US HAEA

US HAEA has been a member of Linktree for 5 years and joined in August 2021. The social media accounts linked to from US HAEA are: • Facebook • Instagram • YouTube • Email • X Besides social media accounts, ushaea has populated their site with: • HAE Speaks Podcast • HAEA Treatment Education Series Webinar Brief: Choosing for Today and Tomorrow with TAKHZYROⓇ • Join Now | HAEA Member Portal • HAEA Treatment Education Series Webinar: Gene Editing Exploration • HAEA Treatment Education Series Webinar: A Conversation About the Future of HAE: Continuing Our Commitment to the Community • HAE Speaks Podcast: Roundtable with the CEO - Tony Has a Conversation with the Chief Executive Officer of Ionis Pharmaceuticals • Hereditary Angioedema (HAE) Explained • Learning About Hereditary Angioedema (HAE): A Kid-Friendly Guide • Establishing a hereditary angioedema prevalence for the United States using a large administrative claims database • Office Hours With an Expert - Question Form • Spring Scholarships 2027 • Scientific Registry • Sample: School Nurse Letter • HAEA Community Blog • HAE Speaks: Roundtable with the CEO - Tony Has a Conversation with a CSL Executive Director • Write a Letter to Your Representative • HAEA Cares Kits • #BeyondHAE Podcast - YouTube • HAEA Academy: Clinical Trials • Show Your Support with HAEA Merchandise • HAEA College Transition Guide • Voter Voice • Advocacy 101: Advocacy Basics – HAEA Academy • Update Your HAEA Membership! • Donate to #Families4HAE! • US Hereditary Angioedema Association • 2025 HAE IN-MOTION® Virtual Event • HAEA Shared Decision Making Tool • HAEA Events & Webinars • HAEA Scholarships • HAEA Academy • HAEA Website • HAEA in Action Newsletters • Clinical Trials • Breakthrough HAEA-Initiated Research on Quality of Life • Pam King HAEA Scholarship Program Application • 2024 Welcome to Congress Webinar • Brady Club Pen Pal Program • Children's Music Fund (CMF) Program • hae day :-) • Focusing on Charitable Assistance: An Interview with Accessia Health and The Assistance Fund • HAEA Youth Advocacy Achievement League • HAEA Treatment Education Series Webinar: Breaking New Ground in HAE Protection • HAEA Treatment Education Series Webinar: DAWNZERA™ (donidalorsen) • HAEA Treatment Education Series Webinar: From Misdiagnosis to Answers: Mistie’s HAE Journey • Roundtable with the HAEA CEO – A Conversation with KalVista’s Chief Commercial Officer - HAE Speaks | Podcast on Spotify • HAEA Treatment Education Series Webinar: Mapping HAE Treatment: Current Routes and the Road Ahead • HAEA Treatment Education Series Webinar: Bradykinin Signaling: A Clear Path Forward • HAEA 2026 Virtual Meet & Greet • Choosing Coverage with Confidence: An HAE Patient's Guide to Open Enrollment with CSL by HAE Speaks • Nina's HAE Treatment Journey by HAE Speaks