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Our Mission

To support and educate.
To advocate for our community.

To advance research and find a cure for
Diamond Blackfan Anemia Syndrome.

"It is because of these faces and hundreds more unseen, in collaboration with the dedication, hard work, and the love of all our DBA families that we continue to exist. It is because of our passion to ensure our loved ones a better life that we remain solidly committed to our mission."

-Dawn M. Baumgardner, Executive Director

In the Spotlight

Find answers to the most frequently asked questions about DBA Syndrome.

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Updated International Clinical Care Consensus Document published in 2024

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Learn about the current clinical trial opportunities for DBAS patients

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Early detection is crucial. View the new colonoscopy recommendations here.

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Support our cause through financial contributions. Thank you for your kindness!

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Our Impact

Funded over
$
in Research & Education
Supported Families in
Countries
Raised over
$
in the Last 5 Years

Research News

Drs. Agnes Czechowicz and Kathleen Sakamoto awarded grant to continue work to guide future gene therapy and stem cell transplant

March 25, 2026

Drs. Godley, Iskander, and Vlachos awarded grant to identify germline cancer risk alleles

March 6, 2026

Dr. Quarello awarded grant to develop genomics tool used to assist in diagnosing DBAS

February 19, 2026

Professor Strouboulis awarded additional grant to continue investigation into GATA1 mutations

February 19, 2026

Dr. Singh awarded grant to investigate metabolic strategies to target defective erythropoiesis in DBA syndrome

November 18, 2025

Dr. Johan Flygare Awarded Grant for Advances in Gene Therapy Project

April 6, 2025

Dr. Li: Recipient of the Matthew Vroman Building Hope for the Future Award

April 4, 2025

DBAF Provides Sponsorship for 2025 EMBO Workshop on Ribosome Synthesis

February 28, 2025

Dr. Barna Awarded Grant to Identify Molecules that Could Ameliorate Clinical Features in DBA

July 14, 2024

Be part of our community as we work to find a cure.