Nic (@LilNic000) / X

Nic

12K posts

Nic

@LilNic000

#Disabled & 10x #ChronicIllness inc #pwME for 22 yrs + prob #AuDHD please #WearAMask whovian, history grad, Christian, grey/demi, #ClimateActionNow

East, England

Joined March 2023

Pinned
Nic
@LilNic000
Mar 1
So last week @X decides to suspend my account for "inauthentic behaviours". I'm still not 100% sure what I did. It might be me sharing Savannah's petition 7 times within a short space of time. But only on threads already about her. Not wanting a person to die is authentic.
366
Nic
@LilNic000
Feb 5, 2025
Replying to @astraeagoods
What?!!! Not only is this saying "we don't care if the people we help get sick, become disabled or die" but the additional awfulness of "and we forbid things that might prevent this". Make it make sense!
54K
Nic
@LilNic000
Feb 7, 2025
Dear #MedTwitter Tell, me is it OK for a gastroenterologist to ask me: - Am I married? - Have I ever been married? - Who I live with? - What subject / university was the degree I studied 20 years ago? - What were my previous job titles? - What is in my handbag? 1/
72K
Nic
@LilNic000
Dec 13, 2023
Or they may be totally happy being single and living a fabulous life and offended that people view singleness as a lesser or precursor status to coupledom rather than an equally valid and fulfilling lifestyle choice. This may or may not coexist with being asexual.
39K
Nic
@LilNic000
Jul 7, 2024
Loving all the #YallMasking photos. Deliberately keeping this account anonymous, so here's a pic of my FFP3 hooked on the porch door handle so I remember to put it on if I go out or answer the door to deliveries.
9.3K
Nic
@LilNic000
Aug 31, 2024
Replying to @charliclement_
Yep, this!! Presenteeism can kill and disable people at worst, or just cause others to spend a week in bed at best. It's performative, selfish, ableist, and should not be encouraged or rewarded.
31K
Nic
@LilNic000
Dec 10, 2023
For crying out loud, "you can only become a doctor if you're prepared to infect other people with a dangerous virus" is not a good take for a med school!!!
11K
Nic
@LilNic000
May 10, 2024
I always wanted to go and see the Northern Lights. But with 20 years of #MECFS including the last 5 1/2 #SevereME, it never happened. It's rather lovely that this #MEAwarenessMonth they've come to see me. Pictures aren't great as hands are shaky.
12K
Nic
@LilNic000
Nov 13, 2023
Replying to @alexandra_DBmed
And this is exactly why we need more disabled doctors, because of the ableist staff like the ones stopping you sitting the exam. This is awful, and you'll make an excellent doctor precisely because you have experienced life from a patients point of view.
11K
Nic
@LilNic000
Jul 29, 2024
Replying to @MartinSLewis and @RachelReevesMP
Surely there's a compromise where it's either automatic if you get pension credit OR apply for it if household income less than say £25,000? I agree that the current system where very rich pensioners get it is unfair and unsustainable, but there's better ways of doing it.
73K
Nic
@LilNic000
Feb 7, 2025
Replying to @LilNic000
- Why I wear a mask? (He has my medical record in front of him) - How old am I? (3 times in 1 appointment, when it is on the screen in front of him!) He also repeatedly touched my arm, and when he took my blood pressure he pulled my arm right up against his body. 2/
9.9K
Nic
@LilNic000
Feb 7, 2025
Replying to @LilNic000
He did however say he would order the 2 tests I wanted. But as soon as those are done and results are back, if they are clear and I don't need gastro any more, then I am putting in 1 hell of a complaint. 10/
6.9K
Nic
@LilNic000
Feb 7, 2025
Replying to @LilNic000
And I don't mean friendly chit chat, he was barking questions at me continually, not giving me a chance to answer properly, talking over me, alternating between questions that were relevant but he already had the info on my hospital record or the notes I'd sent in, & these Qs. 3/
9.6K
Nic
@LilNic000
Feb 7, 2025
Replying to @LilNic000
I felt belittled, intimidated, creeped out, uncomfortable, concerned. It was like it was the 1950s. He seemed to be enjoying making me uncomfortable & having power over me. The fact that he refused to read my notes & wanted me off meds for other conditions set off alarm bells 9/
7.3K