What is Dravet Syndrome?

Dravet syndrome, also known as Severe Myoclonic Epilepsy of Infancy (SMEI), is a rare form of intractable epilepsy that begins in infancy and proceeds with accumulating morbidity that significantly impacts individuals throughout their lifetime. It has an estimated incidence rate of 1:15,700. [1]

$ 14.1 M+

In Research Funding

Grants Funded

Research Roundtables

Active Clinical Trials

$ 304 K+

Patient Assistance Grants

Educational Conferences

Community. Research. Progress.

Raising Hope & Changing Lives through Research

The mission of Dravet Syndrome Foundation (DSF) is to aggressively raise funds for Dravet syndrome and related epilepsies; to support and fund research; increase awareness; and to provide support to affected individuals and families.

We know that the fight against Dravet syndrome will never be successful without teamwork. None of us can do this alone and to achieve great things we must work together.

Thanks to the collective efforts of our community, DSF has achieved numerous milestones to celebrate. Become a part of #TeamDSF by donating, launching a personal fundraising campaign, or exploring other ways to give.