HS knows no boundaries…neither do we
One Voice for HS, everywhere in the world.
We work alongside patients, practitioners, and advocates across the globe — understanding the gaps in HS care and resources, and building what’s needed to fill them.
Who we are
Our mission
“One global organisation, locally rooted. We establish HS Connect hubs and partner with local allies to improve patient care, close resource gaps, and ensure a future where every HS patient is supported and understood.”
What we’re working toward
Our work is focused on building practical, patient-centered resources and partnerships that help improve HS understanding, access, and support around the world.
Coordinate global campaigns
Develop shared digital resources
Partner on global patient registries
Capacity building & advocate training
Influence health systems policy
Information sharing
Where we work
Our global community
Resources live and in development across 13 countries and regions — with more on the way.
How we work
How do you become part of this?
We go into each country with curiosity — listening first, then building. Every resource we create is grounded in real patient experience and local context.
Listen & learn
We connect with patients and practitioners to understand the real gaps in care and resources in each country.
Build resources
We create translated, culturally relevant education materials — handouts, rack cards, and landing pages in local languages.
Empower advocates
We train emerging patient advocates, establish HS Connect hubs, and support existing local HS organisations.
Drive change
We coordinate global campaigns and influence health systems policy to improve recognition and care for HS worldwide.
