeling the weight of the unpredictability.