The Ehlers-Danlos Society (@TheEDSociety) / X

The Ehlers-Danlos Society

12.5K posts

The Ehlers-Danlos Society

@TheEDSociety

The global nonprofit organization dedicated to change and progress in the world of Ehlers-Danlos syndromes (EDS) and hypermobility spectrum disorders (HSD).

New York, USA

Joined June 2009

Pinned
The Ehlers-Danlos Society
@TheEDSociety
Dec 9, 2024
Important Update: Our X Account Has Closed As part of our ongoing efforts to focus our resources where they can make the greatest impact, The Ehlers-Danlos Society has decided to close our X account. Our mission to support, educate, and empower the EDS and HSD community remains
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The Ehlers-Danlos Society
@TheEDSociety
Oct 1, 2024
October is Dysautonomia Awareness Month. Dysautonomia, also called autonomic dysfunction, is a group of disorders that affect the autonomic nervous system.⁠ ⁠ Many people with Ehlers-Danlos syndrome (EDS) or hypermobility spectrum disorder (HSD) also have a type of
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The Ehlers-Danlos Society
@TheEDSociety
Sep 11, 2024
📢New Research Identifies Potential Biomarkers for Diagnosing Hypermobile Ehlers-Danlos Syndrome (hEDS) and Hypermobility Spectrum Disorders (HSD)! 🩸A recent study funded by The Ehlers-Danlos Society, and published in the American Journal of Medical Genetics, has identified
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The Ehlers-Danlos Society
@TheEDSociety
Oct 5, 2019
Yesterday @Sia tweeted about having #EhlersDanlosSyndrome. Whilst awareness of those in the public eye speaking out about EDS is very welcome, we’d like to address some inaccuracies bit.ly/2AJj1iT . @BBCNews @DailyMail
Sia reveals having Ehlers-Danlos syndrome - The Ehlers Danlos Society
From ehlers-danlos.com
The Ehlers-Danlos Society
@TheEDSociety
Mar 20, 2020
Hypermobility Movement Therapist, @jdibon has decided to gift her online #hypermobility movement program for the next 3 months. The program will now be free of charge. ehlers-danlos.com/covid-19-updat… #EhlersDanlos #hypermobilityspectrumdisorder #COVID19
The Ehlers-Danlos Society
@TheEDSociety
Jul 5, 2024
The Ehlers-Danlos Society is delighted to welcome @XRPHealthcare as a Sponsor for the 2024 Global Learning Conference taking place in Philadelphia, PA, USA, and virtually worldwide from July 17-21! At XRP Healthcare, we believe that everyone deserves access to affordable
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The Ehlers-Danlos Society
@TheEDSociety
Jan 25, 2024
People who have a type of Ehlers-Danlos syndrome (EDS) or hypermobility spectrum disorder (HSD) may also experience other co-occurring problems such as: - Headaches - Gastrointestinal problems - Autonomic dysfunction - Mast cell activation disorders - Anxiety disorders These
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The Ehlers-Danlos Society
@TheEDSociety
May 1, 2024
May is Ehlers-Danlos Syndromes Awareness Month. What are the Ehlers-Danlos syndromes (EDS)?⁠ ⁠ The Ehlers-Danlos syndromes (EDS) are a group of heritable connective tissue disorders that vary in how they affect the body and their genetic causes.⁠ 🧬⁠ ⁠ ⁠Variants in the
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The Ehlers-Danlos Society
@TheEDSociety
May 9, 2024
🧡The Ehlers-Danlos Society billboard campaign on the Nasdaq billboard is now live in Times Square, New York, USA! The 15-second awareness video will be shown four times per hour across seven days. ⁠This is incredible for awareness and we have the opportunity to reach so many
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The Ehlers-Danlos Society
@TheEDSociety
May 1, 2023
Today is the start of Ehlers-Danlos Syndromes (EDS) and Hypermobility Spectrum Disorders (HSD) Awareness Month!✨ Where in the world are you celebrating EDS & HSD May Awareness Month? 🦓 #MyEDSChallenge #MyHSDChallenge #TogetherWeDazzle #ZebraStrong
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The Ehlers-Danlos Society
@TheEDSociety
Oct 19, 2022
October is #DysautonomiaAwarenessMonth. Today we are looking at some of the known causes of autonomic dysfunction, and how it is investigated. ⁠[THREAD]
The Ehlers-Danlos Society
@TheEDSociety
Sep 17, 2024
September is World Pain Awareness Month. ⁠Pain is one of the most common struggles for people with Ehlers-Danlos syndromes (EDS) and hypermobility spectrum disorders (HSD). ⁠EDS and HSD can cause both acute and chronic pain. ⚡Acute pain occurs suddenly and is usually
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The Ehlers-Danlos Society
@TheEDSociety
Oct 21, 2023
Dysautonomia can cause fatigue in #EhlersDanlosSyndromes and #HypermobilitySpectrumDisorders. #Dysautonomia is a group of disorders that affect the autonomic nervous system. Many people with EDS or HSD also have a type of dysautonomia, such as postural orthostatic tachycardia
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The Ehlers-Danlos Society
@TheEDSociety
Oct 25, 2024
💜Today is Postural Orthostatic Tachycardia Syndrome (POTS) Awareness Day.⁠ ⁠ ⁠ Living with a type of #EhlersDanlossyndrome (EDS) or hypermobility spectrum disorder (HSD) is full of challenges on its own, but EDS and HSD often present alongside other diagnoses such as POTS.⁠
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