Raiden Science Foundation

@RaidenScience

Give kids suffering from UBA5 disease a chance to live a healthy life.

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Raiden Science Foundation
@RaidenScience
Feb 11, 2025
🎧 Tune in to our podcast episode sharing Raiden's journey. Produced by @UMassChan, Real Diseases, Real Stories highlights families changing the world of rare diseases. Listen to our episode & more here: umassmed.edu/rarediseasesre… #RareDiseases #UBA5 #RareDiseasesRealStories
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Raiden Science Foundation
@RaidenScience
13h
We’re excited to introduce Aurelix Bio, a key part of the team helping move our UBA5 gene therapy toward the clinic. Their expertise in drug development and regulatory strategy is helping us navigate this next stage.
Raiden Science Foundation
@RaidenScience
Sep 10
Excited to share that the Raiden Science Foundation has partnered with Citizen Health to bring new AI powered tools and resources to the UBA5 community.
Raiden Science Foundation
@RaidenScience
Sep 4
We have some exciting updates to share this month! From research and new team members to partnerships and fundraising, there’s a lot happening at the Raiden Science Foundation. Stay tuned!
Raiden Science Foundation
@RaidenScience
Aug 2
Five years ago today, Raiden was diagnosed with UBA5 disorder. It was the day that changed everything and the beginning of a journey the Phams never expected. What started with two parents searching for answers became RSF and a fight to create hope where there was none.