Tag Archive | strength

Insult to Injury

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“If there ever comes a day when we can’t be together…Keep me in your heart, I’ll stay there forever!”  I love this quote. I’ve had reasons to contemplate death alot as of late. A family member passed way to early. My grandfather is battling aggressive prostate cancer. My 93 y/o grandmother is declining, my own health continues to unravel…with all its painful agony and the medical community having decided I’m far to wrecked to even attempt any further surgeries to even try to  alleviate some of my intense pain, to try to open up the tunnels of my intestines to working order again…to try to get my digestion to start working normally again…but no. Everyone I’ve seen has notified me I am to big a risk for them and for rmyself…that it would cause more problems than it would solve. But yet they can offer me nothing more than a handful of strong medications to help ease the pain…it does far from that let me tell you…it eases very little…just enough though that I do take them. They may afford me a day where I can actually clean my house! Fold my clothes! Brush my dogs! These are big things to me! People think I’m joking when I say mopping my small kitchen floor is no different than climbing Mount Everest to my pain riddled body. I did it this past week…the pain and agony I’ve had since then was not worth it. My abdominal adhesions are burning like hot coals have been inserted into that melted, folded, infected piece of cadaver mesh they placed over my open organs after the muscle wall had been cut away….the adhesions have my insides glued to each other, to other organs…breathing, laughing, sneezing, blowing my nose…all cause the most excruciating agony…but the “pain management team” try their best to follow all the docs direction to just manage her pain until the trauma the medical profession themselves created gets to the point there is no option but to make another cut into the now deformed and misplaced organs…to find the possibly fatal blockage or gangrened piece of intestine that needs to come out…to save my life, even though many have said I would never make it off the table. What kind of hope is that to give to an already scared and suffering patient who has been let down by the medical community? I have had no hope since 2006. But my health has gradually been going downhill since then.

I’m to the point of only drinking Ensure, mashed tatos, Ramen noodles and white breads and Saltine crackers…with the occasional small piece of boiled chicken or fish. No garlic or onion. No beans. No nuts or seeds, no dairy, no fruits or veggies…just a low residue diet…oh, and lots of Gatorade. In the last month the pain has increased and the BM’s have greatly decreased from maybe 2 a month to one..maybe, but its either an impaction the size of a volleyball that requires all of a labor process ending with me in a bloody, tear stained lump of exhaustion on the bathroom floor…or, the newest, me waking up in my own waste with no warning whatsoever…I have no indication when I need to go…but it sneaks out in my sleep…not alot…but enough to be a real bad morning surprise.

So I call this Insult to Injury…Not only was I butchered to the point my insides will never be functional and I must live each minute of my life in enough pain that seriously make me question if I want to continue on in this life…but now I must face being incontinent of stool, where I feel I can’t leave my home in case it should happen while I’m out…I was already a prisoner to my pain, but now must add my bodily functions to the handcuff chains that bind me here.

The hernias themselves are hurting more, now also the pelvic floor prolapse, making it feel as if there is a tree trunk inserted in my female parts at all times…this is not a pleasant feeling to say the least…it is miserable and is making me feel less and less human each day…certainly less female or womanly.

I’m not giving up…though I must say in the past 2 months that HAS seemed the only thing to do…throw in the towel…stop trying…stop thinking anything will ever get any better…just stop! But nope…that’s not me…I’m gonna keep on fighting…keep researching for an answer…keep looking up doctors who might be able to offer me something…maybe not a miracle but just a little something to make my life a tad less crappy…I sill keep looking…cuz I have things left to do in this world!

My son and his fiance are having twins next May or so, and I need to be here for them, to help them with this joyous addition to our loving and tight family! To be here for the grandsons already here who are now preparing for having 2 new siblings…they will be needing their own extra attention and I wanna be here to give it to them!

My 18 y/o daughter who is as beautiful on the inside as she is on the outside needs me here to help guide her thru all the new things life is coming at her with since graduating highschool, having a learning disability forces her to fight battles of her own as far as further schooling and finding a suitable career that she can attain within the scope of her disabilities. She is such a beautiful, funny, innocent, naive and loving human being, who deserves all the joy she can get out of life…and she needs me to help guide her.

My husband who has been my nurse for so many years still needs me around, though I can’t imagine why he would want me here with all the mess I bring to his world…me being ill all the time doesn’t make for a very attractive wife…no big nights out on the town…can’t even clean alot of days…thankfully Jess kicks in there…but Jim still needs me…so I can continue to tell him the “right” way to do everything of course! lol I don’t know why, but he claims he still wants me…so I’m his.

I’m gonna keep fighting…keep trying to help others whenever I can … do what I can to leave something good for my family.

Thanks for reading the ramblings of a very tired, sick and frustrated middle aged woman…I’m not checking spelling or anything, my writing is free flow and just the way I talk mostly…hope it made sense. Have a great week..

