More than 1,900 participants from 130 countries came together at #WFHCongress2026 in #KualaLumpur to exchange knowledge, spark collaboration, and advance care worldwide. Over four dynamic days, people with bleeding disorders, healthcare professionals, researchers, policymakers, and advocates united with a shared goal: improving care for people living with #hemophilia and other #BleedingDisorder conditions. Read more: https://bit.ly/4e1Oj8S We look forward to continuing the journey at #wfhCCS in #Prague in 2027 and at #WFHCongress2028 in #Chicago
World Federation of Hemophilia / Fédération mondiale de l'hémophilie
Non-profit Organizations
Montreal, Quebec 13,476 followers
The World Federation of Hemophilia improves and sustains care for people with inherited bleeding disorders worldwide.
About us
For over 50 years, the World Federation of Hemophilia (WFH – www.wfh.org) has provided global leadership to improve and sustain care for people with inherited bleeding disorders, including hemophilia, von Willebrand disease, rare factor deficiencies, and inherited platelet disorders. We save and improve lives by training experts in the field to properly diagnose and manage patients, advocating for adequate supply of safe treatment products, and educating and empowering people with bleeding disorders to help them live healthier, longer, and more productive lives The WFH has been a member of the World Health Organization since 1969 and has national member organization (NMOs) in 147 countries, as well as a network of international volunteers and healthcare providers. Depuis 50 ans, la FMH fait montre de leadership mondial pour améliorer les soins et en assurer la permanence pour les personnes atteintes d’un trouble de coagulation héréditaire, y compris l’hémophilie, la maladie de von Willebrand, les déficits en facteur de coagulation rares et les dysfonctions plaquettaires héréditaires. La Fédération mondiale de l’hémophilie (FMH) est une organisation internationale sans but lucratif qui a été fondée en 1963. Réseau mondial d’organisations de patients de 147 pays, elle est officiellement reconnue par l’Organisation mondiale de la Santé. Durante 50 años, la FMH ha brindado liderazgo a escala mundial a fin de mejorar y preservar la atención para personas con trastornos de la coagulación hereditarios, entre ellos hemofilia, enfermedad de Von Willebrand, deficiencias poco comunes de factores de la coagulación y trastornos plaquetarios hereditarios. La Federación Mundial de Hemofilia (FMH), organización internacional sin fines de lucro, fue establecida en 1963. Está formada por una red global de organizaciones de pacientes en 147 países y cuenta con el reconocimiento oficial de la Organización Mundial de la Salud (OMS).
- Website
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http://www.wfh.org
External link for World Federation of Hemophilia / Fédération mondiale de l'hémophilie
- Industry
- Non-profit Organizations
- Company size
- 11-50 employees
- Headquarters
- Montreal, Quebec
- Type
- Nonprofit
- Founded
- 1963
- Specialties
- hemophilia, bleeding disorders, and von willebrand
Locations
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Primary
Get directions
1184 rue Sainte-Catherine Ouest
Bureau 500
Montreal, Quebec H3B 1K1, CA
Employees at World Federation of Hemophilia / Fédération mondiale de l'hémophilie
Updates
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We are proud to support the launch of Project Elevate Her — a global Seven Summits initiative advancing awareness and equity for women with bleeding disorders. Over the next three years, this campaign will combine high-altitude mountaineering with global storytelling to highlight the experiences of women around the world and address ongoing gaps in diagnosis, care, and visibility. Together, the campaign aims to raise $5 million to support bleeding disorder organizations across five global regions - advancing education, care, and advocacy for women and girls worldwide. Follow the journey and learn more at projectelevateher.com @maialetitia #ProjectElevateHer
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That’s a wrap on #WFHCongress2026 in #KualaLumpur! Thank you to all delegates, speakers, sponsors, volunteers, and partners who made this Congress a success. Read the Day 3 summary: https://bit.ly/4e1Oj8S See you next at #wfhCCS in #Prague and #WFHCongress2028 in #Chicago!
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Congratulations to the winners of the Christine Lee Young Researcher Awards 🏆 🥇Best Free Paper: Arianna Colombo, #Italy 🥇Best Poster: Ilenia Calcaterra, #Italy These award-winning presentations highlighted innovative research advancing care for people with #BleedingDisorders. #WFHCongress2026
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Big news from #WFHCongress2026 in #KualaLumpur! 🌍 The conversations sparked here are only the beginning. Together, we’re shaping what comes next for the #BleedingDisorders community. Join us next in #Prague for CCS 2027 (April 14 - 16, 2027), before we come together again on the world stage at #WFHCongress2028 in #Chicago (April 30 - May 3, 2028). More connection. More progress. More impact for people with #BleedingDisorders.
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It’s the final day of #WFHCongress2026! Join today’s sessions on novel therapies, shared decision-making for women and girls, platelet diagnostics, and patient education, leading into the closing plenary. View today’s program: https://bit.ly/4dWmpuN #KualaLumpur #BleedingDisorders
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Day 2 of #WFHCongress2026 wraps up with another day of impactful learning and collaboration. Today’s discussions explored emerging therapies, chronic pain management, and new models of care. Read the full Day 2 summary: https://bit.ly/4cmuYOl See you tomorrow for Day 3! #KualaLumpur
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The WFH Programs event at #WFHCongress2026 brought the community together to celebrate Twinning partnerships, highlight progress for #WGBD, recognize women leaders and Susan Skinner Memorial Fund scholars, and connect during the evening networking event.
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Day 2 of #WFHCongress2026 is underway! Today’s sessions spotlight global access to care, advances in gene therapy and gene editing, digital innovation and AI, menstrual and WGBD care, and quality of life across the lifespan. See what’s happening today: https://bit.ly/4mQm8vN
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Day 1 of #WFHCongress2026 is complete! From engaging plenaries to clinical discussions and today’s poster networking event, the first day brought valuable insights and global collaboration. Read the full Day 1 summary: https://bit.ly/3QkaOfl See you tomorrow for Day 2!
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