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Replying to @calirunnerdoc @ShaneyWright and @NIH
There must be an urgent push for prevention of cardiovascular/ clotting events and neurodegeneration (early dementia) in #LongCovid and that’s the hill I plan to die on.
Dr. Alice 💕
8,192 posts
Dr. Alice 💕
@calirunnerdoc
Cardiologist,Advocate,🏃🏼♀️,✍🏻,Posts≠medical advice. NO DMs 4 MED ADVICE! SARS-CoV-2=persistent vascular virus.Views expressed are my own,not my employers.
Joined April 2009
- I was a healthy cardiologist and marathon runner. Now, I have organ damage and I’m on two medications to thin my blood. Let’s call #LongCovid like it is. A condition with potential to cause a vasculopathy and clotting state that will lead to unprecedented medical complications.
- After two years of #LongCovid, I’ve developed Stage 3 Kidney disease- on top of my neurological issues. This is ongoing disease process that continues to assault organs. Yet,patients are told: “Go exercise! And have a positive attitude.” We demand and deserve: #TreatLongCovid
- The anecdotes of sudden death in young- mid age adults is like nothing I’ve seen in my career as a cardiologist. At what point does “anecdotal” evidence translate into urgent investigation & consensus documents to empower us to prevent these terrible outcomes? #MedTwitter
- Is #LongCovid a "real thing," #MedTwitter? I'll let you decide. Here's my own case: I'm a cardiologist(40s) with no prior medical Hx & have run tons of marathons & several 1/2 Ironman Tris. In March '20, I fell ill and became quickly hypoxic and confused. It was COVID-19. 1/
- Gov’t announcements on #LongCovid during #Omicron surge: Finland: -This will be a widespread chronic illness -Can affect kids -Can infect brain and lead to cognitive impairment -Will impact workforce and economy -Will impact healthcare system -This is a serious crisis U.S.:
- As a physician severely injured by COVID and now with #LongCovid, I had an appointment with a specialist canceled today because “several doctors are out sick.” Does anyone see a very troublesome pattern emerging here?
- An infectious disease physician called to consult on my complex case entered my hospital room and said “I don’t deal with #LongCOVID.” Would be like me saying: “I don’t deal with chronic heart failure.” There is something very peculiar going on in medicine right now. 🧐
- When I became ill with #LongCovid, I left practice for a bit. Took a job as a medical writer as I rehabilitated. Now, I come across articles I wrote last year that I don’t have any memory of writing. This virus can demolish the brain. Yet- we’re ok with pilots getting it now.
- Replying to @calirunnerdocMany people with #LongCovid had/have very mild initial cases, but are suffering greatly & need to be taken seriously. What's the point of this thread? Not for pity, vaccine debates, or treatment suggestions. It's to convince YOU, dear colleagues, that #LongCovid is real. /end
- Hospitalized for ischemic bowel multiorgan damage from my ‘20 COVID infection. Was placed in a room adjacent to an acute COVID patient (who was not in a neg pressure room)- with same staff going to and fro between rooms- doors opening and closing. This is not infection control.
- Well- it happened. Got coughed on purposely. Took my mom to a spine surgeon today to get her out of pain. She & I were the only ones in the clinic in masks. As we checked out, a woman coughed on us. We backed away. She followed us, coughed. Backed away again, she followed.
- Replying to @danaparishI can’t express to you how terrifying it was to experience the brain injury and not understand what was happening to me. I started a FB group in Sept 2020 just for people with COVID brain damage just to convince myself I wasn’t alone. Turns out… I wasn’t. Even way back then.
- MRI Tech seeing post-C-19 on my chart: “So you’ve been having some brain fog or something?” Me: “Actually, I’ve had multiple ischemic events, microbleeds & anoxic brain injury from C-19. I went from a functional cardiologist to unable to read & write at one point.” Tech: _____.
