Or rather, why do I long to say it?
These are the words underlined and double underlined at the top of a page dated just over a year ago. One year and eight days ago. The question was a prompt for the writing circle I attended twice a month. I had no idea this would be my last session. Nor did I realize how relevant my words would become just one week later.
Today is December 7th, 2024. Last year, on this day, all future days became question marks. I did not know that I’d be blessed to see the earth return around the sun.
I will share what it was I longed to say, but first I’ll share what I wrote at the beginning of the writing circle for the “right now” warm-up prompt.
November 30th, 2023 – Right Now
When we are at our lowest, do we drop our tools, our hard earned wisdom, and our hope only to surrender to what threatens to overtake us? When I am filled with wonder, it is because I am open. I am in a good frame of mind. It is then that I contemplate magic in the world. Whether it is the wonder of nature, the mystical, the life I wish to manifest, the alchemy of blending goodness with goodness for abundance and harmony. Yet when we need that magic most, is that not when we abandon it? I’m not certain. Do we no longer pull Tarot cards when death is on our doorstep?
Tonight, I am feeling sick. Sick and tired. It’s been nearly two months of pain. October 7th happened. I was struck with migraines. Likely stress over what happened. Then I developed intense abdominal pains. I didn’t go to the doctor. I thought about going to the ER. After a few weeks of this, I developed chest pain that reminded me of when I had shingles. Then I developed a rash on my back the next day. I took meds I had that were still good. The rash resolved but the pain remained. Not as often or as intense but there were no signs of it going away. I considered it was a flare up of my gastritis or hiatal hernia. Or maybe gallstones? Then I read that shingles can start with migraines and stomach pains. I told myself I’d go to the ER if I suddenly developed a fever but that hasn’t happened. It would be good to rule out other issues yet I don’t want to go to the ER for 10 hours, expose myself to Covid, get bullied for wearing a mask, and have my pains dismissed as anxiety. If I go, I want answers and an accurate assessment.
Little did I know, that a week later, once I had the good sense to finally go to the ER, I would indeed be nearly dismissed as just being anxious. This boggles my mind. If I were just anxious why would I wait nearly two months to see a doctor? I asked the ER doctor if it was possible that someone could be both anxious and have something wrong with them. She considered it and said she hated to subject me to radiation from the CT scan if it wasn’t necessary, but she would do it. After my tests, I was sent out to the waiting room. I was fairly content as I’d brought along my headphones, my audiobook on my phone, and was working on a word puzzle. I was prepared for the wait. I was admiring the handiness of the online results app that I’d just installed and saw that my blood work looked good, when the nurse came to get me. I was rather chipper when I commented how quick the wait had been. The nurse paused and gave me a look that I registered as off. I shrugged my shoulders and figured it meant nothing. She sat me back in the exam room and said someone would be with me shortly. My phone dinged again. The results of the CT scan were in. Cancer.
When the ER doctor came back, she looked a bit shaken up. She told me the next steps involved my speaking with my GP. I explained, attempting to hold back tears, that my GP wasn’t helpful which is why I had to visit the ER for help. She said she was full but she’d take me on as her patient. I am thankful for her compassion.
The hardest part of the day was telling my family. I hate to admit that I told my husband via a text in the exam room when I got the CT scan results. I was confused and in shock. He’d found out in the middle of a meeting. Yet, he’s my partner and I needed him to mirror reality to me. So I forgive myself for how I handled telling him. He offered to come get me at the hospital but I told him to meet me at home. He was in the kitchen and I went to hug him and broke down into sobs. I was in better control by the time I told the kids. How do you tell your kids something like that? It’s as awful as you can imagine. As I had so little information, I kept it simple and factual with what I knew. Then I called my parents. Maybe I felt like that nurse who came to get me in the waiting room. She knew she was escorting me to a moment where my life would be forever changed and there would be no going back. I hated that I was about to pull a very stormy cloud over their lives, and that their Christmas was about to be ruined. My heart goes out to anyone that has had to be the bearer of bad news.
I was not intending to make a blog post about the chronological discovery of my past year and I don’t think I’m equipped to do so. I wanted to illustrate why my writing for the prompt was so apropos, even if consciously, I still had blinders on.
So here is what I wrote that late November night in answer to the question “What do I long to say?”.
I think my aim is to document my life: to pull it out of abstract, fleeting, lived experience and pinning it like a butterfly onto paper where it can be witnessed, identified and appreciated. Evidence of a life. I matter. There is weight to my existence. I am not a fleeting character that can be forgotten, no proof that I was real. I mattered.
It started young. I made a book of lists. What books I read. Tv Shows I watched. Favourites. All the favourites. Foods, stars, magazines, camp counsellors, songs, friends, shopping malls, and Smurfs. Then one Christmas I received a mint green coloured portable typewriter. My first newsletter was born.
I kept diaries. I had scrapbooks of Ricky Schroder, Michael Jackson, Michael J. Fox, and Alyssa Milano. Years later, I created a zine. I even interviewed celebrities. Then I scrapbooked my life. I became a blogger. Social media exploded and I could post evidence of my life on Facebook. Anecdotes, clever quips, all the thoughts. On Instagram, I could share photographs, visions of how I see the world. Imagine if I’d had unlimited access to a camera from childhood. How I would love to see those photos! Proof of existence. It is sparse in those early years when film was bought in advance, a dozen frames at a time. Pinterest. I could even curate collections and lists of all the things I want, love, need, enjoy. My 10-year-old dream come true!
And now, leading up to 50, I am fearful of the impermanence of this paper trail I’ve spent decades forming. Photos fade, water damages, paper can burn or be blown away. My treasures and collection of carefully captured and pinned experiences, archived memories, exhibits of my existence might or eventually will get seen as useless and unworthy, thrown into the landfill, buried no more existing than the life I once led.
All the things I long to say requires me to rephrase the question and reframe my lived experience. A butterfly is beautiful in a museum, but it is bittersweet, leaving us to wonder what it must have looked like in flight, in the sunshine and the breeze. I want to be appreciated like that but why have I always placed my value in the eyes of a beholder that is not me? Why does it matter what others think or remember of me?
For the rest of my life, I want to be a witness to my own life as it is happening. I want to be the butterfly in flight in the sunshine and the breeze.
It is now a year later. December is upon us, and I find myself in awe as I stare at the decorations on my Christmas tree. I did not think I’d get another season to set my eyes upon their glittery, whimsical loveliness, as I sip apple cider and listen to carols. My life is rarely lighthearted. I’ve not been able to clear the stormy cloud that hangs above my life, but I’ve seen the rainbows and the silvery lining. I’ve made wishes, and I’ve searched for fallen feathers and angels in the shadows. Let the magic happen, I’m here for it.
















































































































