Fen, MD (@FvRhijn) / X

Fen, MD

34.1K posts

Fen, MD

@FvRhijn

instagram.com/kutlongcovid

Joined November 2014

Pinned
Fen, MD
@FvRhijn
Mar 25, 2023
Replying to @FvRhijn
Het klopt dat er nog veel onderzoek nodig is voor een behandeling gericht op oorzaken, maar er is al een flinke evidence based trukendoos om symptomen te verlichten. Als je niks meer kan is elk beetje verbetering keihard gewenst.
57K
Fen, MD
@FvRhijn
Nov 13, 2024
Wear a mask please.
Michael Justus
@mhjrad
Nov 12, 2024
Annoy a doctor in one tweet
46K
Fen, MD
@FvRhijn
Jan 4, 2024
The most important lesson from Appelman et al is not that everyone with PEM should get a two day CPET with muscle biopsies, but that we should listen to patients. 🧵
82K
Fen, MD
@FvRhijn
Aug 3, 2024
Fellow healthcare professionals, why is it so hard to apologize for having thought that LC or ME is an FND? We have to apologize and do the work to make right what we did wrong. Can't find my old thread about this, so here's a new one.
91K
Fen, MD
@FvRhijn
Jul 7, 2024
Y'all masking? #yallmasking
27K
Fen, MD
@FvRhijn
Mar 28, 2024
Dag lieve collega's. Het is vandaag twee jaar geleden dat ik me ziekmeldde, en mijn contract loopt vandaag af. Ik had een droombaan als aios reumatologie maar dat werd bruut doorkruist door acute covid en toen long covid. 🧵
117K
Fen, MD
@FvRhijn
Jan 26, 2024
Today the first article I wrote in bed was published. It responds to the recent recommendation of GET for PEM by prof Fedorowski et al. In our piece of correspondence, we explain why GET should not be recommended for pw PEM. See the full text here rdcu.be/dw0Vq
43K
Fen, MD
@FvRhijn
Aug 3, 2024
Replying to @FvRhijn
ME is different because it wasn't for a lack of science that we gaslit people, it was due to our own ignorance and our bias against the chronically ill. And the injustices against pwME are still ongoing. To me it is unethical to advocate for better LC care without mentioning ME.
17K
Fen, MD
@FvRhijn
Jul 11, 2024
I feel I have to give a shoutout to the ME community. Y'all told us about PEM, directed us to resources about the pace trial, pointed out papers from the 80s that have now been replicated in LC (but were not cited) etc. etc. The ME community taught me everything I know. 🙏
Prof Gemma Carey, PhD MMedSci
@gemcarey
Jul 11, 2024
After a day of meetings with LC and disability researchers and community, I can't help but reflecting on how we have seen patient centred arguments emerge across so many fields and what this means for LC /1
17K
Fen, MD
@FvRhijn
Dec 19, 2018
Er volgt nu een draadje waarbij ik een wat ongemakkelijk geheimpje ga verklappen: ik was vroeger ook een antivaxxer. Echt waar.
Jannes Koetsier
@artsJannes
Dec 19, 2018
Replying to @vollebergh @jorisroes and @brabantsdagblad
Inhoudelijk argument: Artsen leren niets over vaccin wetenschap tijdens studie.
Fen, MD
@FvRhijn
Apr 27, 2024
You know, we tried. We tried gentle exercise in bouts of 30 s and resting after. And yet, people keep telling us about how exercise is beneficial. Will you ever just listen to patients? Find a cure for PEM and the secondary deconditioning isn't an issue anymore. 🧵
24K
Fen, MD
@FvRhijn
Oct 7, 2024
It is 2024 and long covid researchers are still unaware of PEM. I really don't get it. It wasn't like I myself knew what PEM was before I fell ill. But I was forced to learn. How are researchers allowed to get away with less than the bare minimum time and time again? 🤷‍♂️
27K
Fen, MD
@FvRhijn
Mar 7, 2024
If yoga worked as a long covid treatment, no one would have long covid anymore. It's the number one advice when you present with LC - do yoga and/or mindfulness. Everyone has tried this already. Please don't waste money on trialling this.
16K
Fen, MD
@FvRhijn
Jan 4, 2024
De les die we van Appelman et al. moeten leren is niet dat iedereen met postexertionele malaise nu een tweedaagse fietstest met spierbiopten moet krijgen, maar dat je je patiënt moet geloven. 🧵
59K