Last August, while my wife was away for a few days, I picked up what felt like a heavy, rubbishy cold. Hot/cold, the full sweats, aching, the whole bit. It lasted in the region of 4-6 days, but when the symptoms abated, I was left feeling utterly wiped out.
I didn’t go back to work for five months.
I never imagined, of course, that that lay ahead of me. I got signed off for a couple of weeks, post-viral fatigue. Not a new one on me, unfortunately. In the last four years (since COVID-19, essentially), I don’t think I’ve had a year go past without having to be signed off for 2-3 weeks at some point with PVF. It doesn’t seem like I pick up more than the average amount of viruses, but it certainly looks like I’ve a tendency to struggle more and more with getting over it.
What was unusual in this instance was that after that initial Fit Note elapsed, I ended going back for another. And another. And before I knew it, I was being signed off until mid-February for something that had started in late August. That day was a shock. My wife had come with me to the doctors’, something she had taken to doing to ensure I was being accurate in how I relayed my symptoms – I’d already been told off at one point for toying with the idea of returning to work at a stage when I was clearly not ready to do so. On this occasion, it was a particularly good job she was there, as I struggled to compute the significance of such an extended absence from work.
Both my employers had been very accommodating (and continue to be so, I will add now), but it’s hard not to feel like you’re taking liberties when you have to email them to pass on yet another Fit Note, this one for three months, just for being tired.
Of course, there’s no ‘just’ about it. Tired, yes. So tired that some days I couldn’t get out of bed. So tired that some days just the act of walking downstairs from my bedroom to the couch would leave me breathless and faint. So tired that for three months at least, I would need to go back to bed for two or three hours sleep in the afternoon, every day. So tired that for four months, I couldn’t do even five minutes of writing because my concentration levels were completely shot.
But still, there’s something demoralising about the vagueness of ‘fatigue’ that plays into one’s belief that one is a charlatan, a faker, even at the same time as being unable to read a book because one’s head is too groggy.
The symptoms fluctuated. Some days I’d wake up feeling relatively normal, and would continue to feel relatively normal until, you know, I did something. Some days a walk to the shops at the end of the road was achievable. Exhausting, but achievable. Some days, it was not.
My GP, at the last visit, had also decided it was time to explore a new line of enquiry. I was referred to the CFS clinic. Chronic Fatigue Syndrome certainly felt like it described what I was going through and while I wouldn’t have forwarded the idea myself, she seemed reasonably sure that we could be looking at Myalgic encephalomyelitis (M.E.). Daunting. The reality of an ongoing chronic health condition was worrying, but at least it would give an explanation, both for this bout and the increased inability to shake any kind of infection off.
These things take time though. In mid-November, after periodic abdominal discomfort and nausea throughout the illness, I had a sustained week of feeling really rotten stomach issues. I’ll spare you the details. After that week, though, we began to see a gradual improvement in my symptoms generally. Christmas came and went.
Letters and forms received and completed, my appointment finally came through for the CFS for the end of January. By this time, I was already gearing up to return to work. Though still consistently tired, it felt a lot more manageable and I felt at the tipping point between needing to prioritise my physical health and addressing the impact that ongoing absence was having on my mental health. In a nutshell, I wanted to get back to work while I still could, before becoming a total shut-in. So conversations about my return were happening, an Occ Health referral was in place, and dates were being discussed. All against the backdrop of dealing with what looked like it would be an ongoing condition.
The phonecall to the CFS didn’t take long. In the end, it wasn’t the severity of my symptoms that led her to conclude I didn’t have M.E., but rather the breadth of symptoms. I wasn’t experiencing all or enough of the symptoms to justify a diagnosis. I was, for example, experiencing post-exertion fatigue, not post-exertion malaise. Activity making me very tired wasn’t enough if it wasn’t also resulting in headaches, inflammation of my glands, acute discomfort in my joints and other physical symptoms. What I had was, in her opinion, a lengthy period of Post-Viral Fatigue, something which it sounded like I was more susceptible to than most.
So that was that. Having geared myself up to a diagnosis of CFS and what that would mean for me going forward, I had to realign my expectations again and accept that what I had wasn’t an ongoing chronic condition, but just something crappy I was experiencing that was both an isolated experience, but also an isolated experience I could expect to happen more frequently. It wasn’t M.E., it was just me.
Now, naturally, nobody wants to have a chronic health condition. So this is, by any standard, good news.
Except of course, the difference between having an ongoing condition on the one hand, and a susceptibility to isolated bouts of illness on the other, is the challenge it poses to one’s absence record. ‘Being more likely to get stuff’ isn’t covered, for example, by the Equalities Act. It’s not an ongoing situation if it’s just a series of unrelated illnesses.
It does leave one feeling just slightly precarious.
So all I can do at the moment is build up my stamina; try and improve my general wellness to try and reduce my chances of getting ill; and increase my resilience for when I do. Lose weight, get fitter, get outside more. All that. And keep my fingers crossed that the next time I get a crappy cold it doesn’t lay me out for half a year. As accommodating as my employers have been, the current situation doesn’t feel like a sustainable model.
I had my first shift back at work yesterday, for one of my two jobs. We’ve agreed a phased return for both jobs and managed to stagger the return dates, so I’ve worked half a day this week, and am down for two half days next week, before starting back at the other job the week after that. I won’t be back up to my full hours for another 5-6 weeks, by which time I’ll hopefully be up to it.
And that first shift back went okay. I stuck it out, got some stuff done. I think there was a certain amount of adrenalin getting me through it – as chipper as I was there, by the time I got home I was ready to drop. And ironically, when I woke up this morning, it wasn’t just fatigue but also aching limbs (my hands particularly, weirdly) and a really groggy, out-of-it head. All the stuff I’d told the CFS clinic I wasn’t experiencing, because back then I hadn’t been. I’m reassuring myself that of course I feel done in today; I’ve just been back to work after five months off sick. And there’s always the chance that it’s psychosomatic; that my brain’s heard that I should be experiencing those things, so it’s decided to act like I am. Stupid brain.
The hands thing is odd though. One of the things I have been able to do for the past three or four weeks is typing, so it’s not like that was a new thing for me yesterday, but they feel really tight and crampy today. But we’ll play it by ear.
All we can do, right?
04 February 2026