Tammy

 

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The Little Girl…Part 9

It’s one of her “bad days.”  That’s how she labels each day of her life now.  “Good days or bad days.”  She’s had been laying in bed all day.  She was loaded up on all her pain medications with heating pad in place.  A stack of books beside her on the bed with a magazine thrown in for variety.  Of course her computer was right there too.  That was a necessity!  It was her window to the world during these bleak days in bed.  She had found many wonderful friends on this World Wide Web!  She could talk to them and they understood her pain…it was a sisterhood of misery so to speak.  She cherished each and everyone of these friends.

It was while reading a book called “Strong at the broken places” that an idea came to her.  She had been struggling with trying to find something positive out of all she had been through…to find some purpose for it all.  While reading about a man who was dieing of Non-Hodgkins Lymphoma…this man, although he knew his time was limited, he would go and volunteer at a Hospice Home weekly.  He felt that since he was living with the fast approaching the crossover to the otherside, what a good match for him to go and help those who were a few steps closer than he!  Now this was her take on what he was doing, not necessarily his.  That was it she thought!  She needed to go help others through their hospital stays!  Afterall, who knew better than she what it was like to be in a hospital?  After spending so much time in the hospital herself, she had been through all the emotions of feeling like a caged animal, of feeling isolated and alone and forgotten.  Of being scared out of her wits.  The not knowing how the next shift would be treating her or not treating her.  The indignities that go along with being in a hospital setting.  She became very excited at the prospect of being able to help others! 

She immediately began searching the local hospitals and hospice homes for a position that she was equipped to perform.  It took her a few weeks and there it was!  A local hospital had an ad on the internet for a “Patient Safety Technician” this position consisted of sitting at the bedside of patients who were at risk of pulling out tubes or climbing out of bed or who were on suicide precautions.  The patients included brain injuries, strokes, seizures, etc.  There would be no lifting or physical requirements!  She couldn’t believe it!  This would be perfect!  She applied immediately.  She prayed and prayed to get this job…she knew it was meant just for her!  Right before Thanksgiving she received the call…she was to come in for an interview! 

Well, to say she was excited would be a huge understatement!  She screamed “Honey!  I have the interview!” she was so happy!  Her husband was happy for her!  She began rummaging through her clothing…she needed to find an interview outfit that still fit her!  She tried on many suits and finally settled on one.  During the interview she was so nervous!  She felt like a stuttering fool!  She left the interview feeling like she probably looked and acted like a moron and wouldn’t get the job.  So much for positive thinking she thought to herself as she drove home.  She walked in the door…to an empty house.  Climbed into her pajamas and laid in bed…thinking of all the dumb answers she had given during the interview.  “God, I am such an idiot!” she said aloud.

The phone rang.  She put down the spatula she had been using to flip hamburgers over on the stove…dinner for the night.  Atleast her husbands dinner, as she can’t eat red meat, hers would be the side dish of mac and cheese.  She answers the phone and it’s the hospital!  She was offered the job!  She was so elated she could barely follow the rest of the conversation!  When she hung up, she began screaming…”I GOT IT, I GOT IT!!  I GOT THE JOB!!!” 

That was one more thing she had to be thankful for that Thanksgiving!  Her life, her family, her friends and now her JOB!  She felt like she was going to be actually contributing now!  To the household, to the community, and most importantly to people who were scared and alone laying in a hospital bed.  After starting the job, it was as she had hoped, perfect for her.  She talked easily to the patients, they liked her, she was caring and empathetic, and to the ones who were able to communicate, she would tell them bits and pieces of her story.  She would answer their questions and concerns.  Some saw her as an inspiration, they felt that since she had survived such a horrible health predicament and come out on the otherside, that they could do the same.  She encouraged them to stay positve, to set their goals and go for it.  They discussed faith and how they felt angry at God…how they felt abandoned…how they felt jealous of their family members who could come and go from the hospital as they pleased…She let them know that all of that was completely normal…that she had felt the same feelings herself.  They would sometimes tell her she had really helped them, had given them hope, had made them feel stronger!  She would go home and feel like she had really made a difference to someone that day at work.  For the first time in a long time…she felt good about herself.  She felt this was what God wanted her to be able to do.  To help others who were suffering.  To be an example of strength and courage.

She spent many years doing this job she loved.  Over those years she had four more grandchildren, making a grand total of five!  She loved them all so much, they frequently stayed all night with her and her husband (otherwise known as Mee Maw and Paw Paw).  Her children and their children would come over every Sunday for potluck dinners.  She felt blessed.  Surrounded by her family, she sat in her chair thanking God for what she had.  When her little five year old grand daughter Sarah came and crawled up on her lap…she hugged her tight and thanked God again…because this LITTLE GIRL would never have to hide under her bed praying to God with fear.  This LITTLE GIRL and all the other grandchildren would be loved and protected.  She rocked her grandbaby and a tear slid down her cheek…one last tear for the LITTLE GIRL that she herself used to be.

THE END

Bring your life to life…stop planning and start living!

thank you all so much for reading my blog!  some of you may know this already, but alot of it is based on my life, with some fiction thrown in as well…I could have put in alot more, but didn’t want to drag it out too much.  I am writing an actual book on this story and hope to someday be published.  Thanks again for taking the time to read it!  I will have many more blogs to come!  😉