Volunteer

Together We're Stronger
Share Your Talents

Something powerful happens when people show up for a cause that matters. Through community support, storytelling, fundraising, and simply being present for one another, our community has proven what’s possible.

Together, we turn passion into progress! 

There are many ways anyone can volunteer their time, talents, and voice to help. PMSF welcomes volunteers from around the world. It is only in our work together that we will achieve the priorities outlined in our strategic framework.

Raise your hand to be involved by completing the volunteer form below.

Volunteer Possibilities

Volunteers are the engines that make PMSF go. In 2005, a small group of families, scientists, and clinicians came together and formed PMSF. Volunteers were at the heart of PMSF from the very beginning and are at the lifeblood of the organization today. We need your help. 

This is your opportunity to help change lives touched by Phelan-McDermid syndrome! 

Join us as a volunteer in support of one of these key areas. You don’t have to be an expert or have experience. 

Mission & Program Support

Support programs aligned with our mission pillars: connect, care, cure

Awareness

Spread awareness and understanding by educating others

Fundraising

Raise funds and open doors for PMSF in your community

Board & Committees

Bring your professional skills and passion to PMSF’s volunteer leadership

Volunteer Form

Share your skills, interests, and talent! Even if you are unsure how you can help, but would like more information, complete the form. When our needs match your interests, we will be in touch.

If you have questions, comments, and/or suggestions about volunteer opportunities, contact us at info@pmsf.org.

name@example.com
(555)123-4567

Events Calendar

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July 2026
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2026 PMSF Family Conference

The Climb We Make Together - Welcome to the 2026 PMSF Family Conference!PMSF is excited to welcome you to The Climb We Make Together, PMSF’s thirteenth biennial Family Conference and the largest gathering of the Phelan-McDermid syndrome community. Over four incredible days, you will connect with other families, engage directly with researchers and clinicians, and find hope in the latest advancements in care and treatment.
15 - 19 Jul
8:00 am - 6:00 pm
Gaylord Rockies Resort & convention Center
6700 N Gaylord Rockies Blvd, Aurora, CO 80019
October 2026
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Phelan-McDermid Syndrome Awareness Day

Phelan-McDermid Syndrome Awareness Day (PMSAD) is held every year on October 22. Families began this tradition to shine a light on Phelan-McDermid syndrome, and today it’s a global effort. The color green originated from the colors of PMSF, the longest standing organization serving families affected by Phelan-McDermid syndrome. The meaning has expanded to represent hope, strength, […]
22 Oct
All Day
December 2026
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2026 Giving Tuesday

Giving Tuesday is a global day of generosity held each year on the Tuesday after Thanksgiving. It’s a time when individuals, families, and organizations come together to support causes they care about through donations, volunteering, and advocacy. For the Phelan-McDermid Syndrome Foundation, Giving Tuesday is an opportunity to rally the community, raise critical funds for […]
01 Dec
All Day
October 2027
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Phelan-McDermid Syndrome Awareness Day

Phelan-McDermid Syndrome Awareness Day (PMSAD) is held every year on October 22. Families began this tradition to shine a light on Phelan-McDermid syndrome, and today it’s a global effort. The color green originated from the colors of PMSF, the longest standing organization serving families affected by Phelan-McDermid syndrome. The meaning has expanded to represent hope, strength, […]
22 Oct
All Day
October 2028
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Phelan-McDermid Syndrome Awareness Day

Phelan-McDermid Syndrome Awareness Day (PMSAD) is held every year on October 22. Families began this tradition to shine a light on Phelan-McDermid syndrome, and today it’s a global effort. The color green originated from the colors of PMSF, the longest standing organization serving families affected by Phelan-McDermid syndrome. The meaning has expanded to represent hope, strength, […]
22 Oct
All Day
October 2029
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Phelan-McDermid Syndrome Awareness Day

Phelan-McDermid Syndrome Awareness Day (PMSAD) is held every year on October 22. Families began this tradition to shine a light on Phelan-McDermid syndrome, and today it’s a global effort. The color green originated from the colors of PMSF, the longest standing organization serving families affected by Phelan-McDermid syndrome. The meaning has expanded to represent hope, strength, […]
22 Oct
All Day
October 2030
Image

Phelan-McDermid Syndrome Awareness Day

Phelan-McDermid Syndrome Awareness Day (PMSAD) is held every year on October 22. Families began this tradition to shine a light on Phelan-McDermid syndrome, and today it’s a global effort. The color green originated from the colors of PMSF, the longest standing organization serving families affected by Phelan-McDermid syndrome. The meaning has expanded to represent hope, strength, […]
22 Oct
All Day
October 2031
Image

Phelan-McDermid Syndrome Awareness Day

Phelan-McDermid Syndrome Awareness Day (PMSAD) is held every year on October 22. Families began this tradition to shine a light on Phelan-McDermid syndrome, and today it’s a global effort. The color green originated from the colors of PMSF, the longest standing organization serving families affected by Phelan-McDermid syndrome. The meaning has expanded to represent hope, strength, […]
22 Oct
All Day
October 2032
Image

Phelan-McDermid Syndrome Awareness Day

Phelan-McDermid Syndrome Awareness Day (PMSAD) is held every year on October 22. Families began this tradition to shine a light on Phelan-McDermid syndrome, and today it’s a global effort. The color green originated from the colors of PMSF, the longest standing organization serving families affected by Phelan-McDermid syndrome. The meaning has expanded to represent hope, strength, […]
22 Oct
All Day
October 2033
Image

Phelan-McDermid Syndrome Awareness Day

Phelan-McDermid Syndrome Awareness Day (PMSAD) is held every year on October 22. Families began this tradition to shine a light on Phelan-McDermid syndrome, and today it’s a global effort. The color green originated from the colors of PMSF, the longest standing organization serving families affected by Phelan-McDermid syndrome. The meaning has expanded to represent hope, strength, […]
22 Oct
All Day
October 2034
Image

Phelan-McDermid Syndrome Awareness Day

Phelan-McDermid Syndrome Awareness Day (PMSAD) is held every year on October 22. Families began this tradition to shine a light on Phelan-McDermid syndrome, and today it’s a global effort. The color green originated from the colors of PMSF, the longest standing organization serving families affected by Phelan-McDermid syndrome. The meaning has expanded to represent hope, strength, […]
22 Oct
All Day
October 2035
Image

Phelan-McDermid Syndrome Awareness Day

Phelan-McDermid Syndrome Awareness Day (PMSAD) is held every year on October 22. Families began this tradition to shine a light on Phelan-McDermid syndrome, and today it’s a global effort. The color green originated from the colors of PMSF, the longest standing organization serving families affected by Phelan-McDermid syndrome. The meaning has expanded to represent hope, strength, […]
22 Oct
All Day
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