Log inSign up
Long Covid SOS @longcovidsos.bsky.social
15.4K posts
Image
user avatar
Long Covid SOS @longcovidsos.bsky.social
@LongCovidSOS
UK based charity advocating for those impacted by #LongCovid Recognition - Research - Rehabilitation longcovidsos.org longcovidsos.bsky.social
Charity reg no 1199120
longcovidsos.org
Joined July 2020
982
Following
25.9K
Followers
  • Pinned
    user avatar
    Long Covid SOS @longcovidsos.bsky.social
    @LongCovidSOS
    Mar 15
    #LONGCOVIDAWARENESSDAY Stop scrolling 1️⃣ Read our open letter 2️⃣ Use our template to write to your MP 3️⃣ Demand funding for #LongCovid research Six years after the start of the pandemic millions are still living with Long Covid. On #LCAD26 we ask UK policymakers for…
    Muted soft grey background radiating from dark to lighter with 2 Long Covid SOS life rings shown faintly. Long Covid SOS logo top centre with dark green Open Letter text underneath reads “Open letter: Patient-led charity,
Long Covid SOS is calling for sustained funding for Long Covid research” in bold. “Six years after the start of the pandemic, people across the UK are still living with Long Covid. Many of your constituents remain unable to work, rely on ongoing NHS care, and face financial insecurity and uncertainty about their future. Long Covid has not disappeared. For many families it continues to reshape daily life, while also affecting workforce participation across the country.”
    2.6K
  • user avatar
    Long Covid SOS @longcovidsos.bsky.social
    @LongCovidSOS
    Sep 11, 2024
    "The most contagious period is shortly before they become symptomatic - 2 to 3 days beforehand, and shortly after" Asymptomatic transmission - this is how #SARSCoV2 does spreads so successfully Prof Beggs @covidinquiryuk
    Image
    00:00
    225K
  • user avatar
    Long Covid SOS @longcovidsos.bsky.social
    @LongCovidSOS
    Jul 20, 2024
    Just in case anyone is left in any doubt - study shows that the right face masks can reduce exhaled viral load by up to 98% "The wearing of an N95 mask by an infected individual would reduce the likelihood of transmitting the virus by 20 fold"
    Image
    Study reaffirms that masks prevent COVID-19 transmission
    From wsws.org
    90K
  • user avatar
    Long Covid SOS @longcovidsos.bsky.social
    @LongCovidSOS
    Jun 11, 2023
    Chandler is only 23 3 months after #COVID in Dec 2020 she went to A&E with numbness in her hands Her symptoms were dismissed as anxiety “I was told to move along, so I left" She has now been diagnosed with multiple ischemic strokes, caused by inflammation
    Image
    Woman, 23, who suffered stroke possibly linked to Long Covid loses sight in eye
    From bristolpost.co.uk
    124K
  • user avatar
    Long Covid SOS @longcovidsos.bsky.social
    @LongCovidSOS
    Mar 15, 2025
    🚨 Mythbusting #LongCovid with Dr Amir Khan🚨 Long Covid is real. It’s serious. And it’s affecting millions. On #LongCovidAwarenessDay, @DrAmirKhanGP joins us to bust harmful myths. Watch, learn, and share—because the more we talk about Long Covid, the harder it is to ignore.
    Image
    00:00
    125K
  • user avatar
    Long Covid SOS @longcovidsos.bsky.social
    @LongCovidSOS
    Aug 2, 2024
    Research suggests about 40% #COVID infections are passed on about a day before the first symptoms appear Recent study using smart watches shows the wearer can identify an infection before their symptoms start, utilising pulse rates and HRV
    Image
    Israeli study shows smartwatches can warn you have COVID or a migraine is about to happen
    From haaretz.com
    78K
  • user avatar
    Long Covid SOS @longcovidsos.bsky.social
    @LongCovidSOS
    Sep 11, 2024
    "The weight of evidence was that wearing masks was better than not wearing masks, and respirators [FFP3] were better than surgical masks" Prof Beggs is questioned by @covidinquiryuk about the The Royal Society Expert Group review of studies into #SARSCoV2 transmission
    Image
    00:00
    46K
  • user avatar
    Long Covid SOS @longcovidsos.bsky.social
    @LongCovidSOS
    Sep 12, 2024
    "Covid is not airborne it's droplets - surgical masks are fine" Dr Barry Jones describes the "dishonesty" of the IPC cell & the WHO, originally categorising #covid as airborne but then insisting via social media and official guidance that it was not @covidinquiryuk
    Image
    00:00
    148K
  • user avatar
    Long Covid SOS @longcovidsos.bsky.social
    @LongCovidSOS
    Aug 8, 2024
    Big discussion on @BBCSport right now about Noah Lyles who collapsed after the mens 200m final after coming in third It's just been revealed that he has #covid...😢
    Image
    00:00
    306K
  • user avatar
    Long Covid SOS @longcovidsos.bsky.social
    @LongCovidSOS
    Jan 25, 2024
    Hundreds of doctors are planning to sue the NHS over claims inadequate PPE on the frontline has left them with #LongCovid , disabled, and in financial ruin.
    Image
    Doctors whose lives were devastated by long COVID to sue NHS
    From news.sky.com
    30K
  • user avatar
    Long Covid SOS @longcovidsos.bsky.social
    @LongCovidSOS
    Apr 1, 2022
    #LongCovid does not discriminate. People of all ages and backgrounds have had their lives and careers robbed from them by this disease. A 🧵 highlighting some younger people with #LongCovid.
  • user avatar
    Long Covid SOS @longcovidsos.bsky.social
    @LongCovidSOS
    Sep 19, 2024
    We have known of people being asked to remove FFP2/3 masks and replace them with FRSM when visiting hospital Here counsel for @cv_cev asks the IPC Experts if this is reasonable behaviour especially where vulnerable patients are involved
    Image
    00:00
    190K
  • user avatar
    Long Covid SOS @longcovidsos.bsky.social
    @LongCovidSOS
    Mar 12, 2025
    We are heartbroken to share the loss of our co-founder, CEO, and beloved friend, Ondine, who passed away on Tuesday 11th March. Longcovidsos.org/post/ondine-sh…
    A black background with centered white text. The heading reads, “In Honour of Ondine Sherwood.” The message states that Long Covid SOS is heartbroken to share the loss of their co-founder, CEO, and beloved friend, Ondine, who passed away on Tuesday, 11th March. It expresses love and condolences to her family. A small horizontal line is placed at the bottom.
    A black background with centered white text. The message describes Ondine as the driving force and heartbeat of the Long Covid SOS team, a dear friend, and a profound loss to the community. It expresses devastation at her passing but also a commitment to continuing her legacy. The final line states, “We will miss her every day.” A small horizontal line is placed at the bottom.
    121K
  • user avatar
    Long Covid SOS @longcovidsos.bsky.social
    @LongCovidSOS
    Oct 13, 2022
    A combination of 2 vascular biomarkers can identify #LongCovid with 96% accuracy according to this study Both ANG-1 and P-SEL are related to endothelial injury Authors suggest angiogenesis (dev of new blood vessels) as a target for potential treatments molmed.biomedcentral.com/articles/10.11…
    Image

New to X?

Sign up now to get your own personalized timeline!

Create account

By signing up, you agree to the Terms of Service and Privacy Policy, including Cookie Use.

Terms of Service|Privacy Policy|Cookie Policy|Accessibility|Ads info|© 2026 X Corp.
Don't miss what's happening
People on X are the first to know.
Log inSign up
Advertisement
Advertisement